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Volara nebulizer

MAC & Bronchiectasis | Last Active: 1 day ago | Replies (42)

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Profile picture for dorothyjeansimpson @dorothyjeansimpson

How long were you on the big 3 and Aricayce before and how long have you had MAC?

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Replies to "How long were you on the big 3 and Aricayce before and how long have you..."

@dorothyjeansimpson
I was diagnosed with MAC in the fall of 2024 but didn't start meds until June 2025. I had two cavities, so I was put on full dose of the big 3, plus Aricayce every other day. A month into treatment, pseudomonas showed up in my sputum, so was treated for that as well. Developed balance problems after 2 months on tobramycin, so stopped that and Aricayce (about 6 months ago). Started using the Volara at the same time.
So for the last 6 months I've been on big 3 and Volara. Lung function test and CT indicate some improvement, I feel really good but am concerned that docs may want me to add another med since the cavities are still there (smaller and thinner-walled, but still here).
Maybe more answer than you wanted...
Sarah