So Scared

Posted by jkenser @jkenser, Dec 27, 2016

Hello everyone. I have been doing the “watch and wait” approach on a 1cm non-enhancing tumor in my right temporal lobe for the past 2 and a half years. On my MRI last week the tumor enhanced for the first time. I do not know what type of tumor it is because we were just watching it… Now I am headed to Mayo in the morning to meet with a neurosurgeon.. My life has been flipped upside down within a matter of days. Has anyone else had a tumor in their right temporal lobe? I ask for lots of prayers of complete healing for all of us xoxoxox

@hopeful33250

@rosesareredmylove2016 Thanks for sharing your story of surgery and recovery. Perhaps others in our group would be interested in learning more about the type of benign brain tumor you had, did the pathology report give it a specific name? Once again, thanks for sharing, I applaud the exceptionally positive attitude that you share! Blessings to you. Teresa

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Rosesareredmylove – do you think it could be shrunk using Gamma Knife radiation? It’s not as invasive as surgery and I know at the Gamma Knife Center in Providence, RI, they did this. I had mind done there and it has been shrinking every year. Now I only have MRIs every 5 or so years and it is still shrinking. Just something else to throw into your idea cart! Wishing you well as always.

@hopeful33250

@rosesareredmylove2016 Thanks for sharing your story of surgery and recovery. Perhaps others in our group would be interested in learning more about the type of benign brain tumor you had, did the pathology report give it a specific name? Once again, thanks for sharing, I applaud the exceptionally positive attitude that you share! Blessings to you. Teresa

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Hi @amkaloha:
I’ve been told if the tumor continues to grow back. I will have the option of spot radiation to remove it from my brain stem..The issue is., its resting on my nerves and my surgeons are hesistant at this point..

Liked by ladycat

I have a grade 2 astrocytoma with the primary tumor behind my left eye bordered by my optic nerve and carotid artery and then there is a wing that extends out into my left frontal and temporal lobe that is intermingled with normal brain tissue. Because of the location of primary tumor and the extent of other tumor I was not a candidate for surgery or radiation. I took a year of oral chemo therapy. They said it is not a matter of if it grows but when because these tumors always evolve into higher grade tumor. They gave me 5-7 years to live. That was 15 years ago and my tumor remains stable. You just never know. Good luck. Hope it is going well for you.

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

Keeping you wrapped in prayers.
Dawn

@dawn_giacabazi

Keeping you wrapped in prayers.
Dawn

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@dawn_giacabazi Hi Dawn: I just love the phrase “wrapped in prayers”! Great word picture, isn’t it? Blessings to you today! Teresa

@dawn_giacabazi

Keeping you wrapped in prayers.
Dawn

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Thank you. I love this.

@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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I go to the Rochester MN campus. They are amazing. I’m so blessed to live in a state with such an amazing hospital. They saved my life. My neurologist told me my tumor was inoperable, but boy was he wrong. My neurosurgeon removed my tumor plus some and I was discharged home less than 48 hours later. I am so blessed!

@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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I go to the Mayo in Jacksonville Florida. Have a wonderful neurologist working on my headaches and looking to get a neurosurgeon there. I also see an endocrinologist there for my thyroid. I am being watched for my 9 nodules, one being very concerning they said. I go in April for that and will have to have blood work, a CT scan and something else….I forget….Wishing you the best. Praying hard for you….

@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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I did look online and found a neurosurgeon from MN Mayo has relocated to Florida Mayo. I may look into going to him. Great credentials and awesome reviews.

@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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What’s his name? What part of Florida are you in? I’m in Fort Lauderdale and look o king for right Dr.

@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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Hi Linda…I live in the western part of the panhandle. Pensacola…The doctor I’m looking at that came to Mayo in Jacksonville is Dr. Mohammad Bydon. Google him and see what you find out. Let me know what you find out. Hugs!!!

@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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Thank you! Will do big hugs to you too let’s keep n touch.

@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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Hi Linda,
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@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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Hi,
So happy for you!! Who is your Doctor at Mayo? My sister who has several new meningiomas has an appointment at Mayo July 26 for a third opinion. We are trying to research Doctors there. We live in Atlanta, but she has been getting conflicting opinions here from 2 different neurosurgeons.
Thank You,
Nancy

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