Spasticity?

Posted by aarniek @aarniek, Apr 7, 2018

I have been living in my recliner for over 5 years as this muscle spasticity keeps me from walking more than a few feet! It's due to stopping a Benzo with a 5 week taper and 3 neurologists have done nothing for me! Anyone find something to help?( I even had Botox and it did nothing)

Interested in more discussions like this? Go to the Brain & Nervous System group.

posted by Sharon Allen@sharon

I am a 76 yr. old woman and a stroke survivor of 8 years and 1 month. I began to have really bad spasms in about 2016 and have had 2 severe incidences of drug over doses resulting in medication changes and resulting in my current condition called SPASTICITY, now I am unable to walk at all and I am loosing more mobility every days! IDEAS WELCOME, currently waiting to have a Baclophen pump put in.

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@sharonalllen

posted by Sharon Allen@sharon

I am a 76 yr. old woman and a stroke survivor of 8 years and 1 month. I began to have really bad spasms in about 2016 and have had 2 severe incidences of drug over doses resulting in medication changes and resulting in my current condition called SPASTICITY, now I am unable to walk at all and I am loosing more mobility every days! IDEAS WELCOME, currently waiting to have a Baclophen pump put in.

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Hi, @sharonalllen – You'll note I moved your post to this current discussion, "Spasticity," so that you can meet other members talking about this similar situations. Click VIEW & REPLY in the email notification, and you will be able to read through the past messages on this topic.

I'd also like to introduce you to @12271997 @hopeful33250 @oakbourne @aarniek @magg @maryar and others. I trust they will have some insights for you on losing more mobility every day as well as the intrathecal baclofen pump you are waiting to have put in.

Here is some Mayo Clinic information on on baclofen https://www.mayoclinic.org/drugs-supplements/baclofen-intrathecal-route/description/drg-20062155.

How are you feeling about this pump you will be having put in, @sharonalllen? Do you have a date for the surgical procedure for the placement?

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@sharonalllen

posted by Sharon Allen@sharon

I am a 76 yr. old woman and a stroke survivor of 8 years and 1 month. I began to have really bad spasms in about 2016 and have had 2 severe incidences of drug over doses resulting in medication changes and resulting in my current condition called SPASTICITY, now I am unable to walk at all and I am loosing more mobility every days! IDEAS WELCOME, currently waiting to have a Baclophen pump put in.

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Hello @sharonalllen
I'm sorry to hear of your spasticity. What part of your body is the spasticity centered? I have a Parkinson's disorder and I experience intermittent spasticity in my thighs. I have found that physical therapy (PT) and regular exercise (especially range of motion/stretching exercises) have helped a great deal.

What type of PT and exercises have you tried since your stroke?

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@hopeful33250

Hello @sharonalllen
I'm sorry to hear of your spasticity. What part of your body is the spasticity centered? I have a Parkinson's disorder and I experience intermittent spasticity in my thighs. I have found that physical therapy (PT) and regular exercise (especially range of motion/stretching exercises) have helped a great deal.

What type of PT and exercises have you tried since your stroke?

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@hopeful33250,
I am an avid exerciser and I had to stop because it caused me to have severe pain for several hours after, because I have stopped moving, my condition has become more severe than ever, thus my research into a Baclophen pump.

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@sharonalllen

@hopeful33250,
I am an avid exerciser and I had to stop because it caused me to have severe pain for several hours after, because I have stopped moving, my condition has become more severe than ever, thus my research into a Baclophen pump.

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Hmmm, I'm sorry to hear that, @sharonalllen.

Do even gentle stretches cause you pain? You might check out YouTube videos with the search set for "seated exercises for seniors." Also, Parkinson's patients have the same type of spasticity so you might find "exercises for Parkinson's" to be helpful. I've also used YouTube Tai-Chi for beginners (there are some 9 minute Tai-Chi for beginners YouTube videos).

Ever tried any of these?

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@lisalucier

Hi, @sharonalllen – You'll note I moved your post to this current discussion, "Spasticity," so that you can meet other members talking about this similar situations. Click VIEW & REPLY in the email notification, and you will be able to read through the past messages on this topic.

I'd also like to introduce you to @12271997 @hopeful33250 @oakbourne @aarniek @magg @maryar and others. I trust they will have some insights for you on losing more mobility every day as well as the intrathecal baclofen pump you are waiting to have put in.

Here is some Mayo Clinic information on on baclofen https://www.mayoclinic.org/drugs-supplements/baclofen-intrathecal-route/description/drg-20062155.

How are you feeling about this pump you will be having put in, @sharonalllen? Do you have a date for the surgical procedure for the placement?

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reply to@lisalucier
Thanks so much for moving me to this discussion. As to how I feel! I have been researching this subject for a while at the insistence of my Dr., quite frankly I am concerned about the side effects listed, these are the same side effects I am experiencing now with the oral. I go for my pre-test January 10, getting nervous! Am waiting to receive the CDB to try, should arrive today. Keeping my mind open!

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@sharonalllen

If you don't mind sharing more, what type of pre-test will you be having?

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Reply to@hopeful33250)
I am getting a test to see if the Intrathecal baclofen will work for me. I have to go to the Hospital where they inject a large amount of Baclophen into your spinal canal, where the pump is going to put the Baclophen wait 4 hours to check for side effects and if your muscles loosen up as expected, then you go home and you and your Dr.(pump manager) decide if you are or are not going to get the pump based on the test results.

0

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@sharonalllen

Reply to@hopeful33250)
I am getting a test to see if the Intrathecal baclofen will work for me. I have to go to the Hospital where they inject a large amount of Baclophen into your spinal canal, where the pump is going to put the Baclophen wait 4 hours to check for side effects and if your muscles loosen up as expected, then you go home and you and your Dr.(pump manager) decide if you are or are not going to get the pump based on the test results.

0

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Very interesting process, @sharonalllen, thank you for that information.
When will that test be happening?

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@hopeful33250

Very interesting process, @sharonalllen, thank you for that information.
When will that test be happening?

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reply to
Teresa, Volunteer Mentor @hopeful33250,

Thank you very much

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i have mayoclinic ang drugs.com: 35 number e-mail.Hoıw can i reply all? it is not İmposible 35 e-mail a day.i have to much works to do.i will going to hospital again after 4 day.i can reply 10 e-mail a day.i reply email 10 mayoclinic and 10 drugs.com.

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@luky2girls

i have mayoclinic ang drugs.com: 35 number e-mail.Hoıw can i reply all? it is not İmposible 35 e-mail a day.i have to much works to do.i will going to hospital again after 4 day.i can reply 10 e-mail a day.i reply email 10 mayoclinic and 10 drugs.com.

Jump to this post

Hi, @luky2girls – one suggestion to reduce the number of notifications might be to just follow the discussions within the groups you have a particular interest in, rather than the whole group (e.g., this spasticity discussion, versus the whole Brain & Nervous System group).

This information on Getting Started on Connect, especially the last three items, may be useful to you in working with Mayo Clinic Connect https://connect.mayoclinic.org/get-started-on-connect/

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