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aarniek
@aarniek

Posts: 47
Joined: Oct 30, 2016

Spasticity?

Posted by @aarniek, Apr 7, 2018

I have been living in my recliner for over 5 years as this muscle spasticity keeps me from walking more than a few feet! It's due to stopping a Benzo with a 5 week taper and 3 neurologists have done nothing for me! Anyone find something to help?( I even had Botox and it did nothing)

Liked by @sharon

REPLY

When all else fails try acupuncture it worked for me

to@jmajbk posted by sharon@
I may try that, it's one thing I have not done

@sharonalllen

in reply to@12271997

I to have had Spasticity for a couple of years. I finally found a Dr. that specializes in stroke rehab. I have since been told that there is one and only one relief from Spasticity and that is Baclophen, however with oral Baslophen only 30% reaches the brain to relax the muscles, therefore the only way to achieve complete relief, if possible in a BACLOPHEN PUMP, this is what I am going Ft. Worth, Tex. for on the 10th of January. My explanation comes from reasearch of Spacticity for the past week. Do you research on Baclophen pumps and Baclophen as well as Spacticity! Good luck, it is a terrible way to live, I am fighting to get back on my feet and walk again.

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@sharonalllen
Hello Sharon,
I was wondering how you are feeling.
I see in a previous post that earlier this month you were going to Ft. Worth Texas to look into a Baclofen Pump. I hope that appointment was helpful.
If you are comfortable doing so, would you update me?

in reply to @hopeful33250

To be honest I can't tell you. I had the shot and felt no difference, I was told to continue my pills as normal. After 4 hours I was released from the hospital and told to return for a follow up and report on the test on Jan. 23rd. Have seen no relief from pain since the test. Am planning on see the rehab Dr. on Jan. 29th to get his ideas on rehab to stop Spasticity. Sorry I have nothing new to report.

reply to @aarniek
I never heard of Benzo but I have been on Requip for years, which is for restless leg. It stops the cramps but does nothing for spasms.

@sharonalllen

in reply to @hopeful33250

To be honest I can't tell you. I had the shot and felt no difference, I was told to continue my pills as normal. After 4 hours I was released from the hospital and told to return for a follow up and report on the test on Jan. 23rd. Have seen no relief from pain since the test. Am planning on see the rehab Dr. on Jan. 29th to get his ideas on rehab to stop Spasticity. Sorry I have nothing new to report.

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I'm sorry that you were not able to find relief, @sharonalllen. Keep looking for answers and advocating for yourself.

@sharonalllen

reply to @aarniek
I never heard of Benzo but I have been on Requip for years, which is for restless leg. It stops the cramps but does nothing for spasms.

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Valium,Ativan,klonipin are examples of benzos ,mostly given for anixiety

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