Anyone have Vagus nerve problems causing strange, unnerving symptoms?

Posted by joannemm34293 @joannemm30809, Mar 23, 2023

Does anyone else have debilitating symptoms that affects the entire body, especially in the morning hours, and my Arrhythmia Dr told me I have Vagus Nerve malfunctions that causes major issues where my heart goes off beat, I have to continually use the bathroom and I get an overall body feeling of just feel sick, rush of nausea etc.

I still have the overall muscle twitching and strange internal vibrations as well as tinnitus and thumping sounds in my right ear.

Does anyone else have Vagus nerve problems that cause strange, unnerving symptoms??

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Thank you for your input. I generally feel it coming on but really don’t have time to react before i pass out. The last time I passed out had no warning at all. All I remember is coming too and staring at my baseboard molding. Once again, thank you for your input..

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I was diagnosed with Vasovagal Syncope about 25 years ago. It took several episodes of passing out because my blood pressure would suddenly bottom out. Then I would get Tachycardia trying to stabilize. After trying a few Betablockers I am on the correct one and have been doing great.

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At age of around 57 I worked in a potato field and got very hot late in afternoon. I drank some very cold Gator-aid and my heart started to race and felt like it was flip flopping in my chest. Doctor said it was the cold fluid acting against my Vegus nerve. After two more times I stopped drinking anything cold and problem has not returned other than the discovery of a severe Myocardial Bridge of the LAD artery 20 years later.

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@jazzyoldbroad

I was experiencing the same symptoms of muscle twitching, internal vibrations and feeling unwell. I have severe spinal arthritis and have been having a lot of pain in the neck area. I was wondering if the Vagus nerve might be an issue but when I mention it to doctors, they kind of glass over without a response.

Please provide your input if anyone is familiar with and has info re: this topic.

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First, look doc in the eye and tell him you don’t appreciate the disrespect and ask to explain what was wrong AND what qas right with your question. On the other hand it might be better to find a specialist who has a holistic approach to medicine and find a practitioner of non-allopathic healthcare. Ask friends, use the internet and commonsense to find this person.

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Yes, I am. Every night, just as I am about to drop of to sleep, I get a heart palpitation and then my left ear starts ringing, and my left foot goes numb. It all happens simultaneously. The tinnitus can get very loud and high pitched and has been pulsatile. There is a feeling of pain and pressure in my left ear. I have to urinate and it cycles all night waking me up at intervals and having to urinate repetitively (in a bad attack). My throat can get hoarse and sore and my nose runs. My face turns bright red. When it was really bad I would wake up sweating between 3-5AM every morning. I have had episodes of sleep apnea, muscle twitching. There is a constant sense of burning and irritation in my left ear. When I wake up my face is bright red and I get outbreaks of rosacea.

I am seeing a neurologist at Barrow and I will likely get in to dysautonomia testing. In my case, I can get the same symptoms during the day if I eat foods with histamine. It also gets worse at night if I have histamine attacks during the day. I have been to multiple doctors and specialist and Barrow is the only place where I was taken seriously.

Beverly

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@daniel777

At age of around 57 I worked in a potato field and got very hot late in afternoon. I drank some very cold Gator-aid and my heart started to race and felt like it was flip flopping in my chest. Doctor said it was the cold fluid acting against my Vegus nerve. After two more times I stopped drinking anything cold and problem has not returned other than the discovery of a severe Myocardial Bridge of the LAD artery 20 years later.

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I got heart palpitations for hours after drinking water. It was really frightening.

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@joannemm30809 did your doctor give you any medication for it?

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A family member has been suffering similar symptoms to those your describing. The internal tremors are followed by nausea, vertigo, reaching, and the heart beat going completely out of wack. (To the point of now having a pacemaker.) She also terrible stomach pain, usually early hours of the morning. But no tinnitus.
Though she does have random times when her feet get so hot she puts them in tub of water.
For about 20 years she had epilepsy. Which started,/went away with no know reason.
I have asked drs about links with these symptoms and the vegus nerve but no one has really listened to me.

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@kerrylee3

A family member has been suffering similar symptoms to those your describing. The internal tremors are followed by nausea, vertigo, reaching, and the heart beat going completely out of wack. (To the point of now having a pacemaker.) She also terrible stomach pain, usually early hours of the morning. But no tinnitus.
Though she does have random times when her feet get so hot she puts them in tub of water.
For about 20 years she had epilepsy. Which started,/went away with no know reason.
I have asked drs about links with these symptoms and the vegus nerve but no one has really listened to me.

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Hi @kerrylee3 and welcome to connect. I notice this is your first post so I thought I would let you know how replies work. There is a couple of ways to speak to another person here on connect. For them to see that you addressed a certain post you can either click on the blue reply button or like I did with your handle put a @ before their handle name. This way that person will either see your reply in their email box or the onsite notifications bell you see at the top of the main page. Its also possible they are watching this series of replies and will respond to you when they next come back .

I myself had a heart transplant 6 years ago and I had similar problems with rhythm prior to the transplant. I too had interesting twitches in my feet mostly which would go away but I never tied it to the vegus nerve. I do know now because during a heart transplant the vegus nerve is cut so we have to get used to it not responding as well to increase heart rate when exercising. SO again welcome and let us know if there is any specific area you have interest in. We have members from many different areas who share experiences.
I might ask what brought you to connect? is there an area of interest that brought you here?

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Yes, same, internal tremors, muscle spasms, ears pulsing sound, twitching area/eardrum, As soon as I lay down at night. And neck pain and stiffness most days cannot been my head and certain positions, and as the night progresses, the: colon spasms begin, it feels like I can feel the stool moving through my gut and it causes all this symptoms to be worse, with referral twitching of vagus nerve in base of skull (feels like meninges is spasming or brain is twitching), worse time is early morning 3-6am daily, leaves me feeling spacy, forgetful, mentally declined and with tremoring left hand when I eat all day. Morning, symptoms are very exacerbated when I've had a bad night 🙃 You're definitely not alone. Things just seem to get weirder as we get older 🤣

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