Spasticity?

Posted by aarniek @aarniek, Apr 7, 2018

I have been living in my recliner for over 5 years as this muscle spasticity keeps me from walking more than a few feet! It's due to stopping a Benzo with a 5 week taper and 3 neurologists have done nothing for me! Anyone find something to help?( I even had Botox and it did nothing)

Interested in more discussions like this? Go to the Brain & Nervous System group.

@sharonalllen

reply to
Teresa, Volunteer Mentor @hopeful33250,

Thank you very much

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Teresa, Volunteer Mentor @hopeful33250
reply to @hopeful33250

Will I do the test on Jan. 14, I have not been told if there is some time or how much time I will need to say YES or NO I want the pump. If I say YES then I go to the hospital they do the surgery to place the pump in my side. I under stand that at that time they will set the timer for the dose and I will be ready to go home. That is as far as I have gotten in my research, the rest I will just have to see. Hope that answers all of your questions!

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Thank you, @sharonalllen, I do hope you find some relief!

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@lisalucier

Hi, @luky2girls – one suggestion to reduce the number of notifications might be to just follow the discussions within the groups you have a particular interest in, rather than the whole group (e.g., this spasticity discussion, versus the whole Brain & Nervous System group).

This information on Getting Started on Connect, especially the last three items, may be useful to you in working with Mayo Clinic Connect https://connect.mayoclinic.org/get-started-on-connect/

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luky06.Thank you so much lisa lucier.Best regards.

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in reply to@12271997

I to have had Spasticity for a couple of years. I finally found a Dr. that specializes in stroke rehab. I have since been told that there is one and only one relief from Spasticity and that is Baclophen, however with oral Baslophen only 30% reaches the brain to relax the muscles, therefore the only way to achieve complete relief, if possible in a BACLOPHEN PUMP, this is what I am going Ft. Worth, Tex. for on the 10th of January. My explanation comes from reasearch of Spacticity for the past week. Do you research on Baclophen pumps and Baclophen as well as Spacticity! Good luck, it is a terrible way to live, I am fighting to get back on my feet and walk again.

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@hopeful33250

Hello @aarniek

I am sorry to hear about your continued spasticity. Those of us who have this problem understand how uncomfortable it is. It really upsets your way of life, doesn't it?

Have you talked with your doctor regarding an order for Physical Therapy? Usually you can get a lot of relief from PT. Also, has your doctor mentioned using either heat or cold on the affected area? There are also some muscle relaxers that can be prescribed on a temporary basis to offer relief. Your doctor would be the best one to advise you on which would help you most (or perhaps a combination of therapies).

Keep in touch and let me know what you have tried. I look forward to hearing from you again.

Teresa

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What are the medicines that help as other than another benzo,all I tried made it worse,like dantrolene .flexeril ,and backlofen.

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I remember reading a paper by a psychiatrist in the 80 s that used 100 mg of tryptophan with remarkable claimed results for restless leg syndrome you might give it a try and then start therapy right away if you have been immobile that long

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Make sure your magnesium levels are within normal limits. We don't get enough magnesium. Magnesium depletion can give you pain and spasms. Take enough until you experience diarrhea and then stop. That should tell you how much to take. I take 300 mg daily.

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@oakbourne

Make sure your magnesium levels are within normal limits. We don't get enough magnesium. Magnesium depletion can give you pain and spasms. Take enough until you experience diarrhea and then stop. That should tell you how much to take. I take 300 mg daily.

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posted by @sharon
I have never been told anything about 100 mg of tryptophan what is it and why would I take it?

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@lydiaoscarsmom

Hi @aarniek, I am sorry to hear about your problems with muscle tightness. I had been taking 1.5 mgs of lorazapem from April 21st up until about 3 1/2 weeks ago. (My anxiety and sleep problems came from a family situation which has gotten better.) The anxiety was much better during the day so my Dr. said I could stop taking the .5 mg during the day. I felt fine for about 2 days then started having really bad muscle aches in my body, especially my quadriceps and calves. My back has been especially spastic and has been causing pain due to very muscles.

Have you considered trying a T.E.N.S unit to help loosen muscles and for pain? You can find them for about $45 online. I found mine at OTCWarehouse. You also have to purchase the sets of electrodes which start around $1.99 for a set of 4. This has helped me greatly.

I am going to see my Dr. tomorrow and am going to ask about a tapering program. I have looked at Dr. Aston's tapering manual. I don't want to go on Valium so I am going to attempt to taper from the lorazapem.

I have started feeling a bit better almost 4 weeks after my .5 milligram cut. I am still taking the 1mg at night.

Have you ever heard of CBD oil? I have purchased the 750 mg topical CBD cream from Medterra and have been applying it. It has been helping to relieve the muscle pain. It is a bit on the pricey side at $89.99 for 3.4oz, but just a little bit goes a long way and after applying it on my problem areas, the pain is gone for about 4 hours. It did take a few days to get in my system and start working. There are other brands of CBD topical creams. Definitely do your research. I researched for about 3 days before settling on one. The company is reputable and their products come with a 30 day unconditional money back guarantee. I am not trying to promote them; as there are other reputable companies out there. I am just sharing my personal experience.

I have also purchased their 3000mg oil that I take under my tongue .5ml 1 hour before bed for sleep. I am prepping my body for when I start to do my taper because insomnia is one of my biggest concerns. The CBD oil has also helped with anxiety as well. I take .25ml of the 1000mg bottle as needed for any rebound anxiety.

I will tell you that CBD products are VERY pricey. But they work when you find a good product and a reputable company. I found out about CBD products by doing an online search for things that aid lorazapem withdrawals. My search led me to learn about CBD and how it has helped others with withdrawals. I didn't realize that severe muscle cramps, pain and aching were a part of benzodiazepine withdrawls until I researched it. I was diagnosed with Fibromyalgia in 2012 and thought perhaps it was just a bad spell. But then I realized that what I was experiencing was unlike anything I had experienced before.

I really hope this information helps you. I am glad you are still here On this website. I joined this site just so I could reply to you and tell you what has helped me. I am praying for you!

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The product that helped with Benzo withdrawals ,the oil,could you provide info on ordering it as if you rub in in on the affected muscles it even helps with anixiaty ? I would just need a small bottle to see it it helps.

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When all else fails try acupuncture it worked for me

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to@jmajbk posted by sharon@
I may try that, it's one thing I have not done

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@sharonalllen

in reply to@12271997

I to have had Spasticity for a couple of years. I finally found a Dr. that specializes in stroke rehab. I have since been told that there is one and only one relief from Spasticity and that is Baclophen, however with oral Baslophen only 30% reaches the brain to relax the muscles, therefore the only way to achieve complete relief, if possible in a BACLOPHEN PUMP, this is what I am going Ft. Worth, Tex. for on the 10th of January. My explanation comes from reasearch of Spacticity for the past week. Do you research on Baclophen pumps and Baclophen as well as Spacticity! Good luck, it is a terrible way to live, I am fighting to get back on my feet and walk again.

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@sharonalllen
Hello Sharon,
I was wondering how you are feeling.
I see in a previous post that earlier this month you were going to Ft. Worth Texas to look into a Baclofen Pump. I hope that appointment was helpful.
If you are comfortable doing so, would you update me?

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