Update on conflicting surgery recommendations

Posted by mleiva1234 @mleiva1234, Aug 4 6:57pm

Quick recap. I am 57. My TAA was discovered in 2021. I think it was 4.1cm at the time. I have been seeing Dr. Joseph Coselli at Baylor Medical in Houston since and I have a CT done annually. This March the CT relieved my TAA was at ~4.8cm depending on who is doing the measuring. As I left Dr. Coselli's office he gave my wife a wink and said "he will be fine." I won't go into the reasons why but I have gotten two second opinions in the last six months. One from Dr. Joseph DeRose at Montefiore Medical in the Bronx. He looked at the CT images and said if I were his patient it would not be up for discussion, he would insist I have surgery. He cited recent research that shows the length of the aneurysm is a better predictor of dissection than diameter (if anyone is interested send me your email and I will be happy to share it with you). My length was 11.2-11.3 cm. Dr. DeRose and this newer research is suggesting that 5.5cm in diameter should not be the magical number when it is time for surgery. Since I had two conflicting recommendations I went for a third from Dr. Leonard Lee at RWJBarnabas in NJ (he repaired a TAA for someone I know a year ago). Dr. Lee 's recommendation was to wait until the aneurysm grew >5.0cm. So two of three are saying to hold off, but the two that are recommending that I wait haven't said anything about the length and are not concerned about the length even after I pressed them on it. My wife and I are scheduled to travel to Italy in September and to help us make the decision I had a CT Angiogram last week. The person who read the images from Baylor Medical said there has been minimal growth from when I had a CT with contrast in March 2024. They read my aneurysm at 4.5cm. So frustrating how multiple people keep reading my images and give me different sizes. Now I am waiting on Dr. Coselli and Dr. DeRose who both have copies of my images to get back from vacation to tell me how they interpret my aneurysm. Here is the real kicker. The logical side of my brain is aware of the risks of walking around with this thing and that I am taking a chance every day but the emotional side of my brain is scared to go ahead with the surgery. The person I mentioned above who had their TAA repaired a year ago, his brother had the same surgery and died months after from a blood clot. That's what I am focusing on. Not the person I know who survived, recovered and is living a healthy life. Why? I almost wish this thing would grow more so all the doctors tell me its time to have surgery. No question. Then I would have no choice.

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Profile picture for wtamminen @wtamminen

It is great that you did a lot of research. It is always smart to be an informed patient. When I went through this 6 months ago I factored in a couple of other considerations. The first was continuing to live with the constant anxiety of knowing I had an aneurysm that could dissect or rupture even though the risk was small. The second was the future risk. I was 72 and my aneurysm was growing slowly. If it continued to grow at the same rate I probably wouldn’t be at 5.5 cm for another 5 years. At my age every year I waited to have surgery increased the chance of having some of the complications you mentioned. So considering everything I decided to have surgery. My surgery went well and I had no complications and I was out of the hospital in 5 days. It has been 4 months post surgery and I am about 95% recovered (my sternum aches if I do too much). Everyone has to do their own risk assessment and be comfortable with it. I wish everyone the best whatever they decide.

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Thats really great news that your surgery went so well. Congratulations and enjoy. The data says you should live as long (or longer, slightly!) than a 72 year old without an aneurysm. I think the critical factor is growth rate. If it’s stable, terrific. And if it’s growing, probably need surgery. I feared most of all losing some years of vitality to a stroke ( I have a close friend who suffered one at 65 unrelated to aneurysm or surgery and it’s such a tragic loss of activity).
Best wishes for your continued recovery!

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Profile picture for kathy9746 @kathy9746

Was the rate of growth concerning to your doctors?
Mine has grown from 3.9 to 4.0 in 20 years. It’s considered stable and at 77 I’m hoping it stays that way.
Good luck to you!

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My aneurysm has gone from 4.1 cm in 2021 to ~4.8-4.9 cm today depending on who is measuring. Again depending on who is measuring some say it grew 0.4 cm in the past year. But no one has expressed concern about the growth.
Yours sounds very stable.
Good luck to you as well.

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Profile picture for mleiva1234 @mleiva1234

My aneurysm has gone from 4.1 cm in 2021 to ~4.8-4.9 cm today depending on who is measuring. Again depending on who is measuring some say it grew 0.4 cm in the past year. But no one has expressed concern about the growth.
Yours sounds very stable.
Good luck to you as well.

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I am surprised that ~ 0.7 to 0.8 growth rate in 4 years hasn't been discussed.

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Profile picture for ppiper @ppiper

Arminder Jassar is the MGH surgeon, and Eric Isselbacher the cardiologist.

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Thank you! ❤️ I reached out to MGH and will be going through patient registration. Other than their expertise, how are they to work with, bedside manner, etc?

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Dr Isselbacher is very bright and active in the research community, can seem brusque as he’s so efficient, but in fact is quite compassionate with an excellent sense of humor.
Dr Jassar is very patient and open to all questions. Both lovely people. And Dr Jassar does all his own surgery- no fellows closing.

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Profile picture for ppiper @ppiper

Dr Isselbacher is very bright and active in the research community, can seem brusque as he’s so efficient, but in fact is quite compassionate with an excellent sense of humor.
Dr Jassar is very patient and open to all questions. Both lovely people. And Dr Jassar does all his own surgery- no fellows closing.

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Thank you so much for the information. I really appreciate it.

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Just would like to share a story regarding Montefiore Hospital in the Bronx and a cardiologist by the name of Foreman.

Back in 1999, I presented to Foreman with left arm discomfort and heart CT scan that indicated calcification in LAD and RCA arteries which concluded I was in the 98% of having a M.I.

After a regular stress test Foreman stated: "The stress test indicates no abnormality and heart CT scan isn't something that is considered mainstream." Two months later I had a heart attack.

Personally, I would never, ever go to Montefiore unless I was shot right outside that hospital.

I too have a TAA, albeit smaller. However, when the time comes I would only consider Cleveland Clinic, Mayo, NYU and a few others.

Best of luck!

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Hi all,
Mike had forwarded the research that influenced Dr DeRose to encourage surgery. The principal article is by John Elefteriades et al of Yale, an outstanding surgeon and researcher. It definitely supports aneurysm length as “a slightly better predictor” of adverse events (than diameter). As such, it’s critically important for us all to know our lengths, as well as diameters. There is a helpful chart combining both in the article, and it shows why Dr DeRose was concerned for mleiva given a length of 11.2 cm. Thank you @mleiva1234 for this valuable additional criteria! And best luck with ongoing treatment.

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I do not live in Houston but have being sending my scans to Dr Coselli for review for the last 4 1/2 years since my AAA was diagnosed. I found that he does not really look at the radiologists reports but does his own measurements from the scan. He also consistently shows higher readings (I am round 4.5 for over a year and a half) compared to my local radiologists and heart doctor which measure it at around 4.0 to 4.2. He has told me that surgery should be planned around 5.0 cm.

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Profile picture for wtamminen @wtamminen

My surgery was at the Baylor Heart Hospital in Plano Texas (near Dallas). My surgeon was Dr. William Brinkman. My cardiac rehab was at the same hospital. I have never had any other major surgery before so I have nothing to compare to, but if I needed heart surgery again I would definitely go back there.

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I'm recently diagnosed AAA and 5.9cm. Originally from the southern MN area so a little spoiled with Mayo, but now in north TX. I am going to visit Dr. Brinkman next month after I have a CTA performed at the beginning of the month. Hoping this experience is uneventful. I have a co-worker whose father had the surgery in Plano and had decent results.

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