Waiting for the Call: What needs to get done at home before you go?

Posted by Colleen Young @colleenyoung, Jul 15, 2019

Recently, we asked the Transplant group members to share their tips in the discussion Packing question: What did you have ready for “the call”?

Along with a lot of great packing tips, several of you mentioned things that need to be done at home in preparation for the call (i.e. pay bills, arrange for someone to mow grass, shovel snow, etc). I’d like to gather your tips again to help others who are waiting for the call.

When you know you’ll be leaving home for an extended period, but aren’t quite sure when you’re leaving, how do you prepare the home? How do you prepare family members?

What should be on your checklist?

@vickianne

Hi flagal. I am your neighbor living in Michael territory. It's been a long recovery and we still see the devastation every day. I'm waiting on a kidney transplant and trying to get preparation advice from everyone's comments.

Jump to this post

Hi @flagal22 and @vickianne Welcome to Connect.
I can't imagine how horrible it must be to have to go through this. When we see the devastation on TV it is always heartbreaking. I haven't had the TV on the last few days but it doesn't seem there has been a lot about this last hurricane/tropical storm, Barry, so I hope it's because it died down a lot.
Up here in New England we deal primarily with snowstorms. I can live with those.
JK

REPLY

I was lucky that my Wife caregiver was also a nurse so so of the things she prepared at home was set up of a downstairs bedroom. Sanitizing everything and have all the supplies like a shower chair, gloves masks sanatizer and also we asked that visitation be keeped to a minimum and no sick ness. Masks were required for all visiting. Plus sanitizer. We basically set up the house to be like our hosp room on the rules for visitation. Clorox wipes were used regularly on all door knobs and handles. One other thing. We stayed at a hotel near mayo the first 3 weeks after release from the hospital. And my wife made me stay in the car until she sanitized the room with clorox wipes. We were not leaving any possibility of straw germs.

REPLY
@contentandwell

Hi @flagal22 and @vickianne Welcome to Connect.
I can't imagine how horrible it must be to have to go through this. When we see the devastation on TV it is always heartbreaking. I haven't had the TV on the last few days but it doesn't seem there has been a lot about this last hurricane/tropical storm, Barry, so I hope it's because it died down a lot.
Up here in New England we deal primarily with snowstorms. I can live with those.
JK

Jump to this post

The hurricane has definitely had a devastating effect on our community. We've lost doctors, teachers and many businesses. Stores and restaurants are trying to reopen but there aren't enough workers because there is no place for them to live. Personally it has complicated preparations for a transplant. Our home still has mildew and needs glass replacement. We're waiting on an insurance settlement.

REPLY
@vickianne

The hurricane has definitely had a devastating effect on our community. We've lost doctors, teachers and many businesses. Stores and restaurants are trying to reopen but there aren't enough workers because there is no place for them to live. Personally it has complicated preparations for a transplant. Our home still has mildew and needs glass replacement. We're waiting on an insurance settlement.

Jump to this post

@vickianne and @flagal22 its nice to see posts from the area! I live in Jacksonville now, but lived in Mexico beach before Michael! I wasn't aware that I had kidney issues until January this year! I feel very fortunate that we relocated to Jacksonville after the storm! The medical professionals in this area have made the move worth it. We were planning on moving "home" a few months ago, but my health has changed our plans. We are still planning on moving, but not until after my health gets more stabilized!

REPLY
@tiffersann

@vickianne and @flagal22 its nice to see posts from the area! I live in Jacksonville now, but lived in Mexico beach before Michael! I wasn't aware that I had kidney issues until January this year! I feel very fortunate that we relocated to Jacksonville after the storm! The medical professionals in this area have made the move worth it. We were planning on moving "home" a few months ago, but my health has changed our plans. We are still planning on moving, but not until after my health gets more stabilized!

Jump to this post

I'm sorry you had to leave Mexico Beach. But, it sounds like you are in the right place for medical help. I live in PC in the Cove. It's an old neighborhood full of beautiful trees and is just unrecognizable now. My kidneys have been getting worse for years and it's now time for a transplant. I probably have a donor and should have surgery soon. We're just waiting to hear.

REPLY
@tiffersann

@vickianne and @flagal22 its nice to see posts from the area! I live in Jacksonville now, but lived in Mexico beach before Michael! I wasn't aware that I had kidney issues until January this year! I feel very fortunate that we relocated to Jacksonville after the storm! The medical professionals in this area have made the move worth it. We were planning on moving "home" a few months ago, but my health has changed our plans. We are still planning on moving, but not until after my health gets more stabilized!

Jump to this post

@tiffersann I’m very sorry to hear of your kidney issues on top of being from Mexico Beach which was devastated by Hurricane Michael. We are also living in the Jacksonville area. We moved because of my liver issues so we were close to the Mayo Clinic before and after my transplant. We do plan to return to our home in Panama City as soon as the house repairs are done, which should be by September and depending on my recovery.

@vickianne I hope you can get a kidney transplant soon. I’ve heard about damages in the Cove from people I know who live there, to all of the trees and homes and hope your home is came through the hurricane well.

It has been my pleasure to “meet” both of you on this blog. Take care!

REPLY
@vickianne

I'm sorry you had to leave Mexico Beach. But, it sounds like you are in the right place for medical help. I live in PC in the Cove. It's an old neighborhood full of beautiful trees and is just unrecognizable now. My kidneys have been getting worse for years and it's now time for a transplant. I probably have a donor and should have surgery soon. We're just waiting to hear.

Jump to this post

@vickianne I hope things work out well for your donor to be able to give you a kidney and that the transplant occurs soon. Please let us know how you are doing.
JK

REPLY

I am just in the personal evaluation stage of becoming a kidney donor. I am sure I will have many questions. The first is: How long before you are cleared to resume regular interactions with folks? My life is full of grandkids (also know as germ machines), children and friends. Thank you.

REPLY
@auntval

I am just in the personal evaluation stage of becoming a kidney donor. I am sure I will have many questions. The first is: How long before you are cleared to resume regular interactions with folks? My life is full of grandkids (also know as germ machines), children and friends. Thank you.

Jump to this post

@auntval, Welcome to Connect. You are the sunshine of my morning by sharing your willingness to be evaluated to be a living kidney donor. I am a recipient and my donor is a deceased donor. This is an excellent question, and I am confident that you will soon be hearing from others who are more qualified than me to respond to it.

-In the meantime, here is a discussion I want to share with you: Kidney transplant – The Journey from the Donor's Side. If you click on this link you will be taken to the discussion. You will have the option to select the order of oldest to newest or newest to oldest posts. It is a lengthy discussion, but I think it it well worth an afternoon of reading. I invite you to join in that discussion with your question, too.
https://connect.mayoclinic.org/discussion/kidney-transplant-from-the-donor-side/
-Here is another feature from Mayo Connect Transplant Pages where you will find the Living Donor Toolkit.
https://connect.mayoclinic.org/page/transplant/tab/resource-36/
I look forward to hearing more about your journey. Your questions are always welcome here.

REPLY
@auntval

I am just in the personal evaluation stage of becoming a kidney donor. I am sure I will have many questions. The first is: How long before you are cleared to resume regular interactions with folks? My life is full of grandkids (also know as germ machines), children and friends. Thank you.

Jump to this post

Congrats on looking into being a donor!
Donors don't have as many restrictions as recipients because their immune system isn't compromised by health concerns or medication.
I would think you could see them as soon as you feel well enough for company but there is a lifting restriction (not more than 10#) for a month or so.

REPLY
@auntval

I am just in the personal evaluation stage of becoming a kidney donor. I am sure I will have many questions. The first is: How long before you are cleared to resume regular interactions with folks? My life is full of grandkids (also know as germ machines), children and friends. Thank you.

Jump to this post

My daughter was my donor. Since she was not on immunosuppressants, there was no waiting period to see family or anyone. It’s just using common sense after surgery. A week after surgery, she was being silly and doing a jig to show us how good she felt. Also sending a huge thank you for your willingness to be a donor.

REPLY
@auntval

I am just in the personal evaluation stage of becoming a kidney donor. I am sure I will have many questions. The first is: How long before you are cleared to resume regular interactions with folks? My life is full of grandkids (also know as germ machines), children and friends. Thank you.

Jump to this post

@auntval, I want to follow up to your original post where you said that you had questions about being a living kidney donor. Did the informatioin that I shared provide you with answers to some of your questions? Are you still thinking about living donation?

REPLY
Please sign in or register to post a reply.