Spiculated nodule & adenocarcinoma th

hi @sallik74 - it's hard when you have time between getting your results and speaking with your doctor. I wouldn't worry too much about the nurse's comment. that said, I would absolutely ask about a biopsy in your upcoming appointment. I would also ask what the dr thinks is causing the ground glass opacities listed on your radiology report. for now you can make a list of all of your questions ahead of your appointment. also consider getting a second opinion from a NIH/academic cancer center (if you aren't already being seen at one.)

@mamajite
I drive 2 hours to Siteman Cancer Center in St Louis MO. I am thinking of going to get a 2nd opinion either in Chicago @ Northwestern or Mayo in Rochester MN.
I will put that on my list about what could be the cause of ground glass
Thank you so much 💓

@sallik74- Good Morning. I had a CT Lung screening and they found a spiculated nodule that had been growing for 9 years. Then I had my testing and procedures done at Mayo in Phoenix, AZ. I had a spiculated nodule in my left upper lung. They did a PET scan, barely lit up, bronchoscopy, then a breathing test, stress tests, etc. They did a Segmentectomy and then did a biopsy and marker testing on the nodule after they got it out. It was adenocarcinoma- KRAS mutation. They knew it was cancer before they even took it out. Fine with me! I wanted it out. The Pulmonologist said he didn’t need a biopsy because he has seen enough of them to know it was cancer. But, I could always request a biopsy if I wanted one before the surgery. I trust Mayo, so I didn’t see a need for it, and he was correct in his diagnosis. If you prefer to have a biopsy first, demand one. You have to feel comfortable with your Doctors and Surgeons and what they are telling you. If not, yea, go where you trust. God Bless you, and Beat wishes for you!

@cmcguire10
What was the size of your nodule?
My nodule per PET is very bright.
I haven't met the surgeon yet I hope I get the feel that I trust her!
I don't understand why the pulmonologist locally who did the bronchoscopy 2 years ago said it was not malignant?
Thank you for helping me on this journey.
Your response has helped ease my mind

@sallik74 The first time is was noticed it was 8mm, 9 years later it was 22mm. I never got notified when it was found the first time! PET scans can light up inflammation and infections as well, but these nodules were there 2 years ago, that probably isn’t the case. Your nodules may not have been cancerous yet? I don’t know. It is best to get on it and not wait. That is, seeing a specialist, pulmonologist, Surgeon, etc. Like I said, just make sure you feel comfortable and that whatever they say, truly makes sense to you, or get a second opinion. You have to believe in the Doctor you choose. It sure helps when you go through all the processes.

@sallik74 this list of questions to ask your doctor from the American Cancer Association is a good reference.
https://www.cancer.org/cancer/making-treatment-decisions/questions-to-ask-your-doctor.html

@cmcguire10
I agree about feeling comfortable with your Dr.
I already did away with my oncologist in Quincy. We never did see eye to eye & felt like I was just another person with cancer.

@mamajite
Thank you !
I really didn't know where to start on questions

Sometimes a nodule is in a place too difficult or unsafe to biopsy by needle or endoscope. When that happens they will do a resection to complete a biopsy.

As for the ground glass nodule, they cannot biopsy something that is not solid. Many disappear by themselves others may take years before they start to become solud (if ever). I have ground glass nodules that were present on a CT 15 years ago that are still there and unchanged.

@denzie
I had a bronchoscopy 2 years ago & the tissue was inadequate.
I will have answers Tuesday after my consultation.
Thank you & prayers for all fighting the fight !