1. < Blood Cancers & Disorders

Waldenström's Macroglobulinemia

Posted by Yellersam @yellersam, Jan 31, 2012

Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer. How severe would that be compared to other patients? He also falls into the high risk category. Has anybody here with WM fall into the high risk category as well?
Much thanks to all!

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

lorkish | @lorkish | Apr 23 10:15am
In reply to @loribmt "Hi @lorkish, Welcome to Connect! Thank you for sharing your experience of finally getting diagnosed with..." + (show)
@loribmt

Hi @lorkish, Welcome to Connect! Thank you for sharing your experience of finally getting diagnosed with WM. Diagnosing blood disorders can sometimes be challenging but your hematologist pretty much missed the mark! I read in another comment you posted about the high dosage of Eliquis this doctor had prescribed. You sure made the right move with changing hematologists. It sounds like you’re on a better treatment path now and have a doctor you can trust to help you make the right decisions going forward.
With your blood work every three months are there specific markers your doctor is looking for?

Jump to this post

The levels of IgG at 326, IgA at 30 are low while IgM is high at 1550. I have MYD88 gene mutation. I have 1.2g/dL IgM-kappa paraprotein. I believe this is associated with higher risk of disease progression. So I am being monitored. I also had whole body scan which did not result in any tumors anywhere. This scan will be repeated annually now. Thanks to Mayo clinic cancer center I am now confident I will get proper care. Thank you

REPLY
View MoreView Less
Please sign in or register to post a reply.