Unexplained diarrhea,malabsorption,dizziness,feeling faint, confusion

Posted by ajstaley @ajstaley, Thu, Jan 24 10:21am

Hello,
I’m new here. My symptoms have gotten worst in the last year. I’m sick to my stomach or vomiting or have dry heaves everyday. I have developed food and medicine intolerance. Can only eat maybe small portions of rice and vegetables and plain bread throughout the day. And even then some days I am in the bathroom with diarrhea after eating. My gallbladder was removed some years back. When some of the same symptoms appeared back then. But there is no gallbladder to remove now. I’m losing more and more weight. I have periods of confusion and that’s really scary. The testing MRI’s , CT scans and blood work are coming back negative. My gi doc is repeating the testing with a CT scan of the Brian this time. I doubt she will find it. I’m getting sicker everyday. Really losing hope. I’m glad this website is here. It’s soothing to know I’m not alone. Any suggestions would be appreciated.

Liked by peggyella

@ajstaley

So glad to hear from you. Even though you’re still sick and I’m really sorry they haven’t been able help you. I’m still feel dizziness and nausea just about everyday. I have moved on to wearing smaller clothes that I thankfully didn’t give away due to my recent weight loss . I don’t think they know what the heck is going on. God help us. I will keep checking on you.

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How are you today? Just sending positive vibes your way.

@hgarm How are you? Just sending positive vibes your way.

My father (82) has serious diarrhea immediately after eating. A ct scan showed inflammation of the rectal wall. He has doctored for this for years and with no different answers. We thought a ct scan was necessary to rule out cancer. This was all it showed. He continues to loose weight drastically and eats 3-5 times a day. Three square meals for sure, proper nutrition, and snacks. He is unable to leave home at this point because the diarrhea hits so quickly. My question is, do we need to continue with the colonoscopys’, irritable bowel diagnoses. He’s become tired weak and has had enough. He does suffer from Parkinson’s disease. Please, anyone?

Liked by peggyella

Hi @homo and welcome to Connect. That must be hard watching your father struggle so much.

I wanted to introduce you to fellow Connect members @ajstaley, @hgarm, and @haighsue as they have expressed similar symptoms in the past and may be able to provide you support and help answer your questions.

I also wanted to share two other groups that you may find helpful as you take care of your father.

Parkinson's Disease: https://connect.mayoclinic.org/group/parkinsons-disease/
Caregivers: https://connect.mayoclinic.org/group/caregivers/

How is your father doing today? That's great that he is maintaining proper nutrition with three square meals. How much weight has he lost?

@homo

My father (82) has serious diarrhea immediately after eating. A ct scan showed inflammation of the rectal wall. He has doctored for this for years and with no different answers. We thought a ct scan was necessary to rule out cancer. This was all it showed. He continues to loose weight drastically and eats 3-5 times a day. Three square meals for sure, proper nutrition, and snacks. He is unable to leave home at this point because the diarrhea hits so quickly. My question is, do we need to continue with the colonoscopys’, irritable bowel diagnoses. He’s become tired weak and has had enough. He does suffer from Parkinson’s disease. Please, anyone?

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Hello @homo

I appreciate your concern for your dad. It does sound as if he is experiencing symptoms that are limiting his life to a great extent and I can understand your concern for him.

In your next to the last sentence you mention that he has Parkinson's disease (PD). Have you talked with his neurologist about these symptoms? Has your dad had a change in his PD meds recently? Have his PD symptoms changed recently? I'm thinking of symptoms like balance, gait, difficulty walking, speech, etc. I inquire about this because PD (or the meds used to treat it) often do cause digestive problems as well. Connect has a discussion group on PD for which I am a mentor. You might consider posting about this in that conversation as well. (Ethan provided the link in his post.)

I look forward to hearing from you again. Will you post an update as you think about these things?

@hopeful33250

Hello @homo

I appreciate your concern for your dad. It does sound as if he is experiencing symptoms that are limiting his life to a great extent and I can understand your concern for him.

In your next to the last sentence you mention that he has Parkinson's disease (PD). Have you talked with his neurologist about these symptoms? Has your dad had a change in his PD meds recently? Have his PD symptoms changed recently? I'm thinking of symptoms like balance, gait, difficulty walking, speech, etc. I inquire about this because PD (or the meds used to treat it) often do cause digestive problems as well. Connect has a discussion group on PD for which I am a mentor. You might consider posting about this in that conversation as well. (Ethan provided the link in his post.)

I look forward to hearing from you again. Will you post an update as you think about these things?

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Yes, he has increased symptoms from his Parkinson's. Gait, walking, speach, memory. He gets confused, doesn't walk far as he has degenerative spine disease. Literally no cushion in his spine at all. Cortisone injections recently that were extremely painful and did not help at all. He has began to drool, ( months ago) his mouth deforms. He's had one episode of combativeness. With my mother.Totally not like him. Wanted to leave in the car. I don't know if the gi symptoms started when he started the dopamine or before. I want to say before. My mother was also going to see if the thickness was more than 3 mm or irregular. Its rectal thickness. From what I have researched, 3mm or less is not uncommon. However, if more than 3 mm or irregular, they advise a colonoscopy and biopsy. Health wise, I do not know that he could do the prep for a colonoscopy. He's tired always…just worn out. He eats regularly and continues to loose weight. I will question her on the ct scan and respond again. Thank you for the reply

how do we stop it, she has had upper and lower test done, they find nothing wrong. help

Hi @charlie5678,

You may notice that I moved your discussion and combined it with this existing discussion on unexplained and chronic diarrhea. I did this as I thought it would be beneficial for you to be introduced to the many members who have discussed much of what your wife is experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

How is she managing the diarrhea, @charlie5678? Have medications or diet changes helped any?

I am experiencing the same symptoms but have radiation enteritis. My gastroenterologist in Midland MI said there was nothing else she could do and I was referred to the University of Michigan hospital. They want to repeat all the tests that were already done. My husband wants me to go to Mayo.

Liked by peggyella

@ajstaley

Thank you. I will stop the bread and see if it helps. I am lactose intolerant as well. But from time to time I was able to eat a little frozen yogurt for the probiotics. But not now since this illness has kicked in. My body seems to be rejecting just about everything.

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I am having the same problems and doctors here say there is nothing they can do for me.

Liked by peggyella

@beanglow

I am having the same problems and doctors here say there is nothing they can do for me.

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I am getting the same answer here it’s a GI problem but no one has the answer. Looks like we are pretty @much on our own. I have to keep searching no other choice at this point. Sending positive vibes your way.

@ajstaley

@hgarm How are you? Just sending positive vibes your way.

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Sorry I haven't really been active I have been pretty sick and was in the hospital for 5 days. They believe I have gastroparesis so now I have to go through the testing for that. Some days are better than others but most days are not very good. I am right now just trying to keep my weight stable as I have lost over 35 pounds now. How are you doing? I am hoping you are doing better!

@hgarm

Sorry I haven't really been active I have been pretty sick and was in the hospital for 5 days. They believe I have gastroparesis so now I have to go through the testing for that. Some days are better than others but most days are not very good. I am right now just trying to keep my weight stable as I have lost over 35 pounds now. How are you doing? I am hoping you are doing better!

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So good hearing from you. I really hope they can pinpoint what the problem is .I know that would be a great relief to you. I have had that test done and it was negative as well. I still have the nausea just about every day. Dizziness and lightheadedness too. Food wise I am still a bit limited still. I can eat some homemade chicken and rice soup with added vegetables. My weight is still dropping 20 lbs lighter. This is still very scary to me because I feel like I could die from this and they wouldn’t have a clue as to what happened. I am glad your weight is now stable. Keep me posted when you feel up to it. I am really glad to hear from you.

Liked by peggyella

@ajstaley

So good hearing from you. I really hope they can pinpoint what the problem is .I know that would be a great relief to you. I have had that test done and it was negative as well. I still have the nausea just about every day. Dizziness and lightheadedness too. Food wise I am still a bit limited still. I can eat some homemade chicken and rice soup with added vegetables. My weight is still dropping 20 lbs lighter. This is still very scary to me because I feel like I could die from this and they wouldn’t have a clue as to what happened. I am glad your weight is now stable. Keep me posted when you feel up to it. I am really glad to hear from you.

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@hgarm Have you been tested for gastroparesis? I have multiple organ problems, PN, upper/lower GI, bladder and bowel incontinence (unexplained intermittent diarrhea), can’t digest, weight loss, … vomiting. nausea, GERD, etc. Spent a summer in the hospital when I couldn’t even keep water down. Syncope (“near-fainting”), light headedness, dizziness, and more. It’s all been treated separately without success. After I researched it and asked my neurologist about it and he diagnosed autonomic neuropathy (AN) recently which explains it all. God bless you. 🙏❤️

Liked by beanglow

@ajstaley @beanglow
I have the same symptoms, as well as peripheral neuropathy and more. I was diagnosed with gastroparesis years ago. Have you been tested? The “stomach emptying” test can come back false negative… my last one did but whenever I have an endo, etc., my gastroenterologist has to empty my stomach of its contents. I have bladder and bowel incontinence which has dramatically worsened. Trouble swallowing, dizziness, imbalance, staggering, falling, near fainting (syncope) and many other diseases/conditions. Finally, after my own research, my neurologist diagnosed me with autonomic neuropathy (AN) which ties a lot of it together.

I do not have Parkinson disease, am not diabetic.

I found the Cleveland Clinic site on AN to be the most helpful. Check it out, also gastroparesis. I hope this helps you. God bless you.

Liked by ajstaley, beanglow

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