Maybe I am just lucky; but, I have avoided the big three by exercising, nebulizing, balanced diet and drinking water. I see my Pulmonologist every six months who I am doing good.
Maybe I am just lucky; but, I have avoided the big three by exercising, nebulizing, balanced diet and drinking water. I see my Pulmonologist every six months who I am doing good.
Hello Nancy-
I am happy to hear you have been able to avoid the antibiotics.
I am 82 and 4 months into life and have not started the antibiotics for MAI, my choice.
Going on a little over two and a half years of having been diagnosed with BE and one year and four months of knowing I am living with MAI.
Questions: If you have time to answer.
How long have you had a diagnosis of Bronchiectasis, BE?
Have you ever produced sputum to be tested for a MAC infection?
Do you have a MAC infection?
If you have been tested for MAC and have a MAC infection do you know what type of MAC it is?
If you have been told there is MAC infection, how long have you been able to either have cleared it......or have had it and keeping it low/at bay?
Hope your Valentine's Day is filled with lots of smiles.
Barbara
Maybe I am just lucky; but, I have avoided the big three by exercising, nebulizing, balanced diet and drinking water. I see my Pulmonologist every six months who I am doing good.
Hello Nancy-
I am happy to hear you have been able to avoid the antibiotics.
I am 82 and 4 months into life and have not started the antibiotics for MAI, my choice.
Going on a little over two and a half years of having been diagnosed with BE and one year and four months of knowing I am living with MAI.
Questions: If you have time to answer.
How long have you had a diagnosis of Bronchiectasis, BE?
Have you ever produced sputum to be tested for a MAC infection?
Do you have a MAC infection?
If you have been tested for MAC and have a MAC infection do you know what type of MAC it is?
If you have been told there is MAC infection, how long have you been able to either have cleared it......or have had it and keeping it low/at bay?
Hope your Valentine's Day is filled with lots of smiles.
Barbara
Hi, Barbara!
I am 80+4 mos & recently diagnosed with MAC by sputum culture, taking Azithromycin, Rifampin, Ethambutol 3xweek, so far with no side effects.
After childhood with bouts of pneumonia, bronchitis, pluerisy, was diagnosed with Bronchiectasis /pneumonia at age 28, started postural drainage; at 39 after yet another hospitalization with pneumonia, began albuterol & steroid inhalers along with mechanical chest vibration. Bouts of pneumonia have occurred every 10 years since. About 10 yrs ago, added albuterol & sodium chloride 3% by nebulizer 2xday & switched to RespirTech’s InCourage
Vest airway clearance therapy.
This regime along with avoidance of sick people & regular dr visits has served me well. Praying these antibiotics are effective against MAC!
Wishing you well!
Hi, Barbara!
I am 80+4 mos & recently diagnosed with MAC by sputum culture, taking Azithromycin, Rifampin, Ethambutol 3xweek, so far with no side effects.
After childhood with bouts of pneumonia, bronchitis, pluerisy, was diagnosed with Bronchiectasis /pneumonia at age 28, started postural drainage; at 39 after yet another hospitalization with pneumonia, began albuterol & steroid inhalers along with mechanical chest vibration. Bouts of pneumonia have occurred every 10 years since. About 10 yrs ago, added albuterol & sodium chloride 3% by nebulizer 2xday & switched to RespirTech’s InCourage
Vest airway clearance therapy.
This regime along with avoidance of sick people & regular dr visits has served me well. Praying these antibiotics are effective against MAC!
Wishing you well!
hoopsnest17897
Wishing YOU well!!!!
That is one story of survival, perseverance, effort and strength of mind and body.
Thanks for your story....all stories help each of us no matter if the story is the same or different.
Hope your Valentines Day brought a smile to your face.
Barbara
Hello Nancy-
I am happy to hear you have been able to avoid the antibiotics.
I am 82 and 4 months into life and have not started the antibiotics for MAI, my choice.
Going on a little over two and a half years of having been diagnosed with BE and one year and four months of knowing I am living with MAI.
Questions: If you have time to answer.
How long have you had a diagnosis of Bronchiectasis, BE?
Have you ever produced sputum to be tested for a MAC infection?
Do you have a MAC infection?
If you have been tested for MAC and have a MAC infection do you know what type of MAC it is?
If you have been told there is MAC infection, how long have you been able to either have cleared it......or have had it and keeping it low/at bay?
Hope your Valentine's Day is filled with lots of smiles.
Barbara
Hi, Barbara!
I am 80+4 mos & recently diagnosed with MAC by sputum culture, taking Azithromycin, Rifampin, Ethambutol 3xweek, so far with no side effects.
After childhood with bouts of pneumonia, bronchitis, pluerisy, was diagnosed with Bronchiectasis /pneumonia at age 28, started postural drainage; at 39 after yet another hospitalization with pneumonia, began albuterol & steroid inhalers along with mechanical chest vibration. Bouts of pneumonia have occurred every 10 years since. About 10 yrs ago, added albuterol & sodium chloride 3% by nebulizer 2xday & switched to RespirTech’s InCourage
Vest airway clearance therapy.
This regime along with avoidance of sick people & regular dr visits has served me well. Praying these antibiotics are effective against MAC!
Wishing you well!
Not sure, but my husband has been on them for 4 years, also had in IV treatments for six months, now back on the arikayce nebulizer again, had Ct scan 2 months ago and it’s growing again , now on the left lung .😞 I think the drugs have stopped working
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Maybe I am just lucky; but, I have avoided the big three by exercising, nebulizing, balanced diet and drinking water. I see my Pulmonologist every six months who I am doing good.
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4 ReactionsHello Nancy-
I am happy to hear you have been able to avoid the antibiotics.
I am 82 and 4 months into life and have not started the antibiotics for MAI, my choice.
Going on a little over two and a half years of having been diagnosed with BE and one year and four months of knowing I am living with MAI.
Questions: If you have time to answer.
How long have you had a diagnosis of Bronchiectasis, BE?
Have you ever produced sputum to be tested for a MAC infection?
Do you have a MAC infection?
If you have been tested for MAC and have a MAC infection do you know what type of MAC it is?
If you have been told there is MAC infection, how long have you been able to either have cleared it......or have had it and keeping it low/at bay?
Hope your Valentine's Day is filled with lots of smiles.
Barbara
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3 ReactionsGood to hear that in some cases the big 3 are not needed!
Hi, Barbara!
I am 80+4 mos & recently diagnosed with MAC by sputum culture, taking Azithromycin, Rifampin, Ethambutol 3xweek, so far with no side effects.
After childhood with bouts of pneumonia, bronchitis, pluerisy, was diagnosed with Bronchiectasis /pneumonia at age 28, started postural drainage; at 39 after yet another hospitalization with pneumonia, began albuterol & steroid inhalers along with mechanical chest vibration. Bouts of pneumonia have occurred every 10 years since. About 10 yrs ago, added albuterol & sodium chloride 3% by nebulizer 2xday & switched to RespirTech’s InCourage
Vest airway clearance therapy.
This regime along with avoidance of sick people & regular dr visits has served me well. Praying these antibiotics are effective against MAC!
Wishing you well!
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Hug
5 Reactionslol, MAI here. . . didnt know that was an option
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1 Reactionhoopsnest17897
Wishing YOU well!!!!
That is one story of survival, perseverance, effort and strength of mind and body.
Thanks for your story....all stories help each of us no matter if the story is the same or different.
Hope your Valentines Day brought a smile to your face.
Barbara
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Helpful -
Hug
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On Fri, Feb 14, 2025 at 9:29 AM Mayo Clinic Connect < nf+557dd8e3+37754870@n1.hubapplication.com> wrote:
> ## reply above this line ##
>
>
> Mayo Clinic Connect
> *Reply by* @blm1007blm1007
> < https://connect.mayoclinic.org/member/00-67a699b7b52bf44a373185/?utm_source=connect.mayoclinic.org&utm_medium=email&utm_campaign=emailcampaign&utm_content=new_comment_reply_intro_userlink>
> to a comment you posted on discussion "Treating MAC without the big three?"
>
> *Excerpt of your comment*
> Maybe I am just lucky; but, I have avoided the big three by exercising,
> nebulizing, balanced...
>
> *Their reply*
> Hello Nancy-
> I am happy to hear you have been able to avoid the antibiotics.
> I am 82 and 4 months into life and have not started the antibiotics for
> MAI, my choice.
> Going on a little over two and a half years of having been diagnosed with
> BE and one year and four months of knowing I am living with MAI.
>
> Questions: If you have time to answer.
> How long have you had a diagnosis of Bronchiectasis, BE?
> Have you ever produced sputum to be tested for a MAC infection?
> Do you have a MAC infection?
> If you have been tested for MAC and have a MAC infection do you know what
> type of MAC it is?
> If you have been told there is MAC infection, how long have you been able
> to either have cleared it......or have had it and keeping it low/at bay?
> Hope your Valentine's Day is filled with lots of smiles.
> Barbara
>
> VIEW & REPLY
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At least not yet! I am careful to wear a mask when I work in my yard.
Forgot to say: I am 86. I don’t do well with most antibiotics so fear having to use the Big Three!
Not sure, but my husband has been on them for 4 years, also had in IV treatments for six months, now back on the arikayce nebulizer again, had Ct scan 2 months ago and it’s growing again , now on the left lung .😞 I think the drugs have stopped working
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