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Sudden Hearing Loss: Want to connect with others

Posted by eileen123 @eileen123, Jul 22, 2020

Hello, I am new to this group. At age 56, I recently suddenly lost all hearing in my right ear, and I am trying to process this significant impact and find support from others who have experienced the same sudden hearing loss. I welcome your feedback. I am in good hands with very experienced doctors at Mass Eye and Ear in Boston, but my treatment plan has not worked to date (oral steroids and ear injections). I have profound loss in right ear, and above average hearing in my left ear. Thanks for your insight and support. Eileen

Interested in more discussions like this? Go to the Hearing Loss Support Group.

bdurel | @bdurel | May 22, 2022

It has been 3 1/2 months since I experienced sudden deafness in my left ear. This was accompanied by tinnitus in left ear and hyperacusis in my right ear. Also still feel like both ears are clogged but this lessens sometimes. Sometimes when I talk I hear a buzzing sound in my deaf ear which matches the syllables. It's strange because it's when I talk, not when someone else talks. Today it felt like I had my head in a barrel. It comes and goes. I have an appt next Thursday to explore the Cochlea Osia 2 implant. I'm still wondering if my hearing might come back?? Or if an implant will make all the other issues calm down or less noticeable.

REPLY
1 reply
wendymb | @wendymb | May 22, 2022
In reply to @bdurel "It has been 3 1/2 months since I experienced sudden deafness in my left ear. This..." + (show)
@bdurel

It has been 3 1/2 months since I experienced sudden deafness in my left ear. This was accompanied by tinnitus in left ear and hyperacusis in my right ear. Also still feel like both ears are clogged but this lessens sometimes. Sometimes when I talk I hear a buzzing sound in my deaf ear which matches the syllables. It's strange because it's when I talk, not when someone else talks. Today it felt like I had my head in a barrel. It comes and goes. I have an appt next Thursday to explore the Cochlea Osia 2 implant. I'm still wondering if my hearing might come back?? Or if an implant will make all the other issues calm down or less noticeable.

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Hi. Almost exact same symptoms except for the buzzing matching your voice. I too have a biCros hearing aid which brings the sounds from your non-hearing ear to your hearing ear. So you can comfortably sit in a room or next to someone and “hear” what they’re saying. It’s also adjustable for the hyperacusis issue (sirens! Awful!). What it doesn’t do is orient you in space (if you have that issue): you still can’t tell which side the sound is coming from.

REPLY
1 reply
bdurel | @bdurel | May 22, 2022
In reply to @wendymb "Hi. Almost exact same symptoms except for the buzzing matching your voice. I too have a..." + (show)
@wendymb

Hi. Almost exact same symptoms except for the buzzing matching your voice. I too have a biCros hearing aid which brings the sounds from your non-hearing ear to your hearing ear. So you can comfortably sit in a room or next to someone and “hear” what they’re saying. It’s also adjustable for the hyperacusis issue (sirens! Awful!). What it doesn’t do is orient you in space (if you have that issue): you still can’t tell which side the sound is coming from.

Jump to this post

Hi there. Thank you for your comment. The tinnitus is constant but the buzzing when I talk comes and goes. The pressure/clogged feeling also fluctuates from mild to extreme. Feeling/sounding like I'm in a barrel or echo chamber comes and goes also. I don't know if the fluctuating symptoms means that I should hold off on considering implant because my hearing is changing still and might come back?? Or if fluctuating symptoms is just part of the condition and goes on long term and is not a sign that hearing might improve. Maybe the Dr I see next week will be more helpful than the last one. I'm so grateful for this online community as before this happened I had never heard of SSHL. Big hug to everyone going thru this. Before I commit to an implant surgery I should probably try the biCros.

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Mentor
Julie, Volunteer Mentor | @julieo4 | May 23, 2022
In reply to @bdurel "Hi there. Thank you for your comment. The tinnitus is constant but the buzzing when I..." + (show)
@bdurel

Hi there. Thank you for your comment. The tinnitus is constant but the buzzing when I talk comes and goes. The pressure/clogged feeling also fluctuates from mild to extreme. Feeling/sounding like I'm in a barrel or echo chamber comes and goes also. I don't know if the fluctuating symptoms means that I should hold off on considering implant because my hearing is changing still and might come back?? Or if fluctuating symptoms is just part of the condition and goes on long term and is not a sign that hearing might improve. Maybe the Dr I see next week will be more helpful than the last one. I'm so grateful for this online community as before this happened I had never heard of SSHL. Big hug to everyone going thru this. Before I commit to an implant surgery I should probably try the biCros.

Jump to this post

Not wanting to be negative, but from what I understand about SSHL, hearing is unlikely to come back if it hasn't within a few days or week at the most.

The surgery is an option that wasn't available years ago. Glad you are getting some input from people who have gone that route. A bi-cross hearing device might be worth trying. Have you asked your ENT specialist about that?

REPLY
1 reply
bdurel | @bdurel | May 24, 2022
In reply to @julieo4 "Not wanting to be negative, but from what I understand about SSHL, hearing is unlikely to..." + (show)
@julieo4

Not wanting to be negative, but from what I understand about SSHL, hearing is unlikely to come back if it hasn't within a few days or week at the most.

The surgery is an option that wasn't available years ago. Glad you are getting some input from people who have gone that route. A bi-cross hearing device might be worth trying. Have you asked your ENT specialist about that?

Jump to this post

Thank you Julie. I was scheduled to see the specialist this Thursday but they called today and rescheduled me to June 23rd. I'm so bummed. Have several questions for him. I will definitely ask him about the BiCros and give it a try before committing to an implant.

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