Weird new symptom possibly connected to Epilepsy

Hi Jake,
I am sorry to hear you are having new symptoms whatever they are tied to.

I can relate a little bit but not completely. I have had one sit-down seizure in which my legs became weak. I did not have the full-blown tonic clonic. I was able to attribute that incident to low blood sugar and not going into a full tonic clonic to the amount of medicine I was on at the time. I was in a store and happened to be at the front. When I came to I had one of the people who had congregated around me get me some beef jerky and a candy bar with peanuts in it. During it I was disoriented and out of it for a time but prior to this was "there" enough to realize I needed to sit down. I couldn't go into that store for a long time because the smell and lights of the store reminded me of the seizure and made me think I was going to have another.

The weird thing I get is the feeling on my forehead like the weight of a hand is there. It sometimes progresses to the back of my head but not always. I can attribute this to a lack of sleep.

My provider is a nurse. I did just talk to her about going to the level 4 epilepsy center and she is all for it. She said a lot of their patients go there. She is onboard with a sleep study also. I say all of that to say this, I am ok with any provider who recognizes their limitations.

This next is presumptuous on my part but that has never stopped me in the past. it sounds like you may have someone who isn't secure with their limitations. I am sure you are aware the depth and breadth of your knowledge could be intimidating. Since communication in the best of environments is 25% preparation, 50% presentation and 75% luck you have an uphill battle to convince them you are interested in what they know not what they don't. My old fallback is to get them to talking and keep them talking. At a minimum you will end up with a serious wild ass guess (swag) and bolster their confidence.

The best to you sir.

Mxy

Hi @jakedduck1

I am sorry to hear about this new symptom. I can imagine it must be discouraging to come up with something new. As your doctor's appointment is today, will you post and let us know what he/she has to say?

@mxyzptlk32
@hopeful33250
Mxy,
I really do like my current Neuro. Even though his diagnosis of Arthritis in my neck may be correct I’d like to see a Rheumatologist to feel a little more confident and talk to my primary doctor and see an x-ray.
Jake

That is a smart decision to talk with a rheumatologist for a second opinion, @jakedduck1. Do you have a rheumatologist now?

No, he croaked. So much fun trying to find a new one. I may just ask my primary who she recommends. I really like her even though we frequently get into knock down drag out disagreements. But I’ll get her trained one of these days.
Jake

I have what they call Syncope due to my seizures. I don't know if it is coming from the Temporal Lobe or not. I am going to be at UC Davis for testing at the Neurological department.

@cindypekarek

You keep me on my toes, Syncope - : loss of consciousness resulting from insufficient blood flow to the brain, Merriam-Webster
I hadn't thought along those lines but I will keep it in the back of my mind if it continues and I need a better diagnosis than my own best guesstimate.

Thanks.

Mxy

@jakedduck1

What!?! He is crooked? Did he steal your hoss? Ok, I better stop there because the rules say sarcasm may not be recognized. I generally envelope my sarcasm within sarcasm fonts but nevertheless. <sarcasm> sarcastic comment </sarcasm>

Mxy

@mxyzptlk32
Oops, I must’ve been thinking of my cousins caregivers when I wrote that. I met he croaked as in died. Feel free to be as sarcastic as you want, I have broad shoulders.
Take care,
Jake

@jakedduck1

See? You would think I would learn. This is a perfect example of communication between human being's being 25% prep 50% presentation and 75% luck. I looked at that and I looked at it and did not think of croaked. I decided you meant what you said, the guy is crooked. You can bet the next time I see "crooked" I will be asking myself if "croaked" fits.
Will do, you also,
Mxy