squamous cell in throat

Posted by jimchardy @jimchardy, Sep 30, 2018

I started developing a lesion in my throat about two months ago. It has recently become more aggressive to the point it has opened a hole in the back of my throat and liquids come out my nose when I swallow.

Any advice on this conditions implications would be appreciated..

@colleenyoung

Hi all, I thought you might also appreciated this Video Q&A about HPV-related Tongue and Tonsil Cancer. Daniel Ma, M.D., assistant professor in radiation oncology and an expert in treating head and neck cancer, and Eric Moore, M.D., professor of head and neck surgery talk about tonsil and base of tongue cancer, human papilloma virus (HPV) and its relationship to cancers in the throat. They also discuss state of the art care and clinical trials for treatment of patients with HPV-related cancer. Drs. Ma and Moore co-direct the multidisciplinary oropharyngeal cancer clinic at Mayo Clinic.
https://connect.mayoclinic.org/webinar/video-qa-about-hpv-related-tongue-and-tonsil-cancer/

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No mention was made in the biopsy report of HPV, so I am not sure this is relevant. Thank you for the feed back.
Jim Hardy

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It is a battle, as you know from your renal cancer, but you can get thru it. I have an friend with Stage lV renal adenocarcinoma who even had a brain met 8 years after initial surgery and he is going strong over 20 years later. His had invaded his femur and hip. He has done the immune therapy from the clinic in the Bahamas for many years, where I met him. I have stage lll non-hpv SCC of my middle ear, with 2 lung mets over the 6 1/2 year course. I recommend research into Immune supplements, especially beta glucan, to work with your medical treatment. Radiation to the throat is brutal, often needing a feeding tube to get thru, but you are strong and you can do it. I had a targeted EGFR chemo during my 35 radiation treatments and so far no recurrence at the site on my skull. HPV associated SCC is more receptive to treatment, but accumulate your own information thru research and make your decisions with doctor's advice.

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Thank you very much for your encouraging words and information. It is extremely heartening to hear of such success stories and gives me here-to-for unprecedented hope for long lasting survival. The only immune system treatment my oncologist is using is Opdivo, for whose success I am very anticipatory.

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Just visited with my radiation oncologist and I am leaning toward a seven week treatment that requires one 15 minute treatment, five days per week. Considerable soreness in the throat is one of the more severe side effects, but it should abate shortly after treatment ends. This option is a cure for the cancer. The other option is less severe in side effects but would likely allow the cancer to return and be fatal if it does.

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@jimchardy

Just visited with my radiation oncologist and I am leaning toward a seven week treatment that requires one 15 minute treatment, five days per week. Considerable soreness in the throat is one of the more severe side effects, but it should abate shortly after treatment ends. This option is a cure for the cancer. The other option is less severe in side effects but would likely allow the cancer to return and be fatal if it does.

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This is the exact treatment I had with the addition of two mega doses of Cisplatin.

I won’t lie it’s a very hard treatment but very doable and I believe in you as all of us that have gone through the treatment.

You will lose your taste buds but they will return. Maintaining weight is very important so don’t be opposed to a feeding tube if it is suggested.

Also utilize the dietician,speech therapist and fatigue management therapist.

You can do this we are all behind you.

After your battle you will be a mentor to millions.

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After my surgery to remove the tumor in my tonsil, I refused radiation because it scared the hell out of me. I saw what it did to my dad and others. I finally submitted to both after a growth appeared starting from my ear to my chin, under my jaw. It was like a banana, huge. I went on chemo and the tumor subsided immediately! After several treatments, it was gone. It really did a wonderful job. So then, I opted for the radiation as well. I underwent 38 treatments. By the end, I was on a feeding tube, couldn't be understood, and went from a 280lb body weight on a 6'6" frame, down to 189lbs. Weak, frail, and no energy. I had open sores on my neck from the burning. It was awful. The doctor wanted to stop at 37, and I said being I came this far lets finish it with the kudagraw. My question to you, what did the doctors say about chemo? How successful is it with this kind of cancer?

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My question to you is: why did you elect to have radiation treatment when the chemo therapy was so successful?

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in hind sight I shouldn't have! I submitted after a five year refusal. Knowing what I know today I would not have had surgery or radiation. My Doctor recommended it after chemo. They get paid well for radiation treatments. They love to make money! And act like they care. Do what you want. I'd just ask more questions concerning chemo and see what they say. The chemo people know what works good on sq-cell. The surgeons like to operate, and don't necessarily like tell you how well chemo works. Radiation almost killed me. I will never have it again, I would rather die!

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I have been advised by two oncologists, one a surgeon and one a radiation doctor that the only effective treatment available to cure my squamous cell is radiation, so I am going to have to deal with the side effects.

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@jimchardy

I have been advised by two oncologists, one a surgeon and one a radiation doctor that the only effective treatment available to cure my squamous cell is radiation, so I am going to have to deal with the side effects.

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Hi @jimchardy Yes, radiation has side effects but it kills cancer cells and decades of data have shown that it is successful against SCC. The side effects are the price we pay for life and while it is a very hard process, the worst is over two weeks after treatment ends. Radiation oncology clinics around the world know how to look after patients. You see the team every Monday to Friday and have constant contact. You need to follow all advice, even if it means being tube fed and bring in all helpers you can for transport and support. I really wish you well. I finished treatment in 2014 and keep in touch with many head and neck cancer patients so if you have any questions feel free to ask:)

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Thank you for your words of support and enc

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I was advised that my squamous cell carcinoma is HPV and have undergone three radiation treatments. I spit up a noticeable amount of bright red blood a couple of nights ago. Am concerned with the cause of this

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@jimchardy

I was advised that my squamous cell carcinoma is HPV and have undergone three radiation treatments. I spit up a noticeable amount of bright red blood a couple of nights ago. Am concerned with the cause of this

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That must have been alarming. You will see the team in the morning? You probably have by now. Wish you well.

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@jimchardy

I have some difficulty with swallowing and I can open my mouth only about half way. My wife is being very accomodating with smoothies and soft foods that are easy to chew. I did have a throat surgeon take a sample of the tiisue and have it biopsied and is is squamous cell cancer. It is acting very aggressive in that a hole has opmened in my throat near my tonsils. We are very concerned about this behavior and are scheduling a P.E.T scan next tuesday to get more input on what is involved.

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Hi Jim, how are you? I came late to this post; but here I am. I see that you cannot open your mouth very well. It will get worse with radiation. My husband made me several light wood pieces, one inch by three and maybe 1/8 thick. I stack them up and put them in my mouth, and started adding them as much as I could bear. That is to open my mouth and not let it close anymore. This was five years ago. I can only stick two fingers wide in my mouth, but it could have been worse. It is hard not to be able to bite an apple, or a hamburger, or a sandwich.; but that is the least of our problems, right? I would love to hear from you and how you are doing. Loli

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Today I will undergo the 17th radiation treatment on my squamous cell carcinoma and initial signs of radiation burn are appearing on both sides of my throat. I am applying Aquaphor to treat it. I did find out that my tumor is HPV positive and the size of the tumor is already shrinking significantly. My side effects are mild, so far, compared with those others in this thread have experienced-a mild sore throat along with moderate swallowing difficulty. If no more significant issues develop, I will consider myself fortunate.

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