Unidentified abdominal pain

I have pretty much exhausted the various avenues of pain remediation. I am now waiting to install a spinal stimulator. I have had some postive results during the test procedures.

It sound like you are suffering from Abdominal Cutaneous Nerve Entrapment Syndrome (ACNES). Steps are first taking the Carnett Test (youtube), second, triggerpoint shots to area for temporary relief until you find a surgeon who is familiar with ACNES. I had my T8, T9 and T10 nerves cut and left hospital same day cured. Dr Gillespie at St Joseph's Medical Center in Phoenix does the procedure. If you need more information i'd be happy to help.
Jeff

I am sorry for your pain and hope you find the cause of it. In the meantime, my old fashioned remedy may help - a heating pad! I too had moderate to agonizing pain in my upper abdomen, about 2-3 inches above my belly button. No cause was found. My physical therapist suggested a heating pad for 20-30 minutes. I use Nature Creation which is microwaveable. It works all the time. I hope this is a good day for you! Sue

After 1.5 yrs 5 Doctors I was determined to find an answer. 2 Gastro said ibs. Internist said pretty much the same. Gyno takes me seriously. Thorough exam and internal sonogram to check for uterine or ovarian cancer. Both can cause similar symptoms. Everything checked out. I have pain stomach uproar and lower pain daily. Went to my neurologist to review neck and lower back issues. We start talking about how sick I’ve been and I still can’t get a serious diagnosis or relief. He looked at me and said I know what you have “abdominal migraine” and hands me a sample box. He took one out put it under my tongue 15-20 minutes later no pain. That was 12 days ago. I’m feeling quite normal energetic, happy. Doctor said it isn’t that uncommon and he treats it quite often. I am beyond grateful! But of course the meds aren’t covered by Medicare so figure 2k a month! Ouch

Have they done ultrasound and looked at your gall bladder? There's also a test to check functional

Sorry, don't know why entered before I was finished.
Functionality of your gall bladder. I didn't have any huge stones, mine just quit working and hadn't worked in years when had removed. Usually anything with a tomato base or greasy foods irritate it the worst. Might try eating pasta sauce, chili, etc and see if irritates.
Just a thought. Good luck

Have you had a doctor pay attention to your pancreas? It’s sometimes difficult to see even with an MRI or ultrasound because it is sort of tucked in behind other organs and gets overlooked.

You may have the autoimmune disease Celiac. It causes your small intestine to be ruined and you do not digest food and nutrients. There are 200 symptoms and also body functions are effected . Like bones, osteoporosis, I lifted weights for 40 years. You need to have the blood test and go from there.
It is 80% under diagnosed. I had 6 gastroenterologist tell me it was IBS, a blanket diagnosis. I have had my gall bladder stone removed, pancreatitis, arteriosclerosis, peripheral neuropathy. Bloating is horrible and abdominal pain.

Update: still experiencing the abdominal pain, along with high heart rate and 2 new symptoms of night sweats and fatigue. Still no clear answers to what is going on.

@amm97

My stomach pain down the middle of my abdominal wall is always there. From xiphoid to pelvis. I took nortriptyline for 18 years and it took most of the aching gut pain away. Then one day in the spring of 2018 it slowly stopped covering the ache. I had all the injections and MALS screening.

Neurologist I am now seeing thinks it’s maybe chronic inflammatory demyelinating poly neuropathy. The plan is to do subcutaneous IVIG injections. If that doesn’t provide some relief then maybe IV ketamine.

I’m so tired like everyone else of living in pain. All I want is some occasional relief. I learned to live with migraines but non stop gut pain is too much.