Spasticity?

Posted by aarniek @aarniek, Apr 7, 2018

I have been living in my recliner for over 5 years as this muscle spasticity keeps me from walking more than a few feet! It's due to stopping a Benzo with a 5 week taper and 3 neurologists have done nothing for me! Anyone find something to help?( I even had Botox and it did nothing)

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

@sharonalllen

If you don't mind sharing more, what type of pre-test will you be having?

REPLY

Reply to@hopeful33250)
I am getting a test to see if the Intrathecal baclofen will work for me. I have to go to the Hospital where they inject a large amount of Baclophen into your spinal canal, where the pump is going to put the Baclophen wait 4 hours to check for side effects and if your muscles loosen up as expected, then you go home and you and your Dr.(pump manager) decide if you are or are not going to get the pump based on the test results.

0

REPLY
@sharonalllen

Reply to@hopeful33250)
I am getting a test to see if the Intrathecal baclofen will work for me. I have to go to the Hospital where they inject a large amount of Baclophen into your spinal canal, where the pump is going to put the Baclophen wait 4 hours to check for side effects and if your muscles loosen up as expected, then you go home and you and your Dr.(pump manager) decide if you are or are not going to get the pump based on the test results.

0

Jump to this post

Very interesting process, @sharonalllen, thank you for that information.
When will that test be happening?

REPLY
@hopeful33250

Very interesting process, @sharonalllen, thank you for that information.
When will that test be happening?

Jump to this post

reply to
Teresa, Volunteer Mentor @hopeful33250,

Thank you very much

REPLY

i have mayoclinic ang drugs.com: 35 number e-mail.Hoıw can i reply all? it is not İmposible 35 e-mail a day.i have to much works to do.i will going to hospital again after 4 day.i can reply 10 e-mail a day.i reply email 10 mayoclinic and 10 drugs.com.

REPLY
@luky2girls

i have mayoclinic ang drugs.com: 35 number e-mail.Hoıw can i reply all? it is not İmposible 35 e-mail a day.i have to much works to do.i will going to hospital again after 4 day.i can reply 10 e-mail a day.i reply email 10 mayoclinic and 10 drugs.com.

Jump to this post

Hi, @luky2girls – one suggestion to reduce the number of notifications might be to just follow the discussions within the groups you have a particular interest in, rather than the whole group (e.g., this spasticity discussion, versus the whole Brain & Nervous System group).

This information on Getting Started on Connect, especially the last three items, may be useful to you in working with Mayo Clinic Connect https://connect.mayoclinic.org/get-started-on-connect/

REPLY
@sharonalllen

reply to
Teresa, Volunteer Mentor @hopeful33250,

Thank you very much

Jump to this post

Teresa, Volunteer Mentor @hopeful33250
reply to @hopeful33250

Will I do the test on Jan. 14, I have not been told if there is some time or how much time I will need to say YES or NO I want the pump. If I say YES then I go to the hospital they do the surgery to place the pump in my side. I under stand that at that time they will set the timer for the dose and I will be ready to go home. That is as far as I have gotten in my research, the rest I will just have to see. Hope that answers all of your questions!

REPLY

Thank you, @sharonalllen, I do hope you find some relief!

REPLY
@lisalucier

Hi, @luky2girls – one suggestion to reduce the number of notifications might be to just follow the discussions within the groups you have a particular interest in, rather than the whole group (e.g., this spasticity discussion, versus the whole Brain & Nervous System group).

This information on Getting Started on Connect, especially the last three items, may be useful to you in working with Mayo Clinic Connect https://connect.mayoclinic.org/get-started-on-connect/

Jump to this post

luky06.Thank you so much lisa lucier.Best regards.

REPLY

in reply to@12271997

I to have had Spasticity for a couple of years. I finally found a Dr. that specializes in stroke rehab. I have since been told that there is one and only one relief from Spasticity and that is Baclophen, however with oral Baslophen only 30% reaches the brain to relax the muscles, therefore the only way to achieve complete relief, if possible in a BACLOPHEN PUMP, this is what I am going Ft. Worth, Tex. for on the 10th of January. My explanation comes from reasearch of Spacticity for the past week. Do you research on Baclophen pumps and Baclophen as well as Spacticity! Good luck, it is a terrible way to live, I am fighting to get back on my feet and walk again.

REPLY
Please sign in or register to post a reply.