Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

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@llynch17056 I took a break from Repatha and Zetia to see if the muscle pain, nausea etc. was from drugs or other issues with my autoimmune. Some things did get better. It did a great job on my lipid panel. I need to go on something as I have familial hypercholesteremia. Diet, exercise help a little but not enough. My LPa and ApoB were extremely high and hsCRP was not normal. I may go back on it and if issues come back, I will stop and try to find something that works. My Glucose did jump to 107 and when stopped, it went back to 93.

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@loyd1957 Nexletol supposedly is for people that are statin and Repatha intolerant. So far I don’t have side effects 6 weeks in. I had terrible side effects on every other statin and on Repatha. I also started micro dosing Terzepitide for LPa and it did come down.

In my mind living life isn’t dependent on certain numbers. Also, they keep lowering the number they say you should have. I am skeptical about the whole numbers thing. Maybe some people really need lower numbers, who truly knows, but it is well documented that there are people that naturally have higher numbers and are healthy and stay healthy. My grandfather and my father died of heart attacks. My grandfather ate the food of the time ( full of pesticides), didn’t exercise and smoked. My father the same but he exercised and quit smoking after his first heart attack. My father took statins and died of a heart attack at 82.

My new cardiologist said that I should have lower numbers and that I have some plaque. But, for the first time, he admitted that I was healthy and not at risk of death from my heart any time soon. For 30 years my doctors implied I was at death’s door because I didn’t take statins. Like I told my daughter, at 78, if I died tomorrow no one will say “oh, she died young!” I am in a normal age range to die. If there are drugs that make me feel good and live longer, then, yay! Give them to me! But, if they make me sick and don’t cure me, then, no. I just want a happy healthy life which I hope is much longer, but longer is not better if you feel terrible.

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