Thoracic aortic aneurysm: Anyone had surgery?

Posted by jbsb93 @jbsb93, Jul 28, 2011

I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I've been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before??

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @michellr
I'm so sorry to hear how stressful this is for you and hope you are taking measures to manage the stress.

As for getting treatment at the Mayo Clinic, Dr. Pochettino, an aortic surgery expert at Mayo would be happy to review your records to understand your situation and determine what type of cardiac surgery needs to be performed. To begin this process, please call Dr. Pochettino's patient appointment secretary, Hope Nesbit at 507-255-2000. After determining what type of surgery is needed, Ms Nesbit will connect you to our business office to speak about insurance options.

Here's a video Dr. Pochettino made explaining what patients need to know about aortic surgery


Here's a quick read about the The 4 A's when you find yourself stressing - Avoid, Alter, Accept and Adapt - http://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/stress-relief/art-20044476?pg=1

I hope this helps. Keep talking with us. You're not alone.

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Hello,
My first surgery was 1978 Montefura(sp) in New York City(We lived upstate New York, why I ended up there. I was 13 years old. Have no idea the procedure time, I was in the hospital for about 1.5 weeks.
My 2nd surgery was 2005, Memorial Herman, Houston Texas. Live ~200 miles away and the Cardiac Center has lots of recognition. I was lucky to be near well qualified help. My age was 49 years old. Surgery was about 5 hours, in Cardiac ICU for 2 days, and Cardiac Recovery for 18 days. First two days was like learning how to live again. I was cut radially following the rib-line, and one rib was removed permanently to allow the dr. sufficient room for doing the aneurysm repair. When they opened me up it was one big matted mess of scar tissue and organs. This was probably the major time consumer. The delta between the first surgery in 1978 and then allowed my body to grow lots of scar tissue. The extended stay at the hospital was due to my chest drainage not letting up. I had lots of incisions inside of me and they were all draining. This was not normal. I would think this would be different for you.
Couldn't eat or swallow for 7 days after the surgery. Had me on TPN(Total Parental Nutrition) IV and I was never hungry. Wish I had an IV of that stuff at home for long movies like Dances With Wolves!
This surgery was the single most difficult task I have accomplished in my life.

Keep your chin up.

Sincerely,
Bruce

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @michellr
I'm so sorry to hear how stressful this is for you and hope you are taking measures to manage the stress.

As for getting treatment at the Mayo Clinic, Dr. Pochettino, an aortic surgery expert at Mayo would be happy to review your records to understand your situation and determine what type of cardiac surgery needs to be performed. To begin this process, please call Dr. Pochettino's patient appointment secretary, Hope Nesbit at 507-255-2000. After determining what type of surgery is needed, Ms Nesbit will connect you to our business office to speak about insurance options.

Here's a video Dr. Pochettino made explaining what patients need to know about aortic surgery


Here's a quick read about the The 4 A's when you find yourself stressing - Avoid, Alter, Accept and Adapt - http://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/stress-relief/art-20044476?pg=1

I hope this helps. Keep talking with us. You're not alone.

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Thanks for your detailed response. Very helpful Couple of quick questions , if u don't mind.
Where did u have your surgery and how long was it? How was the Post Op and how long was your total stay in hospital? Thanks again for your very helpful response. Will keep my fingers crossed re my surgery.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @michellr,
I just wanted to check in and see how you are doing?

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Colleen: Thank You for the information. That helps.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @michellr,
I just wanted to check in and see how you are doing?

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Good question @grandmajan.
This article from Mayo Clinic http://mayocl.in/2eL520R states "Many start small and stay small, although many expand over time. How quickly an aortic aneurysm may grow is difficult to predict." Understanding the cause of the aneurysm can be a clue as to what causes it to grow, ie high blood pressure. It sounds like there is no single answer that applies to everyone, and explains why active monitoring is important.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @michellr
I'm so sorry to hear how stressful this is for you and hope you are taking measures to manage the stress.

As for getting treatment at the Mayo Clinic, Dr. Pochettino, an aortic surgery expert at Mayo would be happy to review your records to understand your situation and determine what type of cardiac surgery needs to be performed. To begin this process, please call Dr. Pochettino's patient appointment secretary, Hope Nesbit at 507-255-2000. After determining what type of surgery is needed, Ms Nesbit will connect you to our business office to speak about insurance options.

Here's a video Dr. Pochettino made explaining what patients need to know about aortic surgery


Here's a quick read about the The 4 A's when you find yourself stressing - Avoid, Alter, Accept and Adapt - http://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/stress-relief/art-20044476?pg=1

I hope this helps. Keep talking with us. You're not alone.

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Hello,
Your situation is similar to mine, a good amount of time between procedures. Your body has probably formed some scar tissue that has manifested itself on your chest cavity around the areas cut on. They will have to deal with this to get to the items needing repair. For instance my Aorta had fused itself to my Esophagus(sp). I was confused when they couldn't give me a definitive time of how long the surgery would take. The variable was scar tissue, and each persons body responds differently. In-fact they knew at the time my Aortic Valve was leaking and only had 2 leaflets, where normal is 3. Just fixing the Aneurysm was all they had time to do. So today, I have a perfect Aorta, and will some day have to contend with the valve. If your left lung gets collapsed during the procedure for additional room for the Dr. to work, do all the treatments and rehab to rejuvenate the lung. Try your hardest. If you don't it may not fully return. I'm dealing with a 50%+ reduction in lung capacity due to my two surgeries. I'm not sure I did all I could do to prevent this.

All the best.
Bruce

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @michellr,
I just wanted to check in and see how you are doing?

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Hi Colleen: Do we know what makes the Aortic Aneurysm expand? or stretch ? Mine is 4.3 and has been that since 2006.

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @michellr
I'm so sorry to hear how stressful this is for you and hope you are taking measures to manage the stress.

As for getting treatment at the Mayo Clinic, Dr. Pochettino, an aortic surgery expert at Mayo would be happy to review your records to understand your situation and determine what type of cardiac surgery needs to be performed. To begin this process, please call Dr. Pochettino's patient appointment secretary, Hope Nesbit at 507-255-2000. After determining what type of surgery is needed, Ms Nesbit will connect you to our business office to speak about insurance options.

Here's a video Dr. Pochettino made explaining what patients need to know about aortic surgery


Here's a quick read about the The 4 A's when you find yourself stressing - Avoid, Alter, Accept and Adapt - http://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/stress-relief/art-20044476?pg=1

I hope this helps. Keep talking with us. You're not alone.

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Glad to see your post. I am 67 yrs old and underwent a bypass surgery with Aortic Valve replacement 14 yrs ago. Now I have been recommended to have surgery for an enlarged Aortic Aneurysm (5.7CM) and replacement of Aortic Valve with a mechanical valve. They may also redo some bypasses. Have visited Dr. Nishimura and Dr Pochettino recently. Concerned about length of surgery and the post op care and the risk associated. I am generally in good health and have no other health issues. Any comments and opinions welcome.

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Profile picture for srlove @srlove

Diagnosed with this 6 months ago. Just now starting to have minor chest pains. Have CT scan with contrast on Thursday ...anyone else have this. What comes next? A little concerned. Thanks.

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Let us know the results what you get them @srlove.

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Profile picture for crhp194 @crhp194

Your aneurysm usually needs to be repaired at that size. I would see if you can get to Mayo's or somewhere that does lots of these surgeries. Many tests are done before surgery so you should know beforehand the operating plan before you have the surgery. If you are worried about afterward, Mayo's has excellent pain control and excellent nurses who are readily available. In particular, nurses Emily, Callie, Amy, aKevin, Dot, Patti-these are very caring and knowledgable. My surgery was May 10, 2016 and all is well. @smithjss

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Thanks for the great info. Fingers crossed...

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Profile picture for srlove @srlove

Diagnosed with this 6 months ago. Just now starting to have minor chest pains. Have CT scan with contrast on Thursday ...anyone else have this. What comes next? A little concerned. Thanks.

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Thanks to you all for sharing. I am at a 4.3 cm but also have an enlarged pulmonary artery (4.2 cm and should be a 2.5). Have decided to delay CT two weeks till my Medicare kicks in. Then will have CT and whatever tests cardiologist wants. No medical info from father side. Mom's side cancer, and some heart disease but not aneurism. I feel a little better knowing that you all are out there. Thanks so much!

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