Mayo Clinic Connect
Does Mayo Clinic use stem cell therapy for neuropathic issues? Have any of you tried stem cell therapy?
Liked by marystefy
I tried hyperbaric oxygen therapy for 40 days with no positive results. I have peripheral neuropathy that is very aggressive. Muscle loss, no balance, dropped feet.
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Have you been checked for spinal stenosis? It seems like your spine is having the problem too. I hate to mention it but could it be tumor or something. Research spinal stenosis and peripheral nephropathy and see what I am referring to. I have had all kinds of tests and no one has even mentioned this connection but they never can find out what is causing mine. I am going to pursue this as a possible cause. BTW, I have had this for 15 years and it is getting worse every year. So, I am more than motivated because of the pain.
Liked by Dee
@ericvnelson I would agree that you should consider have an evaluation for spinal stenosis. It can sneak up on you and happen years later after an injury like a whiplash. I had spinal stenosis in the central canal at C5/C6 and it did cause significant muscle loss (in my arms/shoulders) and intermittent drop foot. I also had some instability and muscle spasms taking the curve out of my neck, and when my physical therapist got things realigned, the drop foot stopped happening. The spasms moving my vertebrae around effectively made the small canal even smaller. It was progressing rapidly with bone spurs and the collapsed disk digging into my spinal cord. I saw that double in 9 months time on my MRIs. I had surgery at Mayo and it fixed all of that. Do your homework on good surgeons, as they are not equal. My surgeon at Mayo was excellent, and I had great results. If you can go there, you would get it figured out a lot sooner than waiting for multiple appointments somewhere else. It took me 2 years of getting worse and no one would help me, so I contacted a surgeon at Mayo.
Here is my story. https://sharing.mayoclinic.org/2019/01/09/using-the-art-of-medicine-to-overcome-fear-of-surgery/
Liked by John, Volunteer Mentor, Dee, Chris Trout, Volunteer Mentor
I have read some positive information on stem cells that have come from cells from a newborn versus your traditional cells. Anyone heard or tried this type of stem cell?
Liked by John, Volunteer Mentor, Dee
Yes. I have been to three presentations, one being just yesterday, on stem injections where the stem cells come from the umbilical cord from a newborn baby. It looks promising but I'm still researching. I have a consultation appointment on Monday, March 4. My interest is neuropathy. I'll be glad to share with what I find.
Liked by John, Volunteer Mentor, Dee, Lisa Lucier, jordanabrams30
@jordanabrams30, @stanstory — Saw this article on Facebook and did a Google search to find it so I could link it here.
Jan 11, 2018 – As the stem cell therapy industry booms, critics worry that treatments are … They are being studied by blue-chip medical centers like the Mayo Clinic, offered in …. died after receiving stem cell injections to treat nerve damage from a …. What I have found is that they get these cells from new born babies with … https://www.consumerreports.org/medical-treatments-procedures/trouble-with-stem-cell-therapy/
Liked by Dee, jordanabrams30
@stanstory where are you considering this treatment method facility why’s?
stanstory: Any update on your consultation. Did you have any treatments
Liked by Dee, Lisa Lucier
I was impressed with the last consultation, they were less expensive and seemed to know what they're doing. I have not had the injections yet, still researching. I'm looking for someone who had these injections to get a testimonial.
Liked by Dee, ludite
Very interesting. I recently tried something called intraneural facilitation treatment. This is something only done today at Loma Linda Medical Center in CA. I did 1 introductory treatment on a single foot to see if it would work, and I can say I felt amazing after. Had this on Thursday and still feel 80% better today. So something I will be looking to do in hopes of long term sustainable improvement. Just thought I would throw it out there.
Liked by John, Volunteer Mentor, Dee, tintinet
I believe part of the issue with Stem Cells (outside of the ethical and specific authorized concentration aspects worldwide) is that presently when they are injected, there is no guarantee nor proven circumstances to control what they turn in to. This is why it works for some and not for others. It is also why insurance, etc. has been quick to deny those treatments because they are just not proven enough yet for the masses. The "legitimate" science needs to continue in that area!
There is a lot of experience still to be gained with Stem Cells before they offer the magic hope that the low level marketing hype has led people to believe in Chiropractor Clinics and Stem Cell Centers of recent. BUT it is not something we should totally discredit. Just like all the scammer aspects to the Gut-Brain connection supplement industry have popped up with cure all ads, etc., there are some aspects to the science that are reality-based in science, some areas are real gamer changers in medical interpretation and the recently completed federally-funded Human Microbiome Mapping process (not Human Genome as that is completed years ago) could advance medical treatments/cures immensely in our areas of need, just as what the Human Genome Mapping helped to unravel thus far. That has only begun and there is definitely a connection there to the Gut-Brain, it is just nowhere fully understood yet. Common sense is "You is what you eat" quoted from Sylvester Stallone.
If it were me, I would approach complex Stem Cell Treatments for Disease with the same level of scrutiny you have experienced to date with your neuropathy treatment avenues, but never lose hope nor optimism. It is hard as there are no 100%, 75% or even 50% proven treatments or cures for some of this stuff yet. Eventually science will catch up but I do NOT believe Stem Cell Treatment is there for complex diseases like these yet.
Liked by John, Volunteer Mentor, Dee, Chris Trout, Volunteer Mentor, Jennifer Hunter
I agree whole-heartedly — well written — thanks
@ricksaleen Good morning and welcome to Connect. Thank you for taking your time to not only review the research, but especially to craft a response that is based on current reality and genuine reason, There may be great risk in exposing ourselves to unproven treatments. And yet there appears to be a path being laid that will lead to effective efforts to improve our quality of life as we deal with neuropathic conditions. Be safe and free of suffering today. Chris
Liked by John, Volunteer Mentor, Dee, Lisa Lucier, Jennifer Hunter
Thanks! It is hard for people as when you have no options for treatment or cure, it is so easy to gravitate toward anything that sounds even remotely plausible. Truthfully I am in very similar medical scenarios right now. My only saving grace has been great medical insurance, being a major stakeholder in my health and some of the best doctors in North American trying to help me. I will open up my struggles over the past two decades in another post shortly. Everything has come to a head the past 15 months. I hope the discussion will help people and hopefully it will open up dialogue between everyone. Nobody should have to suffer like we do or even worse suffer in silence.
Liked by John, Volunteer Mentor, Dee, Lisa Lucier, tintinet
Yes I have had stem cell therapy for neuropathy in my feet and legs. I had injections in my legs. It cost me $11,000 and it has been 6 months and no improvement. It was done through a local clinic. The clinic had a conference at a local hotel and showed a film on stem cell injections will cure neuropathy and had people who testified that they had the stem cell injections and how it helped there neuropathy in there legs and feet. All I have to say it did not work for me and I’m out $11,000!
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, tintinet
@dcl1128 Thank you for sharing your negative experience with stem cell therapy. We all must help each other learn about treatments that are over promoted and ineffective. As @johnbishop tells us….there is no cure for neuropathy. However, there are reasonable and sensible strategies for coping with the effects of this pretty devasting condition. May you be safe from suffering today. Chris
Liked by John, Volunteer Mentor, Lisa Lucier, tintinet
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