Waiting for the Call: What needs to get done at home before you go?

Recently, we asked the Transplant group members to share their tips in the discussion Packing question: What did you have ready for “the call”?

Along with a lot of great packing tips, several of you mentioned things that need to be done at home in preparation for the call (i.e. pay bills, arrange for someone to mow grass, shovel snow, etc). I’d like to gather your tips again to help others who are waiting for the call.

When you know you’ll be leaving home for an extended period, but aren’t quite sure when you’re leaving, how do you prepare the home? How do you prepare family members?

What should be on your checklist?

Interested in more discussions like this? Go to the Transplants Support Group.

@jolinda

I respectfully asked for NO VISITORS at the hospital and when we got home. I felt very strongly that I owed it to my donor and all of the people who were waiting for an organ themselves to take the very best care of my new kidney from the start. Taking the BEST care of myself included resting and maintaining a germ free environment. I thought that my hubby posting to Caringbridge kept everyone informed and prevented disruption while I was healing. Asking for no visitors also prevents germs, colds, bacteria etc. from being passed to others in the hospital and transplant houses.

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@jolinda I too discouraged visitors. I told both my son and daughter who live a distance, to not bother to come. I would be resting most of the time and it would not be worth their while. My son had flown home (NH) from CA when I was in the local hospital once, prior to transplant. It was such a beautiful gesture but I didn't want him to feel the need to do that. My daughter visited more frequently too while I was pre-transplant and that was more important than after I got my new liver.
JK

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@jolinda

I respectfully asked for NO VISITORS at the hospital and when we got home. I felt very strongly that I owed it to my donor and all of the people who were waiting for an organ themselves to take the very best care of my new kidney from the start. Taking the BEST care of myself included resting and maintaining a germ free environment. I thought that my hubby posting to Caringbridge kept everyone informed and prevented disruption while I was healing. Asking for no visitors also prevents germs, colds, bacteria etc. from being passed to others in the hospital and transplant houses.

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We told people to not come to visit, too. I needed rest, and every day from 12 noon until 3 PM was my nap time. My husband took all phone calls so I could sleep or rest undisturbed.

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@vickianne

Hi flagal. I am your neighbor living in Michael territory. It's been a long recovery and we still see the devastation every day. I'm waiting on a kidney transplant and trying to get preparation advice from everyone's comments.

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Hi @flagal22 and @vickianne Welcome to Connect.
I can't imagine how horrible it must be to have to go through this. When we see the devastation on TV it is always heartbreaking. I haven't had the TV on the last few days but it doesn't seem there has been a lot about this last hurricane/tropical storm, Barry, so I hope it's because it died down a lot.
Up here in New England we deal primarily with snowstorms. I can live with those.
JK

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I was lucky that my Wife caregiver was also a nurse so so of the things she prepared at home was set up of a downstairs bedroom. Sanitizing everything and have all the supplies like a shower chair, gloves masks sanatizer and also we asked that visitation be keeped to a minimum and no sick ness. Masks were required for all visiting. Plus sanitizer. We basically set up the house to be like our hosp room on the rules for visitation. Clorox wipes were used regularly on all door knobs and handles. One other thing. We stayed at a hotel near mayo the first 3 weeks after release from the hospital. And my wife made me stay in the car until she sanitized the room with clorox wipes. We were not leaving any possibility of straw germs.

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@contentandwell

Hi @flagal22 and @vickianne Welcome to Connect.
I can't imagine how horrible it must be to have to go through this. When we see the devastation on TV it is always heartbreaking. I haven't had the TV on the last few days but it doesn't seem there has been a lot about this last hurricane/tropical storm, Barry, so I hope it's because it died down a lot.
Up here in New England we deal primarily with snowstorms. I can live with those.
JK

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The hurricane has definitely had a devastating effect on our community. We've lost doctors, teachers and many businesses. Stores and restaurants are trying to reopen but there aren't enough workers because there is no place for them to live. Personally it has complicated preparations for a transplant. Our home still has mildew and needs glass replacement. We're waiting on an insurance settlement.

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@vickianne

The hurricane has definitely had a devastating effect on our community. We've lost doctors, teachers and many businesses. Stores and restaurants are trying to reopen but there aren't enough workers because there is no place for them to live. Personally it has complicated preparations for a transplant. Our home still has mildew and needs glass replacement. We're waiting on an insurance settlement.

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@vickianne and @flagal22 its nice to see posts from the area! I live in Jacksonville now, but lived in Mexico beach before Michael! I wasn't aware that I had kidney issues until January this year! I feel very fortunate that we relocated to Jacksonville after the storm! The medical professionals in this area have made the move worth it. We were planning on moving "home" a few months ago, but my health has changed our plans. We are still planning on moving, but not until after my health gets more stabilized!

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@tiffersann

@vickianne and @flagal22 its nice to see posts from the area! I live in Jacksonville now, but lived in Mexico beach before Michael! I wasn't aware that I had kidney issues until January this year! I feel very fortunate that we relocated to Jacksonville after the storm! The medical professionals in this area have made the move worth it. We were planning on moving "home" a few months ago, but my health has changed our plans. We are still planning on moving, but not until after my health gets more stabilized!

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I'm sorry you had to leave Mexico Beach. But, it sounds like you are in the right place for medical help. I live in PC in the Cove. It's an old neighborhood full of beautiful trees and is just unrecognizable now. My kidneys have been getting worse for years and it's now time for a transplant. I probably have a donor and should have surgery soon. We're just waiting to hear.

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@tiffersann

@vickianne and @flagal22 its nice to see posts from the area! I live in Jacksonville now, but lived in Mexico beach before Michael! I wasn't aware that I had kidney issues until January this year! I feel very fortunate that we relocated to Jacksonville after the storm! The medical professionals in this area have made the move worth it. We were planning on moving "home" a few months ago, but my health has changed our plans. We are still planning on moving, but not until after my health gets more stabilized!

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@tiffersann I’m very sorry to hear of your kidney issues on top of being from Mexico Beach which was devastated by Hurricane Michael. We are also living in the Jacksonville area. We moved because of my liver issues so we were close to the Mayo Clinic before and after my transplant. We do plan to return to our home in Panama City as soon as the house repairs are done, which should be by September and depending on my recovery.

@vickianne I hope you can get a kidney transplant soon. I’ve heard about damages in the Cove from people I know who live there, to all of the trees and homes and hope your home is came through the hurricane well.

It has been my pleasure to “meet” both of you on this blog. Take care!

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@vickianne

I'm sorry you had to leave Mexico Beach. But, it sounds like you are in the right place for medical help. I live in PC in the Cove. It's an old neighborhood full of beautiful trees and is just unrecognizable now. My kidneys have been getting worse for years and it's now time for a transplant. I probably have a donor and should have surgery soon. We're just waiting to hear.

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@vickianne I hope things work out well for your donor to be able to give you a kidney and that the transplant occurs soon. Please let us know how you are doing.
JK

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I am just in the personal evaluation stage of becoming a kidney donor. I am sure I will have many questions. The first is: How long before you are cleared to resume regular interactions with folks? My life is full of grandkids (also know as germ machines), children and friends. Thank you.

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