Mayo Clinic Connect
Has anyone been using Tymlos? I received devastating news that my bone density score is 4.6, much worse than my age of 72. Recommendation is Tymlos.
Liked by Chris Trout, Volunteer Mentor, jmanj
I have just been recommended to start it too due to recent fractures. Any information would be appreciated! My endocrinologist’s nurse told me to take it when I go to bed because a common side effect is dizziness and I will sleep this part of it away each night.
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@migizii, Thank you so much for posting a response. I am sorry your fractures have begun. I understand bedtime dosing. Just can't trust me to remember. We have a great group here…..we can support and learn from each other. Be safe and protected today. Chris
Liked by migizii, jmanj
I started tymlos 6 weeks ago. I also have top of the chart bone density issues. I'm 75. I pay 8.60 month thru Medicare
Do you have Part D insurance and, if so, who is your carrier?
Liked by Chris Trout, Volunteer Mentor
@curlylocks and @cireland Good afternoon, wow, I haven’t found anyone on Tymlos. Even my pharmacist said I was the first in this area. Would you be comfortable sharing the reason for choosing this osteoporosis medication. Mine reason is. that I had a severe reaction to boniva and could not use anything with similar ingredients. I am finishing week four and still have just a teeny weeny bit of nausea. I take mine in the a.m. because I am worried that I will fall asleep and not remember. I have been known to do that. And another question….did you get this through your regular RX insurance? Did you explore Canada? Hope you both are having a lovely day.
Hope you're having a good day. Tymlos was recommended by 2 doctors. The reason was my poor T score and a lower cost. Unfortunately, even Tymlos is, under my plan, way too expensive. Also, my right knee should be replaced, but my bones won't hold the hardware. The doctors are hoping Tymlos will enable me to handle the surgery.
@curlylocks Thank you for responding. Before you give up on Tymlos please do just a tad more research. I also thought I would not be able to manage the financial commitment for 18 mos. And then a very nice lady explained….”Here’s the deal.”
Because Tymlos has a high cost, after one month at $500, you are already in the doughnut hole where you spend 2 months and $1000. Then you are completely covered for the remaining 9 months at $8.00 per month. So the average monthly cost is $131. That is more manageable. I am so far from an insurance guru…it just makes my head spin so allow a little leeway on my math skills. However, this works for me.
The same insurance person gave me contact information for 3 manufactures that offer financial assistance.
What gives me chills is that RX companies are increasing prices so much that as seniors we are being priced out of the market for the very medications we need for a decent quality of life. Just like the patent process, these pharmaceutical companies have to make a killing before generics take over and they have to start all over. A dilemma for sure.
Have a restful sleep tonight. Chris
Liked by John, Volunteer Mentor, JK, Alumna Mentor, jmanj
@artscaping Does the amount of expenditure you have to have vary by insurance carrier? When I was on xifaxan we were spending about $700 a month and didn’t hit the donut hole until around September. The retail on that was around $2400 a month, but it was worth it. My husband has a very good retirement pension but that was a sacrifice.
Liked by John, Volunteer Mentor, jmanj
Thank you for your response. It is appreciated! On Wed., we pick up my first month's supply which is considered a "sample." I will be filing out papers to try and get help from Tymlos. We already have huge out-of-pocket medical expenses from my seeing a doctor who practices "functional" medicine. Yes, he is a chiropractor, but also uses magnetic and laser treatment w/supplements. Dr. Draper is currently treating me for severe degenerative disc disease in my neck. I was told by the spine surgeon they could not operate. If they did, eventually, my neck would be paralyzed. Since I have adverse reactions to pain meds, Dr. Draper was able to bring me out of deep pain without drugs. It took a number of months and I am being treated by him for well over a year. For us, it was a miracle. I am also receiving multiple epidurals for my back. Between all of these issues including a bad knee, you can imagine our medical bills are "sky high!" Although not a medical expert, I'm beginning to believe that my bone problem is connected to the deterioration of discs and joints. Not sure if my doctors are even thinking along these lines. My apology for getting to lengthy with my response. Again, thank you for your input!
Liked by John, Volunteer Mentor, JK, Alumna Mentor, Chris Trout, Volunteer Mentor, jmanj
I started taking Tymlos in January. It really affected my appetite for awhile, but my body seems to have adjusted and I am now taking it every night without any problem. I give myself the shot (really easy) just before going to bed — so some of the side effects like nausea (very slight) aren't a problem. I will have another bone density in January, so am hoping to see improvement. I am 79
Hope this helps.and good luck.
Appreciate your response. Because I am in need of a knee replacement, my treatment should begin very shortly. We pick up my first month's supply of Tymlos on Wed., then a nurse will come out to show us how to give the injection. Since I have a sensitive stomach, I hope my reaction is as good as you have described about yourself. Hope your January bone density shows great improvement!
@curlylocks, @contentand well, Thanks for your replies. Yes, I have Medicare Part D insurance. My carrier is AARP through United Healthcare. This plan was chosen by my insurance representative. She has done a great job. This hitch in the get-a-long, a frequent happening for those of us in the over 65 years old group, requires some planning for the financial impact of a yet to be revealed diagnosis.
I checked with the pharmacist today and she indicated that as far as she knew, my math was on track when calculating the average monthly cost. We shall see.
May you have everything that a joyously sunny day can bring. Chris
@artscaping That’s the same as the Medicare D I have unless they have multiple plans you can choose from. I don’t recall, that seems like an eternity ago.
I hope you are having a wonderful day too. I can’t complain about the weather here at all, beautiful day. I’m on a lounge in our screened porch.
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, Merry, Volunteer Mentor, jmanj
Thanks, Chris, for the information on your health insurance. Hopefully, when I renew my Part D, there will be a supplement that is more cost friendly.
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