squamous cell in throat

Posted by jimchardy @jimchardy, Sep 30, 2018

I started developing a lesion in my throat about two months ago. It has recently become more aggressive to the point it has opened a hole in the back of my throat and liquids come out my nose when I swallow.

Any advice on this conditions implications would be appreciated..

I’m so happy for you! Positive outlook has so much power in treatment, I know my husband’s positive outlook helped him too! You can do it…..in Nov he was in remission and will be checked with CT every 3 months and hopefully he will be labeled cancer free after 5 years. All the best and keep up that positive outlook kiddo!! 🤓🤗

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@jimchardy

Today I will undergo the 17th radiation treatment on my squamous cell carcinoma and initial signs of radiation burn are appearing on both sides of my throat. I am applying Aquaphor to treat it. I did find out that my tumor is HPV positive and the size of the tumor is already shrinking significantly. My side effects are mild, so far, compared with those others in this thread have experienced-a mild sore throat along with moderate swallowing difficulty. If no more significant issues develop, I will consider myself fortunate.

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You are doing very well after 17 treatments. It will probably get worse but this is a good sign! And HPV is easier to treat. I'm really glad for you.

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get to a ear nose and throat dr NOW….my husband is in his 4th year of remission but he had to go through a lot to get to this point. Arizona oncology is also a good ave . to take…DO IT NOW…!!!!!!

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An ear and throat oncologist surgeon at Oregon Health Sciences University is where this all began. He had a tissue sample from my throat biopsied to determine if my "suspicious appearing" lump in my throat was cancer and everything thereafter is a result.

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I cannot loose sight of the fact that I am also dealing with stage 4 renal cell carcinoma, five years post diagnosis, so I am heavily dependant upon friends and family to keep me positive.

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@jimchardy

I cannot loose sight of the fact that I am also dealing with stage 4 renal cell carcinoma, five years post diagnosis, so I am heavily dependant upon friends and family to keep me positive.

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Hey Jim, so good to get an update from you. Here are a couple of additional discussions on Connect that may interest you:

– radiation burns https://connect.mayoclinic.org/discussion/radiation-burns/ Members share tips on managing, soothing and preventing radiation burn.
– Talking Frankly about Living with Advanced Cancer https://connect.mayoclinic.org/discussion/talking-frankly-about-living-with-advanced-cancer/ Members say what's on their mind, no judgement. It can be good to have a place to talk about the stuff that one is reluctant to share with those close to them.

Welcome to Connect, @bond007 (I can't believe your username wasn't taken already, LOL) Do you have throat cancer or a head and neck cancer?

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@colleenyoung

Hey Jim, so good to get an update from you. Here are a couple of additional discussions on Connect that may interest you:

– radiation burns https://connect.mayoclinic.org/discussion/radiation-burns/ Members share tips on managing, soothing and preventing radiation burn.
– Talking Frankly about Living with Advanced Cancer https://connect.mayoclinic.org/discussion/talking-frankly-about-living-with-advanced-cancer/ Members say what's on their mind, no judgement. It can be good to have a place to talk about the stuff that one is reluctant to share with those close to them.

Welcome to Connect, @bond007 (I can't believe your username wasn't taken already, LOL) Do you have throat cancer or a head and neck cancer?

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I have HPV throat cancer consisting of a tumor near my left tonsil plus some small lesions in my lymph nodes on the right side. I am at radiation treatment 18 today and just seeing radiation burns beginning on both sides of my throat. I am treating the burn with aquaphor.

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Hi Jim, It is good to hear from you again.
I had 40 radiation treatments five years ago, so I know what you are going through right now. I was very successful in treating the burns with aloe. I started with aquaphor, tons of it just right after radiation; but later in the day, I would rest with slices of fresh cooled aloe on the radiated area. I would even cut a small piece, and let it melt in my mouth. If you are willing to experiment with this, I can give you further instructions.
Best to you, Loli

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@jimchardy

I have HPV throat cancer consisting of a tumor near my left tonsil plus some small lesions in my lymph nodes on the right side. I am at radiation treatment 18 today and just seeing radiation burns beginning on both sides of my throat. I am treating the burn with aquaphor.

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My husband is going through the same thing you are……right now we are in 1 month remission. He had 7 weeks of radiation and 6 weeks of chemo X1 per week. I know what you are going through and hopefully I can give you some tips. We kept a bottle of aloe in the frig, when ithe burns got really bad he would squirt on hands and apply to the neck. He did use asphor quite a bit from the beginning to about a month after treatments. I’m not sure if this was good, but at the end of treatments he started keeping those in frig as well. I wish you all the best I. Your treatments. Yes it has to be hard but the reward is so great!

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@margieinia

My husband is going through the same thing you are……right now we are in 1 month remission. He had 7 weeks of radiation and 6 weeks of chemo X1 per week. I know what you are going through and hopefully I can give you some tips. We kept a bottle of aloe in the frig, when ithe burns got really bad he would squirt on hands and apply to the neck. He did use asphor quite a bit from the beginning to about a month after treatments. I’m not sure if this was good, but at the end of treatments he started keeping those in frig as well. I wish you all the best I. Your treatments. Yes it has to be hard but the reward is so great!

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Thank you for your insight and advice. I will keep the idea about aloe in mind as we do have aloe plants we tend for summer sun bburns.

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@loli

Hi Jim, It is good to hear from you again.
I had 40 radiation treatments five years ago, so I know what you are going through right now. I was very successful in treating the burns with aloe. I started with aquaphor, tons of it just right after radiation; but later in the day, I would rest with slices of fresh cooled aloe on the radiated area. I would even cut a small piece, and let it melt in my mouth. If you are willing to experiment with this, I can give you further instructions.
Best to you, Loli

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Thank you. I would appreciate your instructions regarding use storage of aloe. We grow aloe plants and this could prove valuable to us.
Jim

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Under went 7 weeks of chemo once a week and 7 weeks of proton radiation for a base of tongue cancer that was inside the tongue and so not really operable. Designated as Stage II HPV-16 squamous cell – had an enlarged right lymph gland and a partially sowllen left lymph gland.
Almost impossible to swallow about 2 weeks into the treatment as the tumor was getting larger and had the stomach tube put in. Saved my life.
Finished treatment on 7 Dec and stayed a few days before traveling 5 hours home. Originally was told that I could start swallowing and expect some relief about 2 weeks into recovery, but then was told that 1st 3 weeks get progressively worse and then will start to improve. The second advice was correct. Make sure who you listen to even at Mayo.
Supposedly prognosis is very good, but am just starting into the 4th week and the phlegm is finally getting a bit better. Staying with 15 ml of Tussin very 4 hours or so, and some child's Benadryl 1-5 ml as need to help dry up.
Pain – got off the 12mcg fentanyl patch a day or so ago, and take liquid adult tylenol 1000 ml every 6 hours per doctor. Adding oxycodone if needed to sleep.
Throat pain a little less, but even small sips of water go down hard. ANYTHING too warm burns going down, ie, tried a small sip of chicken broth tonight.
Trying to dry swallow and it's painful – but as I was told, gets a little better every few days.
Hoping to eat mushy stuff in a week or so. Had looked forward to grilled ham and cheese 6 weeks after treatment – doesn't seem possible right now…

Doc said 7 weeks plus for normal food but to get on the tongue exercises – they will help.

Feeding tube : KEEP that thing SNUG else food will leak out and irritate the skin where the surgeons tried to put 'button' stitches to hold the tube against the stomach wall. Didnt watch it and missed washing until late in the day and the dried food had irritated the skin where the scar was form the button, it started to bleed. CLEAN the area 3 times a day if need be. Ended up washing well and putting some bacitracin on the area and it helped tremendously.

Hope the 90% five year survival the doc told me applies to me still – that they told me at the beginning of treatment. Expect to go longer but will have to see.

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@wayno1234

Under went 7 weeks of chemo once a week and 7 weeks of proton radiation for a base of tongue cancer that was inside the tongue and so not really operable. Designated as Stage II HPV-16 squamous cell – had an enlarged right lymph gland and a partially sowllen left lymph gland.
Almost impossible to swallow about 2 weeks into the treatment as the tumor was getting larger and had the stomach tube put in. Saved my life.
Finished treatment on 7 Dec and stayed a few days before traveling 5 hours home. Originally was told that I could start swallowing and expect some relief about 2 weeks into recovery, but then was told that 1st 3 weeks get progressively worse and then will start to improve. The second advice was correct. Make sure who you listen to even at Mayo.
Supposedly prognosis is very good, but am just starting into the 4th week and the phlegm is finally getting a bit better. Staying with 15 ml of Tussin very 4 hours or so, and some child's Benadryl 1-5 ml as need to help dry up.
Pain – got off the 12mcg fentanyl patch a day or so ago, and take liquid adult tylenol 1000 ml every 6 hours per doctor. Adding oxycodone if needed to sleep.
Throat pain a little less, but even small sips of water go down hard. ANYTHING too warm burns going down, ie, tried a small sip of chicken broth tonight.
Trying to dry swallow and it's painful – but as I was told, gets a little better every few days.
Hoping to eat mushy stuff in a week or so. Had looked forward to grilled ham and cheese 6 weeks after treatment – doesn't seem possible right now…

Doc said 7 weeks plus for normal food but to get on the tongue exercises – they will help.

Feeding tube : KEEP that thing SNUG else food will leak out and irritate the skin where the surgeons tried to put 'button' stitches to hold the tube against the stomach wall. Didnt watch it and missed washing until late in the day and the dried food had irritated the skin where the scar was form the button, it started to bleed. CLEAN the area 3 times a day if need be. Ended up washing well and putting some bacitracin on the area and it helped tremendously.

Hope the 90% five year survival the doc told me applies to me still – that they told me at the beginning of treatment. Expect to go longer but will have to see.

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@wayno1234 Sounds as if you are coping very well. I agree about the worsening discomfort/pain in the 2-3 weeks after treatment. Apparently the radiation keeps working. And from what I know HPV throat cancer is eminently curable so you have a good life to look forward to once the side effects wear off. I had non-HPV head and neck cancer, mainly surgery but have also endured the radiation which was a big ordeal with a big improvement a couple of weeks after treatment. Mine was not to the throat though but to the jaw area. Congratulations on getting through this and taking such good care of yourself

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@alpaca

@wayno1234 Sounds as if you are coping very well. I agree about the worsening discomfort/pain in the 2-3 weeks after treatment. Apparently the radiation keeps working. And from what I know HPV throat cancer is eminently curable so you have a good life to look forward to once the side effects wear off. I had non-HPV head and neck cancer, mainly surgery but have also endured the radiation which was a big ordeal with a big improvement a couple of weeks after treatment. Mine was not to the throat though but to the jaw area. Congratulations on getting through this and taking such good care of yourself

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Thank you and CONGRATS on making it through yours. Hope yours is long term survivable as well.
The current thick mucous problem is a bit alleviated by 10-15 ml of the Tussin, My opening at the base of the tongue still allows some seepage of mucous when I fall asleep leaning back – am hoping that time will alleviate that..

Thanks again!

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@wayno1234

Thank you and CONGRATS on making it through yours. Hope yours is long term survivable as well.
The current thick mucous problem is a bit alleviated by 10-15 ml of the Tussin, My opening at the base of the tongue still allows some seepage of mucous when I fall asleep leaning back – am hoping that time will alleviate that..

Thanks again!

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Thanks, Wayno. Last night I suffered an unfortunate relapse and felt like I was ready to give up! Couldn't breathe right, felt terrible all night. I stayed in bed for nearly 20 hours! Feeling okay this morning, but still have no appetite and am losing lots of weight. Glad I have only two treatments left and will be receiving hydration infusions for at least another week.

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