Stem cell therapy for Ankylosing Spondylitis

Posted by brie @brie, Aug 28, 2019

Hello, I am curious about the effectiveness of stem cell therapy with Ankylosing Spondylitis or Autoimmune Illnesses. Has any one read or heard; is it available, does insurance cover it, is it effective?

Hi @brie, I don't know of any success stem cell treatment/therapy for any autoimmune disease but there is a good discussion for neuropathy that you might be interested in reading through to see what others have discussed. Normally it's not covered by insurance. Also I don't think there have been any clinical trials or FDA approval for any of these types of treatments so it's good to do a lot of research.

> Groups > Neuropathy > Stem Cell Therapy for Neuropathy
https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/

I did find an article on Science Direct from this year that might provide some information for you — Ankylosing spondylitis and mesenchymal stromal/stem cell therapy: a new therapeutic approach.
https://www.sciencedirect.com/science/article/pii/S0753332218356762

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@johnbishop

Hi @brie, I don't know of any success stem cell treatment/therapy for any autoimmune disease but there is a good discussion for neuropathy that you might be interested in reading through to see what others have discussed. Normally it's not covered by insurance. Also I don't think there have been any clinical trials or FDA approval for any of these types of treatments so it's good to do a lot of research.

> Groups > Neuropathy > Stem Cell Therapy for Neuropathy
https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/

I did find an article on Science Direct from this year that might provide some information for you — Ankylosing spondylitis and mesenchymal stromal/stem cell therapy: a new therapeutic approach.
https://www.sciencedirect.com/science/article/pii/S0753332218356762

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Hello John. Thanks for the info. I'll look it over.

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Regenerxx

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In reply to @reydelroble "Regenerxx" + (show)
@reydelroble

Hi @reydelroble, Welcome to Connect. Have you been treated at a Regenexx clinic? From what I understand it's an alternative to orthopedic surgery.

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No. I have done research and this is the only place I would consider if it would help. How do you treat a disease that jumps from one joint to another?

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@johnbishop

Hi @reydelroble, Welcome to Connect. Have you been treated at a Regenexx clinic? From what I understand it's an alternative to orthopedic surgery.

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Is Regenrexx a stem cell product?

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No. They are the ones who train doctors and treat conditions. Many quacks out there. https://regenexx.com/ Not sure if they can help us with RA…hoping.

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Hello, I am looking at working with bio Excelerator to receive 100% pure stem cell for my sciatic nerve pain. I have a meeting today with the doctors and I have a lot of questions that I plan to ask. Also, I have a short leg due to a pelvic imbalance. I am currently working with an osteopath to correct this but can stem cells and PRP stabilize my sacrum? Thank you

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@kreisbmb

Hello, I am looking at working with bio Excelerator to receive 100% pure stem cell for my sciatic nerve pain. I have a meeting today with the doctors and I have a lot of questions that I plan to ask. Also, I have a short leg due to a pelvic imbalance. I am currently working with an osteopath to correct this but can stem cells and PRP stabilize my sacrum? Thank you

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@kreisbmb
Good morning and welcome to MayoClinicConnect. You’ve asked about the efficacy of stem cell treatments for nerve pain and stabilizing your sacrum. I really don’t know about all the uses of stem cells because there is so much ongoing research . Mayo Clinic has some good information as does this article I found. https://www.closerlookatstemcells.org/stem-cells-medicine/nine-things-to-know-about-stem-cell-treatments/
Whatever you do, be very careful, because there are many unapproved uses and unlicensed practitioners who want to cash in on this new treatment. Keep doing your research and ask lots of questions! I’ll ask other members @reydelroble and @brie,who have also talked about stem cell therapy, to join our conversation. Let us know what you decide to do. This article from the Mayo Clinic May also be of interest.
https://www.mayoclinic.org/tests-procedures/bone-marrow-transplant/in-depth/stem-cells/art-20048117

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Thanks for the reply. I have another question. I had an mri if my hip and it stated that I have a congenital sulcus as oppose to a labrum tear, yet the sulcus produces clicking and pain in the Left hip, groin and leg buttock. Do you have any info o congenital sulcus? Thanks

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@kreisbmb

Thanks for the reply. I have another question. I had an mri if my hip and it stated that I have a congenital sulcus as oppose to a labrum tear, yet the sulcus produces clicking and pain in the Left hip, groin and leg buttock. Do you have any info o congenital sulcus? Thanks

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@kreisbmb I wasn’t good at finding anything! Sorry. I’m going to ask our internet guru @johnbishop to help. Were you reading the report of the MRI? You might want to talk to the doctor who ordered the test. If you are seeing your primary care doctor, ask him/her and explain the clicking and pain you experience. Another suggestion is to look at the group Bones, muscles and joints. You can access this by going to the 3 horizontal lines at the top right of this page. Click on groups, the group directory, and all the groups should show up. Click on the Bones, Muscles, and Joints group—it will open and you can see all the ongoing discussions. I hope this helps a little. But be sure to talk with your doctor

Liked by Dee

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@kreisbmb

Thanks for the reply. I have another question. I had an mri if my hip and it stated that I have a congenital sulcus as oppose to a labrum tear, yet the sulcus produces clicking and pain in the Left hip, groin and leg buttock. Do you have any info o congenital sulcus? Thanks

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@kreisbmb the following article talks about hip pain and a clicking sound but it's under the section for a hip labral tear. I couldn't find any information that it might be caused by a congenital sulcus. Has your doctor mentioned specifically what it causing the clicking and the pain?

Why Does My Hip Hurt When I Stand or Walk, and How Can I Treat It?
https://www.healthline.com/health/hip-pain-when-standing

Hip pain | Causes, exercises, treatments | Versus Arthritis
https://www.versusarthritis.org/about-arthritis/conditions/hip-pain/

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Unfortunately, I have not brought that up to my primary care doctor. I’ve tried Nanking appointments with the Cleveland clinic orthopedist in Florida, but I am on bed rest after my biopsy. I’ll get answers soon. I attached a copy of the mri report, the impression states congenital sulcus versus detachment. So confused.

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@johnbishop

@kreisbmb the following article talks about hip pain and a clicking sound but it's under the section for a hip labral tear. I couldn't find any information that it might be caused by a congenital sulcus. Has your doctor mentioned specifically what it causing the clicking and the pain?

Why Does My Hip Hurt When I Stand or Walk, and How Can I Treat It?
https://www.healthline.com/health/hip-pain-when-standing

Hip pain | Causes, exercises, treatments | Versus Arthritis
https://www.versusarthritis.org/about-arthritis/conditions/hip-pain/

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Thanks so very, very much for sharing this very informative information. Rose

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@kreisbmb

Unfortunately, I have not brought that up to my primary care doctor. I’ve tried Nanking appointments with the Cleveland clinic orthopedist in Florida, but I am on bed rest after my biopsy. I’ll get answers soon. I attached a copy of the mri report, the impression states congenital sulcus versus detachment. So confused.

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Hi @kreisbmb, please note that I removed the image of your MRI report. It contained your patient ID number (MRN) and other identifying information, which is not advisable in a open forum. Feel free to share the report again with personal identifying information blacked out or removed.

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