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Replies to "Sarah, this is great info and I will be asking my team about Volara. I've been..."
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (42)
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Sarah, this is great info and I will be asking my team about Volara. I've been on the big 3 and Arikayce and CT scans are bad after 18 months.
Replies to "Sarah, this is great info and I will be asking my team about Volara. I've been..."
@dorothyjeansimpson Hasmyour doctor ordered sensitivity testing to make sure you are on the right antibiotic for the strain of MAC you have? Sometimes, new and different strains show up that don't respond to the same meds, and the docs need to find a different one.
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@dorothyjeansimpson
Oh Dorothy, that's a long time to be on those meds and CT is still bad. I hope the Volara can help. Warning, it's expensive! -Sarah