Thoracic aortic aneurysm: Anyone had surgery?

Posted by jbsb93 @jbsb93, Jul 28, 2011

I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I've been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before??

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Profile picture for michellr @michellr

Thank you. I am very aftraid of the surgery and to make matters worse I am a cardiac nurse! I am afraid of a stroke, PE, and death during surgery and sudden death if i dont. Do i just go to a local surgeon , i live in Chicago area, or do i go somewhere else. This is stressing out my life. I have humana hmo. Can i even go somewhere like mayo

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I have 4.8 and the surgeon said 5 is the number. Handling stress is the problem. Told not to lift anything over 50. I do a lot of reps at lower weights. Still hard to deal with a time bomb in the chest. I do tell people i know what may get me, but do they know what is after them? Oh well, try to keep stress down which is hard.

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Has surgery been suggested?

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My brother had an aneurysm in his brain. He had surgery at Mayo in Jacksonville. He passed away about 2years later. Other than that no other family history of aneurysm

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Welcome to Connect, @joanstewart and @1sassydame,

You may notice that I moved your messages and combined it with this existing discussion on thoracic aortic aneurysms. I did this as I thought it would be beneficial for you to be introduced to the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Thoracic aortic aneurysms often grow slowly and usually without symptoms, making them difficult to detect. Some aneurysms will never rupture. Many start small and stay small, and how quickly an aortic aneurysm may grow is difficult to predict.
Here is some information from Mayo Clinic, which I hope you will find helpful: https://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/symptoms-causes/syc-20350188

@joanstewart, may I ask if you have a family history of aortic aneurysm?
@1sassydame, this discussion on pulmonary hypertension might interest you: https://connect.mayoclinic.org/discussion/pulmonary-hypertension/
I’m tagging @bjanderson @windwalker @estrada53 and @thankful to see if they might have some thoughts to share. Do you know the measurements for the aneurysm? How is it being managed at present?

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So tired of being tired. I was diagnosed with a thoracic aortic aneurysm and arterial pulmonary hypertension about the same time five years ago. I cannot do much in the way of exercise nor even simple chores. Can anyone else relate? Tips on how you get along with this condition? I have no arterial plaque and strong heart muscles so I have a real problem mentally coping with this diagnosis.

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I was diagnosed 1year ago by accident. I had an MRI on my breast and the aneurysm was discovered. 4.6cm. No symptoms or problems. Recheck every 6 months. No change in activity. Just keep close watch of blood pressure

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After my open heart surgery for ascending thoracic aneurism I developed ocular migranes. Is it true that these migranes increase your risk of stroke x 3?

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Profile picture for degarden_girl @degarden_girl

@Drew944 I think you are trying to find a way to blame something you did for this aneurysm but it may not be anything you did but just a genetic weakness in the aorta. In any case, don't spend time trying to find an answer to a question that doesn't need to be asked. You have an aneurysm, you can't change that and all you can do is assure your cardio is monitoring it and that you are following the cardio's direction about what you should and should not do. It is important to keep your blood pressure under control as elevated blood pressure can put pressure on that weak spot in the aorta. If you smoke, stop right now. I believe that an aneurysm can remain stable and not in need of surgical repair for years and years and years. Not sure about "forever".

The longer we can remain stable, the more likely there will be a different and less invasive repair available. And the more likely that something else will "get us" before we need a repair. Our bodies age and we won't live forever; our best bet is to follow the cardio's direction and enjoy our lives. We don't "win" by worrying.

And if down the road I do need surgical repair, I will have it done and be grateful that medical science has advanced to the point that such repair can be done with a positive outcome. And if I get really, really old and perhaps not likely to survive such a surgical procedure, there is another procedure already available for placing a stent in the aorta to add strength.

I will not let this diagnosis steal my joy in life and you shouldn't either. You have children who need you to be joyful and not consumed with (unnecessarily) worrying about this. Place your trust in your cardiologist and he will alert you if you need to do anything further.

I wish you well.

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Thank you so much , I am living healthy cycling daily and eating well , and will live hopeful and listen to dr’s and fight for my life for my family and my self even searching when needed for the best surgeons and advances. From what I have learned so far it although invasive is again 98-99%. My wife doesn’t doubt the outcome I shouldn’t either - a work in progress why it’s a journey. Best to all through this holiday seoson

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@annejam I think it would be best to discuss all these details with your cardio and maybe take a trusted friend or family member with you to take notes. I think with more details, you will feel better about the situation. It is hard to know the questions to ask when we are first told of the diagnosis. But now you have had time to think about it, it will be worth it to make another appointment to clarify everything. I think you will feel so much better once you know exactly what the issues are and what you need to do and what you can expect or not expect in the near and distant future. Write your questions down ahead of time and give a copy to your cardio and to your accompanying friend so you can assure all questions have been answered.

If your cardio is reluctant to take the time you need to get the questions answered, maybe you want to find another cardio. Any cardio worth his/her salt should be ever so willing to answer your questions and put your mind at ease.

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