The Chat Room: A place to talk about this and that

Posted by John, Volunteer Mentor @johnbishop, Oct 3, 2020

Have you discovered mutual likes or common points of interest with other members while talking about the medical stuff? Sometimes these discoveries take us off topic.

Welcome to The Chat Room.
This is a place to talk about this and that over the backyard fence so to speak. To invite a fellow member or members to the chat room, simply mention their @username. They will get an email to join the conversation here.

Who will you invite to chat?

Interested in more discussions like this? Go to the Just Want to Talk Support Group.

@britnoor

The website I am talking about in our neighborhood is called http://www.nextdoor.com. I have seen people on there requesting jelp and so many good people coming forward with resources. I believe this website is not just in our area of the USA. Hope this helps.

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Yes, Nextdoor is everywhere. I check in from time to time. However it seems too many people want to criticize. They are also nozy. Sometimes I feel as though they don't have a life. I tried to find a car detailer, with no luck.

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@thisismarilynb

Yes, Nextdoor is everywhere. I check in from time to time. However it seems too many people want to criticize. They are also nozy. Sometimes I feel as though they don't have a life. I tried to find a car detailer, with no luck.

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Yes there there are some nosey people out there but I have found some good resources on there. I have seen people helping out others by giving them rides to the doctors, etc. c
Connecting people with resorces, etc. i have seen car detailing adds in our area. One has to be careful of contractor scammers as you do normally..,do not pay before the job is complete.

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@colleenyoung

@sunnyflower @jesfactsmon, welcome to the Chat Room. We were talking in another discussion about how easily discussions can go off topic. It's great to connect and talk about all manner of things. But it's also important to respect the topic of the discussion thread. To know the topic, simply take not of the subject line of the email. That will guide you.

Will you kick start the chat room?

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Hello,
I'm rather new to the forums in general. However, seeing that the matter is being discussed, l was rather annoyed when as the sole caregiver of my husband (he has metastatic advanced prostate cancer) l recently posted looking for some comfort from other caregivers, my thread was literally taken over by patients discussing the various treatments/meds among themselves. Not living in the US or Canada l couldn't even relate let alone understand their medical exchanges.
Thank you.

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@bigmaya

Hello,
I'm rather new to the forums in general. However, seeing that the matter is being discussed, l was rather annoyed when as the sole caregiver of my husband (he has metastatic advanced prostate cancer) l recently posted looking for some comfort from other caregivers, my thread was literally taken over by patients discussing the various treatments/meds among themselves. Not living in the US or Canada l couldn't even relate let alone understand their medical exchanges.
Thank you.

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Hi @bigmaya I'm Scott and I think you might find some more caregiver discussions that you find interesting and helpful in the Connect caregiver groups:
https://connect.mayoclinic.org/group/caregivers/
https://connect.mayoclinic.org/group/caregivers-dementia/
Please take a look there and see if you find the conversations you are looking for.

I look forward to hearing from you.
Strength, Courage, & Peace

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I am not happy, I did a lung function test and was told I have lost 20% of my lung capacity but nobody can tell me if I already had the loss or that I lost it from Dec to may.

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@jimis65

I am not happy, I did a lung function test and was told I have lost 20% of my lung capacity but nobody can tell me if I already had the loss or that I lost it from Dec to may.

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As far as I know just about every organ loses capacity over time; at the same time the RATE at which it decreases can be of concern if it seems too rapid a loss. U seem to wonder if u lost over 5 months because u did check it then?

Regardless, I'd look into lung diseases category by Mayo to get a sense of the larger picture.

Most important, IMO, is how you can NOW on with a lifestyle that can give you a level of your lung health that helps you with the life you want.
For me I'd like an independent life so I walk up many floors (upto all 13) in my bildng with the last few with My top rate my organs allow today, often with grocery bags; often Without looking at what floor I am cuz every one is a better gauge of themslves than some general guidelines.

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@jimis65

I am not happy, I did a lung function test and was told I have lost 20% of my lung capacity but nobody can tell me if I already had the loss or that I lost it from Dec to may.

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Hi @jimis65 If you had a PFT in December there should be a record of your results in your patient portal. There would most likely be a written report that would tell you what capacity your lungs were at that time.
You should be able to compare December’s numbers to your latest test to see if there’s a change.
There is often a comparison chart to track your progress or regression over time. Do you see anything like that in your portal?

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@loribmt

Hi @jimis65 If you had a PFT in December there should be a record of your results in your patient portal. There would most likely be a written report that would tell you what capacity your lungs were at that time.
You should be able to compare December’s numbers to your latest test to see if there’s a change.
There is often a comparison chart to track your progress or regression over time. Do you see anything like that in your portal?

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Many health portals allow the patient to see the graph for a succession of test results. Some numbers you want to go down and others up.

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@sisyphus

As far as I know just about every organ loses capacity over time; at the same time the RATE at which it decreases can be of concern if it seems too rapid a loss. U seem to wonder if u lost over 5 months because u did check it then?

Regardless, I'd look into lung diseases category by Mayo to get a sense of the larger picture.

Most important, IMO, is how you can NOW on with a lifestyle that can give you a level of your lung health that helps you with the life you want.
For me I'd like an independent life so I walk up many floors (upto all 13) in my bildng with the last few with My top rate my organs allow today, often with grocery bags; often Without looking at what floor I am cuz every one is a better gauge of themslves than some general guidelines.

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Hi sis
I did a lung capacity check may 28th and when I got the results they said I have lost 20% lung capacity!! Now I was diagnosed in Dec they said it was mild. So I asked my dr was this 20% loss already with me in Dec or has the expansion of the disease been since Dec to may? She never answered me

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Hello I'm new here so I don't no what I'm doing and I haven't read much of others questions or concerns I just wanted to say I love you dog in your picture with y'all it's so cute reminds me of my baby boy I think the animals always give us hope to go on and they help us survive I can't make it without me dog that's me and my baby junior

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