Volara nebulizer

OMG. I read my post above and there are so many mistakes, but I hope you get the gist

@jillcrawford
Hi Jill, I use the Volara twice a day, with 7% saline. I was told to breathe normally. I no longer use the Airobika; also have never used a vest. My doctor prescribed the Volara because I wasn't responding as well as expected to the big 3 plus Aricayce (I have MAC), and she thought I was too thin to use a vest.
I do the first 5 minutes, then take a short break to moisten my mouth, then finish the session. In the evenings I also do airway clearance (about 20 minutes); I don't make much sputum, much less than when I was first diagnosed and also less than when I was on inhaled antibiotics.
I disassemble and soak in soapy water then rinse the handpiece once a day; just disassemble and rinse the other time. I use hot water from my 135 degree tank. No sterile water. I don't try to clean the air hose.
I like your typos - how many psych goals make a cycle?

I’m so sorry somehow I hit post before I was able to clean up the above typos. Additionally, I’m very confused with I’m cleaning.
I do not know what to do. I did not know which part to clean and how often. Previously when I was on a nebulizer alone, I cleaned every day and paid a special attention t0 the mouthpiece which I used, which I cleaned with bleach and a brush.
I can’t separate all the parts to clean them individually I’m afraid if I pull out the tube, it will affect the filter which cannot get wet. I really need help.
Again, sorry for the above typos, but I’mv A noviceat all this jill

How long were you on the big 3 and Aricayce before and how long have you had MAC?

@pacathy I am trying to buy a bololo. do you know why they seemed to have disappeared from retail

@dorothyjeansimpson
I was diagnosed with MAC in the fall of 2024 but didn't start meds until June 2025. I had two cavities, so I was put on full dose of the big 3, plus Aricayce every other day. A month into treatment, pseudomonas showed up in my sputum, so was treated for that as well. Developed balance problems after 2 months on tobramycin, so stopped that and Aricayce (about 6 months ago). Started using the Volara at the same time.
So for the last 6 months I've been on big 3 and Volara. Lung function test and CT indicate some improvement, I feel really good but am concerned that docs may want me to add another med since the cavities are still there (smaller and thinner-walled, but still here).
Maybe more answer than you wanted...
Sarah

Sarah, this is great info and I will be asking my team about Volara. I've been on the big 3 and Arikayce and CT scans are bad after 18 months.

@dorothyjeansimpson
Oh Dorothy, that's a long time to be on those meds and CT is still bad. I hope the Volara can help. Warning, it's expensive! -Sarah

@yardsend My 2000 deductible on scrips has already been met. Thanks for caring

@dorothyjeansimpson Hasmyour doctor ordered sensitivity testing to make sure you are on the right antibiotic for the strain of MAC you have? Sometimes, new and different strains show up that don't respond to the same meds, and the docs need to find a different one.