Transplant Evaluation - What to expect

1st change...new date of June11th. Schedule has me coming back the following Mon. for one day. No tests Friday. Wondering if they are flexible. I am trying to fly my daughter down.
Anyone know if there is shuttle from Jax airport to Mayo?

Thanks..Im on it.

Big help ...thanks ao much.

Hello all,
Sorry , I am very late in replying but life take over.
My son received Liver Transplant in Dec. of 2010.
Yes, I read this regularly and will provide any and all information that I can here. I Jax Kristin and Steve who sort of manage the Support group there are the best and so is everyone else in Jax. Best of luck to all who are going through this life changing process and all I can say is have faith as this will happen and you will have a second chance.
My support post transplant , after we got back to NJ, for moral support, was connecting with group and as always Mayo was always available for all medical questions.
I have since moved to Rochester and will try to go to Gift of Life House here to offer what ever support and help I can to whoever needs it. If anyone who is at either of Gift of Life House want to talk, please feel free to reach out. I walk to St Mary's Hospital each afternoon for my daily walk and will stop by. My best to all. Aml

@amlak, No apology is needed - ever! We are happy that you are back. Life does have a way of making many turns and messing with our routines!
How is your son doing? That is the most important issue, in my opinion.
Do you mind telling us how old your son was at the time of his transplant?

I will return to this conversation. But right now the clock is ticking and I need to get off this computer.
Are you aware of today's event: https://connect.mayoclinic.org/webinar/video-qa-and-behind-the-scenes-liver-transplant/

Video Q&A and Behind-the-Scenes: Liver Transplant
Tue, Apr 24, 2018
12:00pm to 1:00pm CT

You will find me in the front row.
Rosemary

Hello,
Yes, I watched the program today.
By gods grace my son is doing very well. He received his transplant when he was 27 years old. He issue was PSC which was diagnosed when he was 17 years old and his GI told us then that in 10 years he will need a liver transplant. We were shocked and just did not know what and how we will do this. I am so grateful that he is on the other side now. It took lot of courage from him as he kept me together during that time. He and I moved to Jax, Fl from NJ but as I said before we were blessed and he received the transplant just after three week on the list. We all in Jax used to wait for the helicopter and when it came we use to think who will get lucky this time. For Jay I think some thing changed in his blood test and we got call from his co coordinator about bleeding and bruising..I think something to do with vit K..and then just that evening we got the call and though we waited for 24 hours in the hospital but docs said this will go to him as the match is there and his condition is getting bad. If I can be of any help to any on this group it at Gift of Life house in Rochester, MN please do not hesitate to reach out as I live very close to GOL house. Best regards. Long story.

@amlak I am happy for you & your son's success story. How is he doing now? You are very kind to offer support for others that are about to travel that same path. I went through the pre-qualifying lung transplant tests in 2016 at JAX Mayo. I was terrified at the prospect of a double lung transplant. I went to several support group meetings at Mayo and met a room full of post transplant patients; many were long time survivors. Listening to their stories eaded my fears greatly.

@amlak, I am happy to hear that your son id doing well. I want to hear more about your son's story, And about your story. As a Mom and as a caregiver for your son, I think that you have a wealth of information that can be of benefit to many of us members.
I would like to suggest a few Discussion Groups where your story and your experience might be most helpful and support to others.

Changes After Transplant - https://connect.mayoclinic.org/discussion/changes-after-transplant/

Fighting Off a Minor Condition,Like a Cold - https://connect.mayoclinic.org/discussion/fighting-off-a-minor-condition-like-a-cold/

Transplant Stories that Inspire: What's Yours? - https://connect.mayoclinic.org/discussion/patient-stories/

Are There Any Other Pre-Liver Transplant Caregivers Out There? -
https://connect.mayoclinic.org/discussion/are-there-any-other-pre-liver-transplant-caregivers-out-there/?pg=3#comment-102154

I look forward to hearing more from you.
Are the rocking chairs on the GOL porch yet?
Rosemary

@windwalker - Terri, It's a wonderful thing, when we have friends to journey with real and virtual. I have discovered a very strong supportive bond between all transplant patients. I think it is the hope and the courage that we gain from sharing our good times and our not-so-good times.
Hugs,
Rosemary

@rosemarya I saw a picture on Facebook, the chairs are out! It's officially spring. 🙂