Tymlos

Posted by curlylocks @curlylocks, Thu, Aug 1 10:21am

Has anyone been using Tymlos? I received devastating news that my bone density score is 4.6, much worse than my age of 72. Recommendation is Tymlos.

Hi,
I started taking Tymlos in January. It really affected my appetite for awhile, but my body seems to have adjusted and I am now taking it every night without any problem. I give myself the shot (really easy) just before going to bed — so some of the side effects like nausea (very slight) aren't a problem. I will have another bone density in January, so am hoping to see improvement. I am 79
Hope this helps.and good luck.

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@curlylocks and @cireland Good afternoon, wow, I haven’t found anyone on Tymlos. Even my pharmacist said I was the first in this area. Would you be comfortable sharing the reason for choosing this osteoporosis medication. Mine reason is. that I had a severe reaction to boniva and could not use anything with similar ingredients. I am finishing week four and still have just a teeny weeny bit of nausea. I take mine in the a.m. because I am worried that I will fall asleep and not remember. I have been known to do that. And another question….did you get this through your regular RX insurance? Did you explore Canada? Hope you both are having a lovely day.

Liked by jmanj

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I chose Tymlos because it is one of the two drugs that actually build bones. I chose it over Forteo because it is newer and I hope a bit better; It is taken for 18 months vs. 2 years on Tymlos and it is less expensive that Tymlos. My first 90 day supply cost $1780 — with my insurance. The 2nd 90 day supply cost $680 — I don't know why my cost changed, but I am grateful.

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I started tymlos 6 weeks ago. I also have top of the chart bone density issues. I'm 75. I pay 8.60 month thru Medicare

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I don't have side effects and I take this daily because this rx will hopefully rebuild bone mass.

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georgette — did you say you pay $8.60 per month for Tymlos thru Medicare? Where do you live? I live in Massachusetts and have Medicare thru United Health, but am thinking of switching to Medicare with BlueCross/Blue Shileld as supplemental.

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@cireland

georgette — did you say you pay $8.60 per month for Tymlos thru Medicare? Where do you live? I live in Massachusetts and have Medicare thru United Health, but am thinking of switching to Medicare with BlueCross/Blue Shileld as supplemental.

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I live in Colorado

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I don't have a supplement. I'm not sure why I pay only 8.60 but I'm grateful

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@georgette12, @cireland, @curlylocks, Thank you so much for responding. Those are the exact reasons I chose Tymlos @cireland, The other reason is that it doesn't have to be refrigerated. I think @georgette12, you fell into the donut hole. The price is high for a month or so and then it drops to $8.00 give or take a few cents, for the rest of the calendar year. So..overall, it is a good idea. This is a new medication, and you are right it should be state of the art. I would like to stay in touch on Connect with folks who share a common medication for what we all want to avoid, fractures. Please don't fall now until it builds more bone. I am even thinking of getting a snazzy cane until I finish the 18 months.

Liked by jmanj

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@artscaping

@curlylocks and @cireland Good afternoon, wow, I haven’t found anyone on Tymlos. Even my pharmacist said I was the first in this area. Would you be comfortable sharing the reason for choosing this osteoporosis medication. Mine reason is. that I had a severe reaction to boniva and could not use anything with similar ingredients. I am finishing week four and still have just a teeny weeny bit of nausea. I take mine in the a.m. because I am worried that I will fall asleep and not remember. I have been known to do that. And another question….did you get this through your regular RX insurance? Did you explore Canada? Hope you both are having a lovely day.

Jump to this post

After finding out about my results from my primary doctor, I went to Wake Forest Baptist Medical's Fracture Liason Dept. for a second opinion. They concurred with my primary doctor. Since it was more cost effective than Forteo and they determined the side effects less harsh for my health concerns, both doctor's recommended the same drug.. Unfortunately, I need a knee replacement and cannot go forward with this surgery until I rebuild bone. My Part D insurance doesn't provide good coverage, I am hoping the pharmaceutical company will help with the cost. I almost passed up traditional care an alternative treatment, but decided otherwise.

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@cireland

I chose Tymlos because it is one of the two drugs that actually build bones. I chose it over Forteo because it is newer and I hope a bit better; It is taken for 18 months vs. 2 years on Tymlos and it is less expensive that Tymlos. My first 90 day supply cost $1780 — with my insurance. The 2nd 90 day supply cost $680 — I don't know why my cost changed, but I am grateful.

Jump to this post

Wow, your cost is even higher than my ins. Have you applied for help through Tymlos?

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@georgette12

I don't have a supplement. I'm not sure why I pay only 8.60 but I'm grateful

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Much better coverage than my Part D in NC!

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I have just been recommended to start it too due to recent fractures. Any information would be appreciated! My endocrinologist’s nurse told me to take it when I go to bed because a common side effect is dizziness and I will sleep this part of it away each night.

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@artscaping

@curlylocks and @cireland Good afternoon, wow, I haven’t found anyone on Tymlos. Even my pharmacist said I was the first in this area. Would you be comfortable sharing the reason for choosing this osteoporosis medication. Mine reason is. that I had a severe reaction to boniva and could not use anything with similar ingredients. I am finishing week four and still have just a teeny weeny bit of nausea. I take mine in the a.m. because I am worried that I will fall asleep and not remember. I have been known to do that. And another question….did you get this through your regular RX insurance? Did you explore Canada? Hope you both are having a lovely day.

Jump to this post

I am supposed to get mine through a speciality pharmacy my insurance company is choosing and they are mailing me the prescription. This was all taken care of Thru my doctor at Mayo.

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@artscaping

@georgette12, @cireland, @curlylocks, Thank you so much for responding. Those are the exact reasons I chose Tymlos @cireland, The other reason is that it doesn't have to be refrigerated. I think @georgette12, you fell into the donut hole. The price is high for a month or so and then it drops to $8.00 give or take a few cents, for the rest of the calendar year. So..overall, it is a good idea. This is a new medication, and you are right it should be state of the art. I would like to stay in touch on Connect with folks who share a common medication for what we all want to avoid, fractures. Please don't fall now until it builds more bone. I am even thinking of getting a snazzy cane until I finish the 18 months.

Jump to this post

I’m thinking of the “snazzy” cane idea too depending on how PT goes for my foot (that fractured).

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