Toddler has had fevers for over 3 weeks. No one knows why.

Posted by marriedto41 @marriedto41, Aug 27, 2019

Hoping someone can provide some insight into what is causing my 19 month old son to suffer from 3 plus weeks of fevers, some very high. We’ve been to the emergency room twice, 3 overnight hospital stays and still no answers. Initially we were told it was a virus, or more than one virus but it seems unlikely a virus is causing the extended fevers. Besides the fever, he’s had a couple days where he had a rash, mostly on his legs, but on his arms and face as well. Since he isn’t talking yet, we don’t know what else is bothering him. The doctors ruled out bacterial infections. His WBC is hovering around 20K, his platelets are high, and his SED and ESR (I believe those are the acronyms) are also high. An ultrasound of his abdomen didn’t reveal anything. We have an appointment on Thursday with a rheumatologist to determine if he has an auto immune disease. But my wife and I are going crazy with worry. I’m hoping someone might have suggestions for things to look into while we wait for the doctors to see him. Thank you!

@marriedto41– I understand how frightened you and your wife must be. It is good that you will see a rheumatologist. May I ask if your son has bloodshot eyes and reddened lips and young? Peeling skin?
I have experience in Pediatrics from my past. To me the combination of the symptoms and the lab findings point to something called Kawasaki’s Disease. Most common in very young children, could possibly be triggered by a virus. I guess you can include it in rheumatic diseases – vasculitis, inflammation of the blood vessels. It is not easy to diagnose at once, it has to be followed with labs and exams and even echocardiogram. Please keep us up to date after your visit Thursday!

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@astaingegerdm

@marriedto41– I understand how frightened you and your wife must be. It is good that you will see a rheumatologist. May I ask if your son has bloodshot eyes and reddened lips and young? Peeling skin?
I have experience in Pediatrics from my past. To me the combination of the symptoms and the lab findings point to something called Kawasaki’s Disease. Most common in very young children, could possibly be triggered by a virus. I guess you can include it in rheumatic diseases – vasculitis, inflammation of the blood vessels. It is not easy to diagnose at once, it has to be followed with labs and exams and even echocardiogram. Please keep us up to date after your visit Thursday!

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Kawasaki was discussed as a possibility but he doesn’t have most of the symptoms described for the disease so they ruled it out. His echocardiogram and EKG’s are also normal. But thank you for your input.

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Hope your appointment tomorrow will bring you closer to an answer. Please share new information if you don’t mind!

Liked by marriedto41

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@astaingegerdm

Hope your appointment tomorrow will bring you closer to an answer. Please share new information if you don’t mind!

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@marriedto41
I’m just checking back with you- how is your son doing with his fevers now?
What other testing do your doctors recommend?
I hope all is well.

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@astaingegerdm

@marriedto41
I’m just checking back with you- how is your son doing with his fevers now?
What other testing do your doctors recommend?
I hope all is well.

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My son has been fever free since the end of August however, he is being treated for fluid around his heart. Apparently the virus he had caused inflammation in his body and it reacted by creating this fluid. We've been treating him with daily doses of Motrin. The fluid is slowly going away. We have another cardiologist appointment on Thursday where they'll do another echocardiogram. Hopefully it'll be much improved. We can't wait for our son to be 100% healthy. Thank you for asking about him.

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@marriedto41 – I am glad that your son has a diagnosis- and one that can be treated. It must be a relief to see him improving.
Viruses certainly can cause more damage than what one assumes- especially summer viruses in my opinion.
Thank you for getting back to me! I was very concerned.

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@maudie01

What would make a child run a high temp each month for a year?

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Hi @maudie01, welcome to Connect. I know it can be scary when a child gets high fevers and especially unnerving if the are reoccurring. Hopefully other members will be able to share some suggestions with you from their experience. You might find the following Mayo Clinic Q & A helpful.

Mayo Clinic Q and A: Child with recurrent fever may have periodic fever syndrome
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-child-with-recurrent-fever-may-have-periodic-fever-syndrome/

I noticed you also started another new discussion with the same topic here: https://connect.mayoclinic.org/discussion/fever-1/. I'm tagging our moderator @ethanmcconkey to see if we should combine your two discussions with the following similar discussion:

Groups > About Kids & Teens > Toddler has had fevers for over 3 weeks. No one knows why.
https://connect.mayoclinic.org/discussion/toddler-has-had-fevers-for-over-3-weeks-no-one-knows-why/

May I ask how old your grandchild is? Have the doctors given any diagnosis or tests for the child?

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What would make a child run a high temp each month for a year?

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Hi @maudie01, and I'd like to join @johnbishop in welcoming you to Connect.

That must be so frustrating and see your grandchild have a fever every month for the past year. You may have noticed I moved your post to this discussion John mentioned so that you can read what others have said on this topic and connect with those who have similar experiences. Simply click VIEW & REPLY in your email notification to get to your post.

I thought @marriedto41 and @astaingegerdm may be able to offer you support as you search for answers.

Back to you @maudie01 has your grandchild been brought to the doctor about this?

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They carry her every month and have test run.nothing shows up.

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@johnbishop

Hi @maudie01, welcome to Connect. I know it can be scary when a child gets high fevers and especially unnerving if the are reoccurring. Hopefully other members will be able to share some suggestions with you from their experience. You might find the following Mayo Clinic Q & A helpful.

Mayo Clinic Q and A: Child with recurrent fever may have periodic fever syndrome
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-child-with-recurrent-fever-may-have-periodic-fever-syndrome/

I noticed you also started another new discussion with the same topic here: https://connect.mayoclinic.org/discussion/fever-1/. I'm tagging our moderator @ethanmcconkey to see if we should combine your two discussions with the following similar discussion:

Groups > About Kids & Teens > Toddler has had fevers for over 3 weeks. No one knows why.
https://connect.mayoclinic.org/discussion/toddler-has-had-fevers-for-over-3-weeks-no-one-knows-why/

May I ask how old your grandchild is? Have the doctors given any diagnosis or tests for the child?

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She is 2.she has been to Atlanta children Hospital and to a children's kidney dr.we are thankful nothing as shown up but there has to be a reason.

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@maudie01 – I’m joining the conversation to see if I can share helpful information. First of all, it is frustrating that your grandchild is not old enough to tell if anything hurts. As mentioned by others young children have fevers more often than older ones. It is also common to reach 104+. Their internal thermostat is more sensitive. Don’t be afraid of the fever itself. It is important to examine and test if the fever persists. It is a good sign that she has been seen at the Children’s Hospital and a kidney specialist. Urinary tract infections are not rare in girls. It is also important to see how she behaves with the fever- alert or lethargic. It is a good sign that testing has not shown anything abnormal yet. Her doctors probably plan to examine and test at regular intervals as long as the fever is there.
I know you still will worry -if you don’t mind please keep us informed of new developments.
Inge- another Grandma

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We have been going to the through high fever for a yr now.dr visit every week we have been to Atlanta.we have no idea.

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@astaingegerdm

@maudie01 – I’m joining the conversation to see if I can share helpful information. First of all, it is frustrating that your grandchild is not old enough to tell if anything hurts. As mentioned by others young children have fevers more often than older ones. It is also common to reach 104+. Their internal thermostat is more sensitive. Don’t be afraid of the fever itself. It is important to examine and test if the fever persists. It is a good sign that she has been seen at the Children’s Hospital and a kidney specialist. Urinary tract infections are not rare in girls. It is also important to see how she behaves with the fever- alert or lethargic. It is a good sign that testing has not shown anything abnormal yet. Her doctors probably plan to examine and test at regular intervals as long as the fever is there.
I know you still will worry -if you don’t mind please keep us informed of new developments.
Inge- another Grandma

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She has had some it but the pediatrician for her kidney testing ruled all out.

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@johnbishop

Hi @maudie01, welcome to Connect. I know it can be scary when a child gets high fevers and especially unnerving if the are reoccurring. Hopefully other members will be able to share some suggestions with you from their experience. You might find the following Mayo Clinic Q & A helpful.

Mayo Clinic Q and A: Child with recurrent fever may have periodic fever syndrome
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-child-with-recurrent-fever-may-have-periodic-fever-syndrome/

I noticed you also started another new discussion with the same topic here: https://connect.mayoclinic.org/discussion/fever-1/. I'm tagging our moderator @ethanmcconkey to see if we should combine your two discussions with the following similar discussion:

Groups > About Kids & Teens > Toddler has had fevers for over 3 weeks. No one knows why.
https://connect.mayoclinic.org/discussion/toddler-has-had-fevers-for-over-3-weeks-no-one-knows-why/

May I ask how old your grandchild is? Have the doctors given any diagnosis or tests for the child?

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Lots of test no results.

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