1. < MAC & Bronchiectasis

What are your recommendations for travel nebulizer?

Posted by terryb1 @128128terry11t, Aug 22, 2017

A few months ago there were some emails about what to take and do when traveling. Someone from the NYC support group recommended the PariTrekS portable nebulizer. I ordered it from Just Nebulizers. When I ordered this I inquired at Just Nebulizers if this could be used with an aerobika. They referred me to Pari and its spokesperson could not definitively endorse their product with an aerobika. I got the same sense that Katherine always got that they didn't want to recommend a competitor nor endorse something for fear of liability. In any case, it can operate as an efficient nebulizer with a small compressor for travel. I ordered mine with a battery. The battery (not really needed) came defective and neither Just Nebulizers or Pari would give me a refund. Pari will be sending a replacement but as mentioned, battery is really not necessary. Hope this is helpful for the travelers on our forum. Terry

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Tina Sims | @tinaesims | Jan 7, 2020
In reply to @sueinmn "@tinaesims Sorry for the delay - I just found this message. I use boiled water at..." + (show)
@sueinmn

@tinaesims Sorry for the delay - I just found this message. I use boiled water at home, we store the cleaned and air-dried devices in a ziploc bag, and I occasionally do an alcohol soak on the nebulizer parts. I am not convinced that household vinegar (3-5%) is sufficiently strong to kill MAC/NTM based on a few studies I have read, so I prefer alcohol. I have not found 10% acetic acid to be readily available to me like alcohol is. Here is a link I found about mycobacteria growth and the effectiveness of alcohol as a disinfecctant: https://www.atsjournals.org/doi/full/10.1513/AnnalsATS.201301-013FR.

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I clean with boiled water and soap after every use and clean with vinegar on Sunday’s. I do this with everything. If I have a full dishwasher load I put it in a basket on the top. Do you clean that much?

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Sue, Volunteer Mentor | @sueinmn | Jan 7, 2020
In reply to @tinaesims "I clean with boiled water and soap after every use and clean with vinegar on Sunday’s...." + (show)
@tinaesims

I clean with boiled water and soap after every use and clean with vinegar on Sunday’s. I do this with everything. If I have a full dishwasher load I put it in a basket on the top. Do you clean that much?

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yes, except the dishwasher part - I only have one part of the year, so have never gotten in the habit of using it.

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heathert | @heathert | Jan 7, 2020
In reply to @sueinmn "@tinaesims Sorry for the delay - I just found this message. I use boiled water at..." + (show)
@sueinmn

@tinaesims Sorry for the delay - I just found this message. I use boiled water at home, we store the cleaned and air-dried devices in a ziploc bag, and I occasionally do an alcohol soak on the nebulizer parts. I am not convinced that household vinegar (3-5%) is sufficiently strong to kill MAC/NTM based on a few studies I have read, so I prefer alcohol. I have not found 10% acetic acid to be readily available to me like alcohol is. Here is a link I found about mycobacteria growth and the effectiveness of alcohol as a disinfecctant: https://www.atsjournals.org/doi/full/10.1513/AnnalsATS.201301-013FR.

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@tinaesims I contacted an industrial chemist and got a high % vinegar and just dilute it down to 10% for shower heads etc.

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fdixon63 | @fdixon63 | Jan 12, 2020
In reply to @sueinmn "@tinaesims Absolutely "Why not?" I just finished a year and a half or the Big 3,..." + (show)
@sueinmn

@tinaesims Absolutely "Why not?" I just finished a year and a half or the Big 3, 6 months of it daily! We traveled and traveled, as well as wintering in our Texas home. I had to make some adjustments due to fatigue and some gastric issues, but otherwise we really enjoyed ourselves. I come from a long line of people on-the-go - my grandparents continued to travel in the '70s with serious heart disease and Parkinson disease, my parents with multiple health issues, my uncle with emphysema... We now live winters in a senior-ish community where nearly everyone has serious health challenges, but keeps on going anyway. Far better than sitting on the sidelines and feeling sorry for oneself! And portable nebs are definitely the way to go - my InnoSpire Mini was under $100 with battery (you have to search for a good price) and lasted about 3 years. If nobody comes up with an affordable alternative, I may just order another.
I forgot to say, when we travel, we carry a "cleaning kit" - a small storage container with dish soap, clean paper towels, and a bottle of peroxide for cleaning and sanitizing the neb parts, Aerobika, and husband's Acapela. The cleaning routine is part of our evening in the hotel.

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Hi Sue, I was wondering about using peroxide (or alcohol) to sanitize neb pieces. Do you have to soak the pieces in it or drizzle peroxide (or alcohol) over the pieces and air dry? Thanks.

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Mentor
Sue, Volunteer Mentor | @sueinmn | Jan 12, 2020
In reply to @fdixon63 "Hi Sue, I was wondering about using peroxide (or alcohol) to sanitize neb pieces. Do you..." + (show)
@fdixon63

Hi Sue, I was wondering about using peroxide (or alcohol) to sanitize neb pieces. Do you have to soak the pieces in it or drizzle peroxide (or alcohol) over the pieces and air dry? Thanks.

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I soak 10-15 min then air dry. My daughters are nurses and this was their recommendation

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fdixon63 | @fdixon63 | Jan 13, 2020
In reply to @sueinmn "I soak 10-15 min then air dry. My daughters are nurses and this was their recommendation" + (show)
@sueinmn

I soak 10-15 min then air dry. My daughters are nurses and this was their recommendation

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Thank you Sue for getting back so quickly. Appreciate it so much.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 21, 2020

Hello everyone! Hope you all are doing well. My home nebulizer is so slow now that I am ready to throw it out. Can any of you recommend a good brand that pushes your medicine through fairly quickly? Thnx!!

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heathert | @heathert | Jan 21, 2020

@windwalker the pari eflow does it in 10 minuites and is travel compatible, internal battery and plug in, with no tubes, its fantastic. It is a little expensive but so worth it.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 22, 2020
In reply to @heathert "@windwalker the pari eflow does it in 10 minuites and is travel compatible, internal battery and..." + (show)
@heathert

@windwalker the pari eflow does it in 10 minuites and is travel compatible, internal battery and plug in, with no tubes, its fantastic. It is a little expensive but so worth it.

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Thanks Heather!

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Tina Sims | @tinaesims | Sep 11, 2021

I’m on my way home from a short trip. I left my travel nebulizer there because it took an hour. Does anyone have a recommendation for a good travel nebulizer!?

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