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ajstaley
@ajstaley

Posts: 32
Joined: Jan 22, 2019

Unexplained diarrhea,malabsorption,dizziness,feeling faint, confusion

Posted by @ajstaley, Thu, Jan 24 10:21am

Hello,
I’m new here. My symptoms have gotten worst in the last year. I’m sick to my stomach or vomiting or have dry heaves everyday. I have developed food and medicine intolerance. Can only eat maybe small portions of rice and vegetables and plain bread throughout the day. And even then some days I am in the bathroom with diarrhea after eating. My gallbladder was removed some years back. When some of the same symptoms appeared back then. But there is no gallbladder to remove now. I’m losing more and more weight. I have periods of confusion and that’s really scary. The testing MRI’s , CT scans and blood work are coming back negative. My gi doc is repeating the testing with a CT scan of the Brian this time. I doubt she will find it. I’m getting sicker everyday. Really losing hope. I’m glad this website is here. It’s soothing to know I’m not alone. Any suggestions would be appreciated.

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@hgarm

They are ok but I haven't been able to eat so I am pretty weak and just feeling terrible.

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Hello my friend,
How are you feeling today? I am still a bit shakey . But we will see what today holds. Hope you’re feeling better. Keep me posted.

@ajstaley

Hello my friend,
How are you feeling today? I am still a bit shakey . But we will see what today holds. Hope you’re feeling better. Keep me posted.

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I have been getting sicker I can't hold things down and I am still so very neasious. I was hoping things would get better but here I am unable to eat, vomiting, and weak. My legs barely work any more

@hgarm

I have been getting sicker I can't hold things down and I am still so very neasious. I was hoping things would get better but here I am unable to eat, vomiting, and weak. My legs barely work any more

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I have been worried about you. Sounds like you need to be in the hospital. I mean a hospital that has a team of doctors to look for maybe something rare. They need to think outside the box.You and I both. If you can try to get a diary maybe there are some triggers. I’m muddling along. Some day stomach upset is overwhelming and other times I’m dizzy and feeling faint. I try to force myself to eat. Mybe some broth or something light. Try to keep your strength you. And keep me posted.

i had diarrhea as well for at least 7 months, once i went 17 times in one day doctor told me that it was ibs, finally i change doctor and he sent me to do a colonoscopy and and endoscopy colonoscopy was ok endoscopy i had h-pylori i was on antibiotics for a month after that when i went to the bathroom i notice some mucus with some blood i went to do another endoscpy and now i have peptic ulcer, and sometime no mucus in the stool and some time yes, pain on both sides even my shoulder and i don;t know what to do any more if anyone can reply i would really appreciate…ty

@fde11

i had diarrhea as well for at least 7 months, once i went 17 times in one day doctor told me that it was ibs, finally i change doctor and he sent me to do a colonoscopy and and endoscopy colonoscopy was ok endoscopy i had h-pylori i was on antibiotics for a month after that when i went to the bathroom i notice some mucus with some blood i went to do another endoscpy and now i have peptic ulcer, and sometime no mucus in the stool and some time yes, pain on both sides even my shoulder and i don;t know what to do any more if anyone can reply i would really appreciate…ty

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I am beginning to think the doctors don’t either but will not admit it. Which takes our stress level into the stratosphere’s. We have to keep pushing for answers there has got be a team of doctors who can help. I trying to network as much as possible.

@ajstaley

I have been worried about you. Sounds like you need to be in the hospital. I mean a hospital that has a team of doctors to look for maybe something rare. They need to think outside the box.You and I both. If you can try to get a diary maybe there are some triggers. I’m muddling along. Some day stomach upset is overwhelming and other times I’m dizzy and feeling faint. I try to force myself to eat. Mybe some broth or something light. Try to keep your strength you. And keep me posted.

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I feel so bad for you! I went months feeling like that. I went even to the Mayo Clinic in Rochester. They know what I am going through is real, but honestly they have no answered for it. They call it Functiobal Dyspepsia. It has. Been studied at Major Hospitals, no one can find a answered for it. There is a disconnect from the brain to the stomach. 90% of Seratonin is produced in the stomach. The stomach is one of the main functions for all symptoms. I did so much searching because a normal Physiction actually never herd of this. I went on a low dose of Celexa for anxiety, low dose of Propranolol, and the best over the counter FDgard stomach capsule. You will here from time to time here others talk about FDguard. Totally natural and safe. You have to tell your self you are not going to live like this. Do not make this all you think about. Drink a insure plus when you can it helps get vitamins back in your body. Go hard, I will root for you.

Liked by ajstaley

@ajstaley

I have been worried about you. Sounds like you need to be in the hospital. I mean a hospital that has a team of doctors to look for maybe something rare. They need to think outside the box.You and I both. If you can try to get a diary maybe there are some triggers. I’m muddling along. Some day stomach upset is overwhelming and other times I’m dizzy and feeling faint. I try to force myself to eat. Mybe some broth or something light. Try to keep your strength you. And keep me posted.

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Doctor gave me some medicine which caused me to have insomnia where I can't sleep and the medicine has made me more neasiated. It's been a rough couple of days not sure what the future holds but I have realized that unless your on deaths door no one cares

Liked by ajstaley

@lvon

I feel so bad for you! I went months feeling like that. I went even to the Mayo Clinic in Rochester. They know what I am going through is real, but honestly they have no answered for it. They call it Functiobal Dyspepsia. It has. Been studied at Major Hospitals, no one can find a answered for it. There is a disconnect from the brain to the stomach. 90% of Seratonin is produced in the stomach. The stomach is one of the main functions for all symptoms. I did so much searching because a normal Physiction actually never herd of this. I went on a low dose of Celexa for anxiety, low dose of Propranolol, and the best over the counter FDgard stomach capsule. You will here from time to time here others talk about FDguard. Totally natural and safe. You have to tell your self you are not going to live like this. Do not make this all you think about. Drink a insure plus when you can it helps get vitamins back in your body. Go hard, I will root for you.

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Thank you for compassion. I will research the Functional Dypepsia and the FDguard. I surely do not want to live like this because I am are just excisting. I am fighting hard. This battle is not over yet. Thank you so much once again.

@hgarm

Doctor gave me some medicine which caused me to have insomnia where I can't sleep and the medicine has made me more neasiated. It's been a rough couple of days not sure what the future holds but I have realized that unless your on deaths door no one cares

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Awww. So sorry to hear this. What about your food intake and fluids? I wish could help more maybe some broth or puréed soups might help. I support you all the way. Send a message anytime and I will get back to you. Trust me I understand my periods of dizziness and confusion are the worst.

@hgarm

Doctor gave me some medicine which caused me to have insomnia where I can't sleep and the medicine has made me more neasiated. It's been a rough couple of days not sure what the future holds but I have realized that unless your on deaths door no one cares

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How you been lately? Are you ok?

@ajstaley

I have been worried about you. Sounds like you need to be in the hospital. I mean a hospital that has a team of doctors to look for maybe something rare. They need to think outside the box.You and I both. If you can try to get a diary maybe there are some triggers. I’m muddling along. Some day stomach upset is overwhelming and other times I’m dizzy and feeling faint. I try to force myself to eat. Mybe some broth or something light. Try to keep your strength you. And keep me posted.

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I went to the ER yet again because I was so sick and they just dismissed me. Gave me a bag of fluids some neasea medicine and sent me on my way. No one seems to think that this is a problem even though I lost another 4 pounds in 2 weeks. I have my GI consult on Monday so I am hoping he will help me

Have them restain your gi biopsies for mast cell counts and eosinophils

I went to mayo but they didn’t care about helping me, they just insisted that I had depression despite my physician husband insisting he was wrong. But chapel hill dr diagnosed me with mastocytosis and my daughter also has mast cell activation syndrome which can cause the symptoms you are suffering with. I started out with four Zyrtec per day with two Zantac and a singulair and now I’m taking about the same, one less Zyrtec and am on an immunosuppressant called cyclosporine. My daughter receives xolair shots. No more animals in the house and I have mold triggers, outside, in basements and in cured or aged meats or cheeses

@hgarm

I went to the ER yet again because I was so sick and they just dismissed me. Gave me a bag of fluids some neasea medicine and sent me on my way. No one seems to think that this is a problem even though I lost another 4 pounds in 2 weeks. I have my GI consult on Monday so I am hoping he will help me

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So glad to hear from you. Even though you’re still sick and I’m really sorry they haven’t been able help you. I’m still feel dizziness and nausea just about everyday. I have moved on to wearing smaller clothes that I thankfully didn’t give away due to my recent weight loss . I don’t think they know what the heck is going on. God help us. I will keep checking on you.

@momx5dea

Try to stop eating gluten for 3 days bread ,wheat flour,Barley ,soy made with wheat I didn't test positive for Celiac's disease at first also you are probably allergic to milk and don't know it.

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Ask for the SIBO test – small intestine bacterial overgrowth. The diet is strict, but it works. Ask your consultant about the FODMAP diet, developed by Monash University. It’s not easy but I’ve gone from having a hardly functioning digestive system, always worried about going out, unable to travel, to being able to visit India ( on a very restricted diet!), Russia (Russian food is great for me) and many European countries. Good luck!

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