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Waldenström's Macroglobulinemia

Blood Cancers & Disorders | Last Active: May 25 10:40pm | Replies (135)

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Welcome to Connect, @dcp45.
I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia. You may also be interested in this discussion thread.
- Waldenstroms and amyloidosis http://mayocl.in/2dOVhlz

DCP - is this a recent diagnosis for you? We look forward to getting to know you.

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Replies to "Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia...."

Thank you for the link.
I was diagnosed in early 2014 with Stage IVA lymphoplasmacytic lymphoma/Waldenstrom's Macroglobulinemia with concomitant T-large granular lymphocyte leukaemia complicated by severe neutropenia

DCP - What treatments have you had or currently undergoing? Is the neturopenia managed by transfusions or G-CSF injections? Do you have to manage low red blood cell counts as well as the white blood cells?

@azjulie - how is your husband doing? What treatment is he having?

Yes, my husband, I am looking for a support group. He was diagnosed about six months ago (70) with no other symptoms except fatigue. Blood test were not too worrisome but the recent one showe a spike on one of the results and we have not heard back from the Doctor yet. I am not sure what the next steps will be, the Doctor said no treatment until you have to but that doesn't tell me much or what to expect. He is being treated for HBP and Type 2 Diabetes. High cholestrol also for years but just recently went off the statin because the total number has gotten way too low.