Does Stem Cell Therapy work for Neuropathy?

Posted by jlsoerens @jlsoerens, Jun 13, 2018

Does Mayo Clinic use stem cell therapy for neuropathic issues? Have any of you tried stem cell therapy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

has anyone tried Hyperbaric Oxegen Therapy for Neuropathy.?

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@navid80

has anyone tried Hyperbaric Oxegen Therapy for Neuropathy.?

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@navid80, I don't know much about HBOT therapy for peripheral neuropathy but there is other information about the therapy on Mayo Clinic's website here:

https://www.mayoclinic.org/tests-procedures/hyperbaric-oxygen-therapy/about/pac-20394380

@johnnyb talked about HBOT therapy in another discussion here but I don't know if he tried it due to the cost and not being covered by insurance or medicare:
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/?pg=47#comment-243265

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I have tried 80 hours of HBOT recently and found that it did help my neuropathy. Here is Canada, the HBOT cost was reasonable ($100CDN/hr); although I hear that it can be much more expensive in other places. When I started the HBOT my neuropathy pain was up to my waist (pin, needles, tingling, dull pain that is there 24/7 plus numbness and freezing/burning in my feet depending on whether I was standing or laying down). After the 80 hours, the neuropathy was below my knees and my legs were considerably stronger. If anyone if in Alberta, I can give you the contact name and phone number. Also: for SOME conditions, HBOT can be covered by our health care or a private plan; however, in my case it was NOt covered. I understand that open ulcers on the feet (caused by neuropathy) are covered by Alberta Health Care.

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@johnbishop

@navid80, I don't know much about HBOT therapy for peripheral neuropathy but there is other information about the therapy on Mayo Clinic's website here:

https://www.mayoclinic.org/tests-procedures/hyperbaric-oxygen-therapy/about/pac-20394380

@johnnyb talked about HBOT therapy in another discussion here but I don't know if he tried it due to the cost and not being covered by insurance or medicare:
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/?pg=47#comment-243265

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PLEASE to everyone --- please don't use acronyms -- the first time you use it spell it, then it is ok to use an acronym == thanks

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Agreed, but to be fair "navid80" had spelled it out (Hydrobaric Oxygen Therapy) and John and I were commenting/replying to his/her post.

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@ndttech

I have tried 80 hours of HBOT recently and found that it did help my neuropathy. Here is Canada, the HBOT cost was reasonable ($100CDN/hr); although I hear that it can be much more expensive in other places. When I started the HBOT my neuropathy pain was up to my waist (pin, needles, tingling, dull pain that is there 24/7 plus numbness and freezing/burning in my feet depending on whether I was standing or laying down). After the 80 hours, the neuropathy was below my knees and my legs were considerably stronger. If anyone if in Alberta, I can give you the contact name and phone number. Also: for SOME conditions, HBOT can be covered by our health care or a private plan; however, in my case it was NOt covered. I understand that open ulcers on the feet (caused by neuropathy) are covered by Alberta Health Care.

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Thanks, pre-much the same price in Arizona and not covered by insurance either. Do you know how much pressure (ATA) ?

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I guess there is a hope WinSantor is working hard on phase 2 that might be true cure for peripheral neuropathy

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@navid80

has anyone tried Hyperbaric Oxegen Therapy for Neuropathy.?

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I tried hyperbaric oxygen therapy for 40 days with no positive results. I have peripheral neuropathy that is very aggressive. Muscle loss, no balance, dropped feet.

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@lois6524

Be careful with stem cell injection -- it is very expensive, and it has not been proven from any studies I have seen to help with neuropathy. We want the pain to go away so badly, that we will jump at anything that we think might work. Read the following article from Consumer Reports (March 2018 issue)

Could this cell save your life?

Stem cell therapy is an accepted treatment for just a short list of medical conditions. And yet some cell stem treatments are being offered for a wide range of illnesses. Those treatments are often ineffective and sometimes dangerous.

“There is an important difference between the stem cell treatments emerging from slow and careful study and the ones being sold for the thousands of dollars without any evidence of safety or efficacy,” states Orly Avitzur, M.D., Consumer Reports’ medical director. “But that difference is not being made clear to consumers.”
“Some institutions use patient testimonials to promote treatments that have not been scientifically proven. They create the impression that even though it’s experimental, it really works.” says Leigh Turner PhD, Bioethicist, University of Minnesota.

How to protect yourself
The Food and Drug Administration (FDA), the international Society for Stem Cell research, and Consumer Reports medical experts advise you to be cautious when considering stem cell therapy.

Beware of the hype and hefty fees. Doctors testing stem cell treatment in carefully controlled clinical trials usually don’t promote their offerings with big, flashing advertisements that promised dramatic improvements or total cures. They also don’t charge a lot. There may be some minor fees for travel or other personal expenses, but the treatment itself should be free or low-cost to participants. “A large price tag – especially in the range of thousands of dollars – should be a major red flag,” says Marvin M Littman M.D., Consumer Reports chief medical adviser. So should any doctor claiming to treat a wide range of medical conditions, such as autism, arthritis, and erectile dysfunction, with the same therapy. Different organs and body systems require different expertise – and different medicine – to treat, which is why most doctors specialize.

Ask questions. Any doctor who offers stem cell therapy should be able to explain where the cells will come from, what will be done to them before they’re injected into your body, and how, exactly, they will resolve your illness or injury. He or she should also be able to offer you proof of safety and efficacy, even for experimental treatments. Don’t settle for patient testimonials. Ask how many people the proposed therapy has been tested on – the more the better – and whether those tests were done in clinical trials or individual case studies. (Randomized controlled trials, where people given a treatment are compared with a control group that wasn’t, are best.) It’s also important to find out what the outcomes were. Ideally, side effects were minimal and significantly more people improved than did not.

Read the fine print. If the treatment is being offered as a clinical trial, make sure the trial has been vetted by the FDA, a process known as securing investigative new drug approval. The agency advises that you ask to see the actual approval letter to make sure it has been issued specifically for the treatment you’re considering. Treatments that have cleared this hurdle are much more likely to be safe than those that have not. You should also make sure that any informed consent document – an explanation of the experimental treatments that study participants are usually asked to sign – provides a clear description of the treatment being offered along with the risks, alternative options, and details about what to expect in the days and weeks after the procedure. It should not indemnify doctors or their institutions against liability for negligence.

Excerpts from Consumer Reports -- March 2018 issue

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Buyer Beware. Excellent

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@navid80

Thanks, pre-much the same price in Arizona and not covered by insurance either. Do you know how much pressure (ATA) ?

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The pressure was less than two atmospheres, so, not too hard on the ears when pressuring up.
In reply to @ericvnelson. If you were in the chamber for 1-2 hours/day that may not have been enough. I went for 80 hours (out of a recommended 98) before I took a break for a vacation. The hyperbaric oxygen therapy (HBOT) had a beneficial effect for me but my neuropathy does not sound as severe as yours. Mine started in my feet and was up to my waist when I started HBOT. At the end of the 80 hours (every day from Dec 13 to Jan 25 with some 5 hour sessions) my legs were stronger and the pain was restricted to my lower legs. After my vacation, it has come back and is back up to my waist, so I may go back and take some more sessions. It may not be a cure, but it does seem to help.

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