Sudden Hearing Loss

Posted by eileen123 @eileen123, Jul 22, 2020

Hello, I am new to this group. At age 56, I recently suddenly lost all hearing in my right ear, and I am trying to process this significant impact and find support from others who have experienced the same sudden hearing loss. I welcome your feedback. I am in good hands with very experienced doctors at Mass Eye and Ear in Boston, but my treatment plan has not worked to date (oral steroids and ear injections). I have profound loss in right ear, and above average hearing in my left ear. Thanks for your insight and support. Eileen

Hi Eileen, I know that the Pres. of HLAA, Richard Einhorn experienced sudden hearing loss a few years ago. I'll bet if you go to HLAA's website you will find something about sudden hearing loss. I'm not sure I'm correct, but I think that it may be that the kind of treatment you are getting is best done immediately after the hearing loss. Was that what happened with you? Do the doctors say anything about your treatment not working? Why?

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Thank you. I began the treatment within 30 hours after I lost my hearing in my right ear. There is no explanation as to why it isn’t working other than the hearing loss was profound. I am stunned.

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I am so sorry. While that kind of thing is a traumatic experience, in time you hopefully will be less stunned. What's the date on which it happened?

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@barbb

I am so sorry. While that kind of thing is a traumatic experience, in time you hopefully will be less stunned. What's the date on which it happened?

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July 6. Thank you.

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I have no words to express my thoughts related to how you must feel. All I can say is that hearing loss isn't the end of the world, whether it's sudden or gradual. To cope well with it one must be open to learning. We are fortunate to be living in times when technology is advancing and there is hope for cures for some types of hearing loss. Probably not soon, but at least they are working on it. Forty years ago they simply told us 'to live with it'. Technology has been game changing for me. That includes FM systems, streamers, cochlear implants and hearing aids. There is help, but it has to be sought. It's OK to be stunned, but don't be stumped. Take time to adjust and move on.

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Good saying! "Stunned but not stumped"!!!

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@julieo4

I have no words to express my thoughts related to how you must feel. All I can say is that hearing loss isn't the end of the world, whether it's sudden or gradual. To cope well with it one must be open to learning. We are fortunate to be living in times when technology is advancing and there is hope for cures for some types of hearing loss. Probably not soon, but at least they are working on it. Forty years ago they simply told us 'to live with it'. Technology has been game changing for me. That includes FM systems, streamers, cochlear implants and hearing aids. There is help, but it has to be sought. It's OK to be stunned, but don't be stumped. Take time to adjust and move on.

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Thank you. As I adjust, I will explore.

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@eileen123, to help with your exploration into cause and course of action, you may also be interested in reading the experiences of other members like @meganmarshall0017 @travelgirl @btpanda in these related discussions:

– Hearing loss in 30s https://connect.mayoclinic.org/discussion/hearing-loss-in-30s/
– Anyone experience rapid progressive hearing loss in one ear? https://connect.mayoclinic.org/discussion/rapid-progressive-hearing-loss/
– Sudden hearing loss and an echo https://connect.mayoclinic.org/discussion/sudden-hearing-loss-1/
– Sudden Hearing loss–options after steroids are ineffective? https://connect.mayoclinic.org/discussion/sudden-hearing-loss-options-after-steriods-are-ineffective/
– Help: Sudden Sensorineural Hearing Loss (SSHL) – very scary: https://connect.mayoclinic.org/discussion/help-sshl-very-scary/
– Sudden Hearing Loss: https://connect.mayoclinic.org/discussion/sudden-hearing-loss-283ae1/

Eileen, are you still taking steroids? What are the specialists suggesting next?

Liked by brownbicycle

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@barbb

Hi Eileen, I know that the Pres. of HLAA, Richard Einhorn experienced sudden hearing loss a few years ago. I'll bet if you go to HLAA's website you will find something about sudden hearing loss. I'm not sure I'm correct, but I think that it may be that the kind of treatment you are getting is best done immediately after the hearing loss. Was that what happened with you? Do the doctors say anything about your treatment not working? Why?

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Thanks so much. I read an article about his personal situation with hearing loss and his hearing aids, etc. It was inspiring.

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@megwest512

In September of this year I lost most of my hearing in my left ear. There was no trauma or anything, just a regular day – I am 26 years old with no medical conditions.
I have since met with many Doctors, had an MRI, and CT scan – all unable to give me any answers that could explain my hearing loss. Has anyone experienced anything like this or know somebody who has? I am just so confused how this could have happened, my hearing has not improved at all.

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What kind of Doctors? Where? Do you wear ear buds a lot at high volume? Did you have a COVID test?

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@megwest512

In September of this year I lost most of my hearing in my left ear. There was no trauma or anything, just a regular day – I am 26 years old with no medical conditions.
I have since met with many Doctors, had an MRI, and CT scan – all unable to give me any answers that could explain my hearing loss. Has anyone experienced anything like this or know somebody who has? I am just so confused how this could have happened, my hearing has not improved at all.

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Viruses might be the culprit since they live and thrive in our senses. Since we are in the world of influenza and covid right now, I wouldn't be surprised if this could be the cause. Research is taking place right now on how these RNA and DNA bugs interfere in our body's defenses and immune system as well as how they set up shop in parts of our organs.

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In September of this year I lost most of my hearing in my left ear. There was no trauma or anything, just a regular day – I am 26 years old with no medical conditions.
I have since met with many Doctors, had an MRI, and CT scan – all unable to give me any answers that could explain my hearing loss. Has anyone experienced anything like this or know somebody who has? I am just so confused how this could have happened, my hearing has not improved at all.

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@ken82

What kind of Doctors? Where? Do you wear ear buds a lot at high volume? Did you have a COVID test?

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Otolaryngologists in Denver and Atlanta. No exposure to loud ear buds or any other loud noises on that note. I tested negative for COVID antibodies.

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@megwest512

In September of this year I lost most of my hearing in my left ear. There was no trauma or anything, just a regular day – I am 26 years old with no medical conditions.
I have since met with many Doctors, had an MRI, and CT scan – all unable to give me any answers that could explain my hearing loss. Has anyone experienced anything like this or know somebody who has? I am just so confused how this could have happened, my hearing has not improved at all.

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@megwest512 Welcome to Mayo Clinic Connect. You have lost hearing in your left ear and providers are unable to find a cause.

You will see that I have moved your question into a discussion where members have previously discussed sudden hearing loss. I did this so you could more quickly connect and get support. You will notice members like @tonyinmi @julieo4 @sparklegram @ellen307 @imallears have experience with the topic of hearing loss and may be a good resource for you. I also encourage you to scroll back through the comments to find previously shared suggestions.

Below I have also linked past related discussions related to sudden hearing loss.

– Sudden hearing loss and an echo https://connect.mayoclinic.org/discussion/sudden-hearing-loss-1/
– Sudden Hearing loss–options after steroids are ineffective? https://connect.mayoclinic.org/discussion/sudden-hearing-loss-options-after-steriods-are-ineffective/

May I ask what the next step is regarding provider appointments?

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@megwest512

In September of this year I lost most of my hearing in my left ear. There was no trauma or anything, just a regular day – I am 26 years old with no medical conditions.
I have since met with many Doctors, had an MRI, and CT scan – all unable to give me any answers that could explain my hearing loss. Has anyone experienced anything like this or know somebody who has? I am just so confused how this could have happened, my hearing has not improved at all.

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@megwest512, this is not uncommon but unfortunately, not well understood. There is only a small window for steroids to be effective, usually about 4 to 5 weeks after onset. I did develop sudden loss of taste and smell so made an appointment with an ENT immediately. I was prescribed a steroid but it had no affect. An MRI revealed nothing unusual. I thought I was going to have to live with the symptoms but I slowly regained my sense of taste and smell. It took almost a year before the senses returned. I hope the same happens with your hearing. If you do not regain the hearing, do not wait too long to do something about it. A hearing aid may help but a cochlear implant may be a better solution. Keep us posted.
Tony in Michigan

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