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Transplant patients - anyone get anemia or Parvo Virus?
Hi everyone,
Transplant patients, have you ever had an episode where you're anemic and your CBC panel is low?
My husband is on Everolimus and Tacrolimus. Long story short, in March 2026 he had to increase both meds to stay in target trough level. Since then his hemoglobin has been lowered progressively to current where he is anemic, hemoglobin 8.4 from 13.
Mayo Az is out of state to us so care was turned over to home nephrologist. Home neph wants to rule out internal bleeding so this coming Tues hubby getting colonoscopy and endoscopy. Home neph contacted Mayo Az and they do NOT think it's Everolimus, even though one of its known common side effects is anemia. Mayo Az thinks it's Parvo Virus so we are currently waiting for the result of the Parvo Virus PCR.
Anyone ever experience anemia years post transplant and does anyone have any experience with Parvo virus?
Looking forward to your comments. Any inputs will be greatly appreciated.
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Hi @caretakermom
I am happy to hear that both facilities are on MyChart for easy access to the biopsy results.
Maybe the biopsy results will available on MyChart in tbe next couple of days, and the med discussion can be moved up too.
I can totally understand the urgency you are feeling about prednisone. My Aunt was put on prednisone when she was in the hospital for pneumonia. She is a diabetic and it took her weeks after stopping prednisone to get her sugars back in order. It was very upsetting, so I completely understand how you and hubby are feeling.
The sooner this gets resolved, the sooner we will all be happy!
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2 Reactions@hello1234
Still waiting for the bone marrow biopsy results. Meantime, other test results are coming in and the UCLA hematologist is responding as they come in saying "looks better, but, let's see what bone marrow shows". The CMV result is negative.
I asked him if the blood counts improvement was due to blood infusion or pause from Everolimus he says it's most likely the latter!!
Hi @caretakermom
Thanks so much for the update. I can't wait to hear what the bone marrow biopsy confirms.
(I find it interesting that the hematologist is so familiar with Everolimus).
I am happy that we are at the two yard line towards getting this resolved for hubby!
@hello1234
Our hematologist is also an oncologist so he has a lot of cancer patients on this drug. He has seen such anemia cases many many times, more in cancer patients becuz they take a much larger dose!! He is not happy hubby is on Everolimus.
@caretakermom
I had no idea that Everolimus was used for cancer. I learned something new!