Mayo Clinic Connect
Does Mayo Clinic use stem cell therapy for neuropathic issues? Have any of you tried stem cell therapy?
Liked by marystefy
Hello @jlsoerens — Welcome to Connect. I have no medical training or background but I've not read any breaking news about the use of stem cell therapy for neuropathy. I did a search and could not find any posts related to anyone who has tried it. However I did find an interesting article on using stem cell therapy to treat arthritis.
Mayo Clinic finds surprising results on first-ever test of stem cell therapy to treat arthritis
You might want to post your question in the following group where there are a lot of members with many different treatment experiences:
Groups > Neuropathy > Living with Neuropathy – Welcome to the group
@jlsoerens may I ask what your neuropathy diagnosis is? Are you able to share what type of treatments you have tried? I have idiopathic small fiber peripheral neuropathy but only have numbness in both legs and feet. I do not have any sharp pains that go with it.
I'm tagging @JustinMcClanahan one of our moderators who may have read or have knowledge of stem cell treatments offered by Mayo Clinic.
Liked by Dee, marystefy
I also found a few other articles that may be helpful.
‘Amazing’ New Stem Cell Treatment for Neuropathy (July 2015)
National Institutes of Health – Mesenchymal stem cells to treat diabetic neuropathy: a long and strenuous way from bench to the clinic
Liked by Teresa, Volunteer Mentor, Dee, marystefy
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Hi John, Thanks for your prompt and helpful reply. My neuropathy is caused by an autoimmune issue that is attacking my myelin sheath….diagnosis of Anti-MAG (Antibodies to Myelin Associated Glycoproteins). It's a fairly rare diagnosis and I've had difficulty finding much helpful information on treatment. My symptoms are electrical current sensations in arms and legs, often to the point of numbness, loss of balance and muscle loss. I've had most success with adjusting lifestyle issues….cleaning up my diet, regular exercise, getting enough sleep, etc., along with supplementation. My Mayo doctors suggested trying an anti-depressant or anti-seizure drug, but so far, I've decided against that route. The last couple of months I've noticed an increase in the intensity of symptoms, so am interested in newer treatments other than drugs.
Liked by John, Volunteer Mentor, Dee, marystefy
Hi @jlsoerens — I do believe diet plays a big role in a lot of autoimmune health problems. I started my journey while researching my small fiber peripheral neuropathy and found a helpful book by Dr. Terry Wahls – The Wahls Protocol, that started me looking more at nutrition to help with some of my overall health problems. She does have an amazing story to tell – https://terrywahls.com/about/about-terry-wahls/. I try to focus on eating more fruits and vegetables and a lot less meat – then mostly poultry.
One of the focus areas on Mayo Clinic's Regenerative Medicine Program is in neuroregeneration. You can read more here: https://www.mayo.edu/research/centers-programs/center-regenerative-medicine/focus-areas/neuroregeneration Scroll down the page and you can read clinical research being done specifically for peripheral nerve regeneration and repair.
Unfortunately, because of the complexity of the brain and spinal cord, little spontaneous regeneration, repair or healing occurs. Therefore, brain damage, paralysis from spinal cord injury and peripheral nerve damage are often permanent and incapacitating.
To learn more, you may wish to contact Mayo Clinic’s Regenerative Medicine free Consult Service. If you call them, you will talk to a live person who will provide more information, research, and advice on seeking stem cell therapy from reputable providers, even if that provider is not Mayo Clinic. Their primary goal is to educate and help you find effective treatment. Furthermore, you can add your name to a database to be notified when additional studies and information become available. Here’s more information about the stem cell Consult Service http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service. Or simply call 1-844-276-2003 to speak with one of our experts.
I also feel it important to add it is so important to do your homework and due diligence when researching new treatment options. Stem cells offer a lot of hope. But where these is hope, there is hype and charlatans.
– FDA acts to remove unproven, potentially harmful treatment used in ‘stem cell’ centers targeting vulnerable patients https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573427.htm
You can read more about stem cells on the FDA’s website here: https://www.fda.gov/AboutFDA/Transparency/Basics/ucm194655.htm
Liked by John, Volunteer Mentor, Dee, jlsoerens, marystefy
My wife of 42 years has neuropathy in her feet and it seems in just the past two years it’s getting harder for her to even walk. Can anyone tell me if stem cell therapy actually works before we waste thousands of dollars on something that lays claim with no results. We have tried everything and all the doctors want to do is give her pain killers. Thanks Dave
Hello @dsemloh, welcome to Mayo Clinic Connect. As promising as stem cell research is for a lot of things, I don't believe there has been any successful treatments for neuropathy. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where it will have more visibility. You might want to read through the discussion and meet other members who are discussing stem cell therapy for neuropathy.
Groups > Neuropathy > Stem Cell Therapy for Neuropathy
There are also some warnings about all the stem cell clinics popping up.
Consumer Updates > FDA Warns About Stem Cell Therapies
Does the pain make it harder for your wife to walk?
Liked by Dee
I have tried stem cell for neuropathy in my feet and legs I got shots in both legs and so far after five months it doesn’t look like it has worked.
Hi @dcl1128, Welcome to Mayo Clinic Connect. Thank you for sharing your experience with us. Are you able to share a little more about the stem cell treatments you received? Was it through a major health facility?
Liked by Dee, Lisa Lucier, Connect Moderator
Yes, my wife neuropathy is from diabetes. Sometimes she can’t even walk across the living room. When she does find the strength to go and do something she will pay for it the next day. We would love to find her some solid pain relief.
Has anyone done any stem cell injections in their feet for the treatment of peripheral neuropathy? If so what were the results?
Hi @stanstory, Welcome to Mayo Clinic Connect. There is another discussion for stem cell therapy for neuropathy where your post might receive more visibility. I'm tagging our moderator @lisalucier to see if we should move your post to this discussion:
While we wait, you might want to read through the discussion and learn what other members have shared. May I ask where you are contemplating going for the stem cell treatment? As far as I know there has not been a successful treatment for neuropathy using stem cell therapy so it would be great to hear.
Hello, @stanstory. I'd like to add my welcome to Mayo Clinic Connect. I've moved your post to the discussion @johnbishop mentioned, "Stem Cell Therapy for Neuropathy."
Hoping that members like @dcl1128 @jlsoerens @dsemloh will also join in to speak to whether they have tried stem cell injections in their feet for the treatment of peripheral neuropathy and any results, or what they may have found in looking into it, if it's not something they've yet tried. @jenniferhunter @gailfaith and @johnhans may also have some thoughts about this topic.
Will you share a little more about your background with peripheral neuropathy, @stanstory? When were you diagnosed? What kind of symptoms do you have from your neuropathy?
Liked by John, Volunteer Mentor, Dee
I have asked the same question. I have been to two different chiropractors and they offer stem cell injections into the feet and calves to treat neuropathy in the feet. I would like to hear from someone that has had this treatment and how the outcome was. It's expensive to have this done and want more info in the results. Maybe some will read this and help.
@stanstory — I have no medical training or background but just don't think the science is there yet for stem cell therapy for peripheral neuropathy.
We had a researcher speak at a meeting of the Minnesota Neuropathy Association on stem cell therapy research. I took some notes and added the research links when I got home. The last section of the notes details why the science is not there yet. I believe it's a big hope for all of us but right now there are a lot of people making money off of us folks with neuropathy making dubious claims that it works…and it's very expensive like you said. I certainly want it to be true and hope someone that has had it done will post their success or let us know if it helped.
My first call would be to the Better Business Bureau and see if there has been any complaints against the clinic doing the injections. I would also want to talk with more than one of their patients to see specifically what was done, what diagnosis they had and if it helped them.
Good luck whatever you decide. I know it's not easy to deal with neuropathy in your feet, legs or anywhere on the body. Probably my biggest concern is I wouldn't want to make it worse.
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