Dofetilide (Tikosyn): adjusting dosage

Posted by elizabeth1941 @elizabeth1941, Sep 1, 2019

Has anyone on this Afib blog used Tykosyn for their Afib and if so what is your experience

@maryrohrer1

Also, know your triggers. Caffeine, alcohol, stress are notables.

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I know the list of triggers. I thought that stress was one until I popped into A-fib during my daily meditation! I don’t do caffeine – but hadn’t for years as it made me hyper. I think eating too much at a sitting was a trigger. In the last month, I’ve had more A-fib than experienced in the previous 5 years. I’ve been on all of the meds – lost Thyroid to Sotalol – and Tikosyn is the end of the road for me. I’ve had two ablation, one heat and one cryo that failed within months. My EP suggests Maze procedure. Has anyone had experience with this?

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Thank you each and all for answering my query. It is deeply appreciated.

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@lizzy102

I know the list of triggers. I thought that stress was one until I popped into A-fib during my daily meditation! I don’t do caffeine – but hadn’t for years as it made me hyper. I think eating too much at a sitting was a trigger. In the last month, I’ve had more A-fib than experienced in the previous 5 years. I’ve been on all of the meds – lost Thyroid to Sotalol – and Tikosyn is the end of the road for me. I’ve had two ablation, one heat and one cryo that failed within months. My EP suggests Maze procedure. Has anyone had experience with this?

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I’d consult with Dr Natale first before contemplating Maze .
He is the best and worth the trip if at all possible !

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@elizabeth1941

I have been on Dofetilide for 11 months. It worked for about 10 months. For the past month I have been having a lot of pounding quivering heart issues. Has anyone else had this happen?

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That happens. You need to consult your elctrophysiologist cardiologist
to determine next steps either a different drug or an ablation.

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I have been on Dofetilide for 11 months. It worked for about 10 months. For the past month I have been having a lot of pounding quivering heart issues. Has anyone else had this happen?

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Hi @elizabeth1941, You'll notice that I moved your new discussion over to the one you had previously posted. The benefit in grouping discussions together is that it not only involves everyone that was discussing the issue with you before, but it also updates our members on how your doing. Have you spoken with your physician yet regarding the pounding quivering heart issues?

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