Toddler has had fevers for over 3 weeks. No one knows why.

Posted by marriedto41 @marriedto41, Tue, Aug 27 1:58pm

Hoping someone can provide some insight into what is causing my 19 month old son to suffer from 3 plus weeks of fevers, some very high. We’ve been to the emergency room twice, 3 overnight hospital stays and still no answers. Initially we were told it was a virus, or more than one virus but it seems unlikely a virus is causing the extended fevers. Besides the fever, he’s had a couple days where he had a rash, mostly on his legs, but on his arms and face as well. Since he isn’t talking yet, we don’t know what else is bothering him. The doctors ruled out bacterial infections. His WBC is hovering around 20K, his platelets are high, and his SED and ESR (I believe those are the acronyms) are also high. An ultrasound of his abdomen didn’t reveal anything. We have an appointment on Thursday with a rheumatologist to determine if he has an auto immune disease. But my wife and I are going crazy with worry. I’m hoping someone might have suggestions for things to look into while we wait for the doctors to see him. Thank you!

@marriedto41– I understand how frightened you and your wife must be. It is good that you will see a rheumatologist. May I ask if your son has bloodshot eyes and reddened lips and young? Peeling skin?
I have experience in Pediatrics from my past. To me the combination of the symptoms and the lab findings point to something called Kawasaki’s Disease. Most common in very young children, could possibly be triggered by a virus. I guess you can include it in rheumatic diseases – vasculitis, inflammation of the blood vessels. It is not easy to diagnose at once, it has to be followed with labs and exams and even echocardiogram. Please keep us up to date after your visit Thursday!

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@astaingegerdm

@marriedto41– I understand how frightened you and your wife must be. It is good that you will see a rheumatologist. May I ask if your son has bloodshot eyes and reddened lips and young? Peeling skin?
I have experience in Pediatrics from my past. To me the combination of the symptoms and the lab findings point to something called Kawasaki’s Disease. Most common in very young children, could possibly be triggered by a virus. I guess you can include it in rheumatic diseases – vasculitis, inflammation of the blood vessels. It is not easy to diagnose at once, it has to be followed with labs and exams and even echocardiogram. Please keep us up to date after your visit Thursday!

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Kawasaki was discussed as a possibility but he doesn’t have most of the symptoms described for the disease so they ruled it out. His echocardiogram and EKG’s are also normal. But thank you for your input.

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Hope your appointment tomorrow will bring you closer to an answer. Please share new information if you don’t mind!

Liked by marriedto41

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@astaingegerdm

Hope your appointment tomorrow will bring you closer to an answer. Please share new information if you don’t mind!

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@marriedto41
I’m just checking back with you- how is your son doing with his fevers now?
What other testing do your doctors recommend?
I hope all is well.

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@astaingegerdm

@marriedto41
I’m just checking back with you- how is your son doing with his fevers now?
What other testing do your doctors recommend?
I hope all is well.

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My son has been fever free since the end of August however, he is being treated for fluid around his heart. Apparently the virus he had caused inflammation in his body and it reacted by creating this fluid. We've been treating him with daily doses of Motrin. The fluid is slowly going away. We have another cardiologist appointment on Thursday where they'll do another echocardiogram. Hopefully it'll be much improved. We can't wait for our son to be 100% healthy. Thank you for asking about him.

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@marriedto41 – I am glad that your son has a diagnosis- and one that can be treated. It must be a relief to see him improving.
Viruses certainly can cause more damage than what one assumes- especially summer viruses in my opinion.
Thank you for getting back to me! I was very concerned.

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