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Transplant patients - anyone get anemia or Parvo Virus?

Posted by caretakermom @caretakermom, Jul 25 9:43pm

Hi everyone,

Transplant patients, have you ever had an episode where you're anemic and your CBC panel is low?
My husband is on Everolimus and Tacrolimus. Long story short, in March 2026 he had to increase both meds to stay in target trough level. Since then his hemoglobin has been lowered progressively to current where he is anemic, hemoglobin 8.4 from 13.
Mayo Az is out of state to us so care was turned over to home nephrologist. Home neph wants to rule out internal bleeding so this coming Tues hubby getting colonoscopy and endoscopy. Home neph contacted Mayo Az and they do NOT think it's Everolimus, even though one of its known common side effects is anemia. Mayo Az thinks it's Parvo Virus so we are currently waiting for the result of the Parvo Virus PCR.
Anyone ever experience anemia years post transplant and does anyone have any experience with Parvo virus?
Looking forward to your comments. Any inputs will be greatly appreciated.

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hello1234 | @hello1234 | 18 hours ago
In reply to @caretakermom "@hello1234 Yes up next is the appmt to go over the bone marrow biopsy with hematologist...." + (show)
Profile picture for caretakermom @caretakermom

@hello1234

Yes up next is the appmt to go over the bone marrow biopsy with hematologist. I’m also going to ask him whether he thinks hubby can restart Everolimus under slower titration and better monitoring. TBH I don’t think he is in favor of anyone using this drug unless absolutely necessary. Then off to see home neph o 08/01 to discuss (possible) change to txplant regimen. Mayo Az and UCLA use the same medical platform(MyChart) so they can share/access each other’s notes.
My biggest concern as you know is the “new” txplant regimen and how it affects hubby. Prednisone not only spikes blood sugar, but thins bones and causes more cataracts all of which hubby are already having issues!!

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Hi @caretakermom
I am happy to hear that both facilities are on MyChart for easy access to the biopsy results.
Maybe the biopsy results will available on MyChart in tbe next couple of days, and the med discussion can be moved up too.
I can totally understand the urgency you are feeling about prednisone. My Aunt was put on prednisone when she was in the hospital for pneumonia. She is a diabetic and it took her weeks after stopping prednisone to get her sugars back in order. It was very upsetting, so I completely understand how you and hubby are feeling.
The sooner this gets resolved, the sooner we will all be happy!

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