Stem Cell Therapy for Neuropathy

Posted by jlsoerens @jlsoerens, Jun 13, 2018

Does Mayo Clinic use stem cell therapy for neuropathic issues? Have any of you tried stem cell therapy?

@gregsmobil

my neuropathy is in the feet ankles down three fingers and thumb, I do have the numbness and also the pain, burning feeling, sharp light 22 shell just shot you mostly at night. cant sleep some nights

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Hello @gregsmobil, Welcome to Connect. Sadly I can tell you that you are not alone with your symptoms. There is another discussion on Connect that you might be helpful to join and read what others are trying for treatments.

> Groups > Neuropathy > Ideas for pain relief from Small Fiber Neuropathy (SFN)
https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

Are you able to share a little more about your diagnosis and any treatments you are using or have tried?

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@gregsmobil

my neuropathy is in the feet ankles down three fingers and thumb, I do have the numbness and also the pain, burning feeling, sharp light 22 shell just shot you mostly at night. cant sleep some nights

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Hi, @gregsmobil – how has your sleep been the last couple of nights with the neuropathic symptoms you mentioned you've experienced?

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I heard something on the TV about a treatment for neuropathy that takes Medicare, but I did not get the phone number. Could you help me.

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@jacksgarden

I heard something on the TV about a treatment for neuropathy that takes Medicare, but I did not get the phone number. Could you help me.

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Hello @jacksgarden, Welcome to Connect. I would be highly suspect of any neuropathy TV commercial and especially if they mention that they take Medicare. This is just my opinion based on my struggle to find something to help my small fiber peripheral neuropathy. I shared my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

Are you able to share a little more about your neuropathy diagnosis and how long you have had it?

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@ndttech

I have tried 80 hours of HBOT recently and found that it did help my neuropathy. Here is Canada, the HBOT cost was reasonable ($100CDN/hr); although I hear that it can be much more expensive in other places. When I started the HBOT my neuropathy pain was up to my waist (pin, needles, tingling, dull pain that is there 24/7 plus numbness and freezing/burning in my feet depending on whether I was standing or laying down). After the 80 hours, the neuropathy was below my knees and my legs were considerably stronger. If anyone if in Alberta, I can give you the contact name and phone number. Also: for SOME conditions, HBOT can be covered by our health care or a private plan; however, in my case it was NOt covered. I understand that open ulcers on the feet (caused by neuropathy) are covered by Alberta Health Care.

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Hi, Im in Calgary. Would like to have more information please. thanks

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@ecc79

Hi, Im in Calgary. Would like to have more information please. thanks

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Hello @ecc79, welcome to Mayo Clinic Connect. There is a post by @colleenyoung earlier in this discussion that has some really good information and links about stem cell therapy for neuropathy. Here is the post by Colleen – https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/?pg=1#comment-110326

I attended a meeting on stem cell therapy for neuropathy at the Minnesota Neuropathy Association in August 2018. Here is a link to my post with notes on the meeting: https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/?pg=1#comment-273652

@ecc79 are you considering stem cell treatment?

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@johnbishop

Hello @ecc79, welcome to Mayo Clinic Connect. There is a post by @colleenyoung earlier in this discussion that has some really good information and links about stem cell therapy for neuropathy. Here is the post by Colleen – https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/?pg=1#comment-110326

I attended a meeting on stem cell therapy for neuropathy at the Minnesota Neuropathy Association in August 2018. Here is a link to my post with notes on the meeting: https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/?pg=1#comment-273652

@ecc79 are you considering stem cell treatment?

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Thank you John, that’s good stuff. I am glad to have found this site. I will follow the dialogue closely and find the experiences people share helpful and informative. I am sure to join on the discussion going forward.
Derek

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@ndttech

I have tried 80 hours of HBOT recently and found that it did help my neuropathy. Here is Canada, the HBOT cost was reasonable ($100CDN/hr); although I hear that it can be much more expensive in other places. When I started the HBOT my neuropathy pain was up to my waist (pin, needles, tingling, dull pain that is there 24/7 plus numbness and freezing/burning in my feet depending on whether I was standing or laying down). After the 80 hours, the neuropathy was below my knees and my legs were considerably stronger. If anyone if in Alberta, I can give you the contact name and phone number. Also: for SOME conditions, HBOT can be covered by our health care or a private plan; however, in my case it was NOt covered. I understand that open ulcers on the feet (caused by neuropathy) are covered by Alberta Health Care.

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So the Hyperbaric chamber decrease your neuropathic pain?

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I am sciatic nerve pain in my left lower back, hip, leg and foot. Dull/shooting pain l, tightness and tingling in the left foot and right toes. Will stem cell help???

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@kreisbmb

I am sciatic nerve pain in my left lower back, hip, leg and foot. Dull/shooting pain l, tightness and tingling in the left foot and right toes. Will stem cell help???

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Hi, @kreisbmb – welcome to Mayo Clinic Connect. Since my understanding is that the pain, tightness and tingling you are experiencing are related to sciatic nerve pain and not neuropathy, I'd like to suggest you check out a couple of Connect threads on stem cell therapy:

Groups>Chronic Pain > https://connect.mayoclinic.org/discussion/stem-cell-therapy-4/

Groups > Autoimmune Diseases > Stem cell therapy? > https://connect.mayoclinic.org/discussion/stem-cell-therapy-3/

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@neuroliz

Has anyone had stem cell treatments?

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Hi @neuroliz — Welcome to Connect.
Have you looked into stem cell treatment for some form of neuropathy? Are you able to share your diagnosis?

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@johnbishop

Hi @neuroliz — Welcome to Connect.
Have you looked into stem cell treatment for some form of neuropathy? Are you able to share your diagnosis?

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I have been diagnosed with idiopathic neuropathy which means I’ve had all the tests and they can’t figure out what’s causing it so that makes me an idiot I guess. I have burning in my feet and ankles. It’s moving up unto my calves and thighs. Heat, burning. Pins, needles. I spent most of Monday night and Tuesday in the recliner with ice on my feet, calves, and thighs. The doctor wants to inject stem cells in my back and both my ankles.
Medicare won’t pay for the treatments.

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