Treating MAC without the big three?

Posted by lenorj @lenorj, Feb 13 1:49pm

Can anyone give me insight , positive or negative about treating a MAC infection with out use of the big three antibiotics?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@bayarea58

@reneemc @blm1007blm1007 I too get the mucus in the throat after eating. I have had a full gerd workup and all tests negative for gerd, so, at least in my case, that doesn’t seem to be it. The only time I really cough is while eating or after eating, which is why I pushed for a gerd workup. I return to GI doctor in a couple weeks to discuss all the testing and next steps, but he has been very uninterested in the problem, and unmotivated to address. There seems to be this attitude that since I have BE, it’s natural that I cough. But I only really cough when I eat (or right after) and why would that be if the cough is BE related? Admittedly the cough really borders on throat clearing, but even more to my point. Though I do know many here have that throat clearing sensation so it’s confusing to me since mine is specifically related to meal times.

Jump to this post

I mentioned in another thread, somewhere, that my local GI doctor diagnosed me with Acid Reflux...
With not having any symptoms for GERD/ACID REFLUX and after I read about taking PPI's my decision was not to take the PPI's. Besides, the GI doctors NP, that he sends his patients to after the test for follow-up , said to my question of the degree of it showing GERD, said my report was the best she had ever seen with it being a 9, with 9 =good.

I agreed to a full GI testing, again, at NJH and was told, after the GI testing, that I had a small hiatal hernia, no signs of acid reflux. A motility test was also done and that indicated a problem of moving food and other substances through the GI tract. I again was told to take a medicine for that but stubborn me decided not to after reading more about the possibility of what the side affects could be. Throat clearing is a possible side affect of a hiatal hernia, as mentioned in my readings of a hiatal hernia.

After 80 years of not having to take any type of medication, it is difficult getting me to come round about medications. I know that may truly have to change but so far so good overall.
So, if they could truly tell where the substance is coming from, from what body organ is it coming up from to my throat and further with my feeling well, swallowing o.k. etc. and managing, I will just do my BE mucus clearance routine and see if that, with time, will help the after eating problem to subside or fully stop.
It took me a while to understand all that we have to do for our BE, Bronchiectasis, and therefore it has taken a while for me to find my way to a good routine with postural drainage added in, so I hope in time it will change the after eating problem.

For all I know with the GI doctor diagnosing the hiatal hernia and with doing the BE routine it may be causing pressure on the hernia to make it worse. So I'm in some sort of circle possibly.!
Hope all information you have researched and have read here on Mayo will help fill your tablet (old style or new style 😂) with questions that come to mind that you can get answers to while at NJH.
Barbara

REPLY

Coughing during eating can sometimes be a sign of oral dysphagia, but not always, of course. I was diagnosed with dysphagia a few months ago. Eating triggering coughing and being unable to properly break down foods I used to easily eat and swallow, such as raw veggies, are my main symptoms. I also have lots of throat mucus, but it's not only at mealtime. Best of luck to you.

REPLY
Please sign in or register to post a reply.