Spinal CSF leaks

Posted by Craig @wcf, Aug 11, 2021

Has anyone had an experience dealing with a chronic post laminectomy CSF leak or
a Pseudomeningocele?

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@colleenyoung

Welcome @cody708. I moved your question about cerebral spinal fluid (CSF) leak to this existing discussion:
- Spinal CSF leaks https://connect.mayoclinic.org/discussion/spinal-csf-leaks/

I did this so you can read previous posts and connect with other members like @jenniferhunter @wcf @kygirl58 @janblue @summerstar @cmweston and others.

If you would like to request an appointment at Mayo Clinic, here is all the information to get started http://mayocl.in/1mtmR63

What options are being suggested by your ENT?

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Since my last post, thankfully I have gotten into the Mayo Clinic. I had surgery on June 26th. Unfortunately they found 3 more leaks and will need another surgery. Also bringing in a neurosurgeon to figure out why I have so much pressure building up. With them talking about cutting the top of my skull and pealing back my scalp and 100% chance of losing my smell it gets scary. Then I saw this at the Mayo:
“We treat the untreatable
Fix the unfixable
Cure the uncurable”
Something about that made me feel better. I know I’m at the best hospital with the best doctors! Still scary, but I wouldn’t want to be anywhere else.

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i dont know if im posting correctly but i was recently told i have a csf leak based on fluid collection in my cervical and thoratic spine location of leak is unknown right now but the mri al shows i have superficial siderosis which i read a csf can cause has an anyone had the same and does it go away if the csf leak is successfully treated

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@noellew

i dont know if im posting correctly but i was recently told i have a csf leak based on fluid collection in my cervical and thoratic spine location of leak is unknown right now but the mri al shows i have superficial siderosis which i read a csf can cause has an anyone had the same and does it go away if the csf leak is successfully treated

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@noellew Hello and welcome to Connect. I don't have experience with your symptoms, but I wanted to share this Mayo story with you about a patient with Superficial Siderosis.

https://newsnetwork.mayoclinic.org/discussion/fixing-a-tiny-leak-makes-a-big-difference-for-steve-grinstead/

Are you consulting a surgeon about treatment?

Jennifer

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@jenniferhunter

@noellew Hello and welcome to Connect. I don't have experience with your symptoms, but I wanted to share this Mayo story with you about a patient with Superficial Siderosis.

https://newsnetwork.mayoclinic.org/discussion/fixing-a-tiny-leak-makes-a-big-difference-for-steve-grinstead/

Are you consulting a surgeon about treatment?

Jennifer

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ty for sharing the story i will read it here soon
it was only recently discovered on the 16th of january it the mri says areas of it ,so no treatment has been talked about other than for the csf leak
and today my regular dr tells . e its not a disease or anything to worry about , so . now i dont know what to think

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@noellew

ty for sharing the story i will read it here soon
it was only recently discovered on the 16th of january it the mri says areas of it ,so no treatment has been talked about other than for the csf leak
and today my regular dr tells . e its not a disease or anything to worry about , so . now i dont know what to think

Jump to this post

@noellew Are you seeing a spine specialist about the CSF leak? That would probably be an opinion that matters.

Jennifer

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