Thoracic aortic aneurysm: Anyone had surgery?

Posted by jbsb93 @jbsb93, Jul 28, 2011

I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I've been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before??

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

janet26 | @janet26 | Sep 26, 2018

In reply to @Drew944 "Can I ask for advise on coping - throughout the day I keep thinking and stressing..." + (show)

Hello Drew
I have a celiac artery aneurysm but the fear is real. I too have trouble letting go of this fear. I am waiting for follow up Ct but I wonder everyday how I would know if it’s growing and could it rupture. I wish I had words of comfort for you but I guess we have to have trust in the medical experts. I wish you peace of mind as Iwork on it also

Drew944 | @Drew944 | Sep 26, 2018

Can I ask for advise on coping - throughout the day I keep thinking and stressing about it and want to stop . Thank you !

grandmajan | @grandmajan | Aug 3, 2018

In reply to @lynnw "My doctors have all told me that exercise is important. You should just not do anything..." + (show)

Ok, so slow and steady. thank you.

grandmajan | @grandmajan | Aug 3, 2018

In reply to @degarden_girl "With your MD's approval, walking is a very significant exercise. To start, find a walking area..." + (show)

Thank you.

lynnw | @lynnw | Aug 2, 2018

My doctors have all told me that exercise is important. You should just not do anything that raises your heart rate quickly or lift heavy weights. It is important to stay in as good of shape as you can. Walking is a good exercise that fits the description.

lynnw | @lynnw | Aug 2, 2018

My insurance has been fine about me going there also.

degarden_girl | @degarden_girl | Aug 2, 2018

With your MD's approval, walking is a very significant exercise. To start, find a walking area that is on the flat and without distractions. Just walk for 15 or 20 minutes at the fastest speed you can without becoming winded. Gradually increase your time/distance. Good luck!

grandmajan | @grandmajan | Aug 2, 2018

Hi: I usually only read and follow everyone here. But now have some questions. Along with A-fib I have a mild leak in my left Ventricle, and a thoracic aortic aneurysm of 4.3. It has been stable at that size for 7 or so years. I can feel myself going down hill and keep asking my Drs about exercise with these conditions. I get winded quickly and fatigued. Both my primary and Cardiologist have said that it doesn't matter if I do or don't. So, I don't want to allow my heart to get flabby and soft. Can I do something to at least keep my heart as strong as it is, or do I risk making it worse, or will it get worse in spite of what I do. Any one out there that has any advise. I take 3. Warferin, 12.5 Metoprolol and 120 NP thyroid.
Your expertise and experience would be very helpful. Thank you

ginko | @ginko | Aug 2, 2018

In reply to @lynnw "Good luck to you. Mayo will take good care of you. They make it less scary..." + (show)

Thank you so very much. It is so comforting to know that you are out there. Please contact me any time also Lynn.

Deby

nancykare | @nancykare | Aug 2, 2018

Thank you! I hope my insurance will let me go there. I will be checking today of tomorrow.

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