Spinal CSF leaks

Posted by Craig @wcf, Aug 11, 2021

Has anyone had an experience dealing with a chronic post laminectomy CSF leak or
a Pseudomeningocele?

Interested in more discussions like this? Go to the Spine Health group.

@wcf Hello Craig, and welcome to Connect. I am a spine surgery patient, and I wanted to share with you this link to a discussion and information about CSF leaks.
https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/cerebral-spinal-fluid-leaks-are-commonly-misdiagnosed/
What symptoms have you been experiencing?

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Thank you Jennifer for the link, i'll check it out.
Recent MRI reveals a "prior L4-L5 level laminectomy. A CSF intensity collection is identified within the laminectomy
tract which represents a pseudomeningocele". The symptoms I have are severe low back pain mostly left of center which increases with walking and bending, worsening double vision and left ear pusitile tinintus, dull headache.
Doctors here locally are not concernned since no negative findings from lower limb EMG studies. They say just "go see
pain management". Strangely, some Neurologists have never seen a L4-L5 CSF leak. ???

REPLY
@wcf

Thank you Jennifer for the link, i'll check it out.
Recent MRI reveals a "prior L4-L5 level laminectomy. A CSF intensity collection is identified within the laminectomy
tract which represents a pseudomeningocele". The symptoms I have are severe low back pain mostly left of center which increases with walking and bending, worsening double vision and left ear pusitile tinintus, dull headache.
Doctors here locally are not concernned since no negative findings from lower limb EMG studies. They say just "go see
pain management". Strangely, some Neurologists have never seen a L4-L5 CSF leak. ???

Jump to this post

Google Tennant Foundation and sign up for their bulletin. Hopefully you have a dr. open to other possibilities. Pain Mgmt too busy, and,,at least on east coast closed to to learning something outside their source. But who knows? Just maybe you will find someone. Oh. You can also get some info On YouTube, on Dr. Forest Tennant. He does little info blurbs (non-monetary focused) about five minute long on Arachnoiditis.

Best of,lick in your seeking, and keep moqving – Judith

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@wcf

Thank you Jennifer for the link, i'll check it out.
Recent MRI reveals a "prior L4-L5 level laminectomy. A CSF intensity collection is identified within the laminectomy
tract which represents a pseudomeningocele". The symptoms I have are severe low back pain mostly left of center which increases with walking and bending, worsening double vision and left ear pusitile tinintus, dull headache.
Doctors here locally are not concernned since no negative findings from lower limb EMG studies. They say just "go see
pain management". Strangely, some Neurologists have never seen a L4-L5 CSF leak. ???

Jump to this post

@wcf Craig, thanks for posting your report findings which do clearly state that there is a leak of cerebral spinal fluid. I looked up the term, "pseudomeningocele" and that is what it means. Is it your spine surgeon who is dismissive of these results? Would you consider getting another opinion? This must be an awful thing to live with and there is a neurologist at Mayo who treats this condition.

From the link I sent in the prior post, there is a video of Dr. Jeremy Cutsforth who treats CSF leaks. Here is his profile. https://www.mayoclinic.org/biographies/cutsforth-gregory-jeremy-k-m-d/bio-20213586

If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

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