Vaginal burning: What could it be?

Posted by mmoss @mmoss, Mar 30, 2021

I am a 67 year old who in the last two months have a severe burning sensation in my vaginal area. I have been to every specialist and no one knows why. I have had a CT, Ultra sound, and been examined numerous times. There are no findings to what is causing this pain. I have no underlying medical conditions. Prior to this I was extremely healthy. Now I am in pain management and desperately want to be off pain medication and find a Dr who can diagnose what is happening to cause this burning. Any suggestions would be extremely welcome.

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@mmoss

I appreciate the reply. This started out as lower abdominal burning for 1.5 months. The paIn then moved Out of abdomen into the vagina. I am 67 years old and have had no medical problems. Medication included Cymbalta for 6 weeks but am now off as I did not feel well while on that medication. I am on Gabapentin but not as much as I was as again I did not feel like myself. Since being in pain management I have been on Vicodin until a week ago when I started to itch. I am taking tramadol now and Zyrtec and try to take as little as possible and only when pain is really bad. I want desperately to get off the pain medication. Last Thursday I had a epidural steroid injection by pain management at the T-12 and L-1 area. It did not stop the burning. I need to find out what is causing this pain and how to get relief without pain medication. My ob/gyn prescribed estrogen cream to try for the burning. I am living in Sarasota and feel as though no one here has been able to diagnose my pain. I am losing weight, frustrated and depressed. This pain has consumed my husband’s and my life. We feel we have no where to turn for help.

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I have had vaginal atrophy since my cancer treatments. During treatments of adryomicin and cytoxin i had hemmorrage cystitis. I have had issues ever since. Numerous UTIs, have done several treatments with urologist, My cancer dr ok'd a small dose of estrogen that I insert vaginally. I don't think it works. My urologist has told me to take several supplements, cranberry capsules, D Manosse, I am also very incontinent. I had my bladder lifted, a rectocele and a hysterectomy. I still have my ovaries. To be honest I dont think I will ever get back the possibilty of have sex again. I am currently having an issue with blood in the urine for almost 2 weeks on top of having Covid. Going for another urinalysis tomorrowl. I am 73 and still working.

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I am seeking information for relief of Vestibulodynia. I am a woman in my late 20s and intercourse is too painful for me. I am familiar with the common treatments and have tried everything from ointments, injections, medications, Botox and physical therapy for the associated vaginismus for about 5 years. I have been to numerous gynecologists and and now really need a specialist who is up on the latest research and is familiar with successful surgery options or options I have not tried. Is there a Dr at mayo Clinic that may help? Does anyone have a recommendation? Thanks I sure appreciate this format to seek help!

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@whirlwind

I am seeking information for relief of Vestibulodynia. I am a woman in my late 20s and intercourse is too painful for me. I am familiar with the common treatments and have tried everything from ointments, injections, medications, Botox and physical therapy for the associated vaginismus for about 5 years. I have been to numerous gynecologists and and now really need a specialist who is up on the latest research and is familiar with successful surgery options or options I have not tried. Is there a Dr at mayo Clinic that may help? Does anyone have a recommendation? Thanks I sure appreciate this format to seek help!

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Hi @whirlwind, you've been dealing with this for a long time and have tried many things. You may wish to seek a second opinion at Mayo Clinic. You can see the list of doctors from Obstetrics and Gynecology who specialize in the treatment of vulvodynia here https://www.mayoclinic.org/diseases-conditions/vulvodynia/doctors-departments/ddc-20353430

@lucillem72 @mmoss @roch @sonya_nc @dbmenger and others may have personal experiences or recommendations to share.

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@whirlwind

I am seeking information for relief of Vestibulodynia. I am a woman in my late 20s and intercourse is too painful for me. I am familiar with the common treatments and have tried everything from ointments, injections, medications, Botox and physical therapy for the associated vaginismus for about 5 years. I have been to numerous gynecologists and and now really need a specialist who is up on the latest research and is familiar with successful surgery options or options I have not tried. Is there a Dr at mayo Clinic that may help? Does anyone have a recommendation? Thanks I sure appreciate this format to seek help!

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@whirlwind I see a nurse practitioner in the gynecology department at Mayo. She provided me with a referral to the Women's Sexual Health Clinic there. You might look into this. I suggest a referral from your own doctor or nurse practitioner.
https://www.mayoclinic.org/departments-centers/menopause-womens-sexual-health/overview/ovc-20487915

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@erikas

@mmoss It's important you gather information and receive support from members. This is why I moved your question to a previous discussion that you started on this topic.

Members @gracythesharl @rwinney @donnacarp @2011panc @guss @healthytoday @linsie @dablues @court135 have discussed a similar topic and may be able to offer support.

Below I have linked two other previous discussions that may be of interest to you.
-Recurrent vaginal irritation/painful intercourse https://connect.mayoclinic.org/discussion/recurrent-vaginal-irritationpainful-intercourse/
-Dry vagina and foamy urine: Internal bleeding? https://connect.mayoclinic.org/discussion/deviated-septum-lots-of-mucous/

May I ask if your doctor has prescribed estrogen cream?

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Has anyone mentioned lichen sclerosis?
I suffered from burning and finally found a
Dr. Who gave me an answer .

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@dbmenger

I had that for years and it turned out to be vaginal dryness (Thank youm new young gynecologist!). Try Replens (OTC). I also use Estradiol cream three times a week.

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i have vaginal dryness due to age, menopause and now taking an estrogen inhibitor due to cancer. All these add up to "ouch". I have used Replens and it I think worked. I got an UTI during the time using. i am prone to UTIs so I'm very careful of what I do in that area. My problem is sex in very uncomfortable. Are there any products someone here has found that helps for this problem? I cannot use anything with Polypropylene Glycol in it which almost ALL lubricants have it in them, I do not know why but it is a terrible ingredient for me. I have found Astroglide gel is the only one that Does Not have it in it. Even other Astroglide products have Polypropylene Glycol. I may go back to seeing if Replens works for me.

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I experienced vaginal burning and was diagnosed with an atrophied vagina. It is being treated with an estrogen cream three times a week. It's helping. Good luck.

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Do you have access to a urogenital obgyn? Mine at Scottsdale Mayo does a laser treatment (Mona Lisa) on me once a year or sooner if I need it. I get relief from that burning feeling. I have also had the treatment from a regular obgyn. Good luck, I hope you find your answer.

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@sequoia

i have vaginal dryness due to age, menopause and now taking an estrogen inhibitor due to cancer. All these add up to "ouch". I have used Replens and it I think worked. I got an UTI during the time using. i am prone to UTIs so I'm very careful of what I do in that area. My problem is sex in very uncomfortable. Are there any products someone here has found that helps for this problem? I cannot use anything with Polypropylene Glycol in it which almost ALL lubricants have it in them, I do not know why but it is a terrible ingredient for me. I have found Astroglide gel is the only one that Does Not have it in it. Even other Astroglide products have Polypropylene Glycol. I may go back to seeing if Replens works for me.

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I use Luvena 3x/week and before sex. Regimen prescribed by Mayo Clinic Rochester Women's Health Clinic. Luvena does not contain polypropylene glycol. I am 64. Post menopausal. Previously used eString (great!! But had to discontinue due to breast cancer.) Luvena works well for me. I get it at CVS, Target, or Amazon.

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@kk57

I use Luvena 3x/week and before sex. Regimen prescribed by Mayo Clinic Rochester Women's Health Clinic. Luvena does not contain polypropylene glycol. I am 64. Post menopausal. Previously used eString (great!! But had to discontinue due to breast cancer.) Luvena works well for me. I get it at CVS, Target, or Amazon.

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@kk57 , thank you so much. I’ll try. Is it a cream? I looked it up and it does say it has propolyene glycol. What formula (type?) TSO you have as that makes a difference. For example, I use AstroGlide Gel does Not have propolyene glycol – But the liquid version/type of AstroGlide does. Thank you.

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@sequoia

@kk57 , thank you so much. I’ll try. Is it a cream? I looked it up and it does say it has propolyene glycol. What formula (type?) TSO you have as that makes a difference. For example, I use AstroGlide Gel does Not have propolyene glycol – But the liquid version/type of AstroGlide does. Thank you.

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@kk57 I’m sorry. I stand corrected. I was looking at Amazon questions of Luveena and they listed propylene glycol as an ingredient. I did find the Luveena website and they do Not list it as an ingredient. Ammy must have old info or the seller on Ammy has old products.
Thank you for the info.

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@mmoss

Atrophic Vaginitis causing vaginal burning

Vaginal atrophy (atrophic vaginitis) is a condition where the lining of the vagina gets drier and thinner from a lack of estrogen. Has anyone had this condition? If so did estrogen cream help? My Dr said this is why I am having burning. Thank you

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I have this condition and my doctor put me on estrogen cream three times a week on the outside of the vagina. I put some a little ways in with my finger and it has helped.

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