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jkenser
@jkenser

Posts: 24
Joined: Dec 27, 2016

So Scared

Posted by @jkenser, Dec 27, 2016

Hello everyone. I have been doing the “watch and wait” approach on a 1cm non-enhancing tumor in my right temporal lobe for the past 2 and a half years. On my MRI last week the tumor enhanced for the first time. I do not know what type of tumor it is because we were just watching it… Now I am headed to Mayo in the morning to meet with a neurosurgeon.. My life has been flipped upside down within a matter of days. Has anyone else had a tumor in their right temporal lobe? I ask for lots of prayers of complete healing for all of us xoxoxox

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Colleen Young, Connect Director
@colleenyoung

Posts: 3533
Joined: Jul 23, 2014
Posted by @colleenyoung, Dec 27, 2016

Hi @jkenser, I’m glad you found us here at Connect. I can imagine that this is a very scary time for you, and all happening so fast! I’m tagging a few members from the Brain Tumor group to join this conversation and to be by your side as you meet with the neurosurgeon at Mayo tomorrow. Please meet
@cynaburst @kariulrich @upartist @jasonkwellls @parker80138 @user_che69bc66 @heatherdeuel. Heather’s daughter had a tumor in the right temporal lobe. Everyone else in this group knows first hand what it is like to get MRI results that show a growth. We’re here to support you, and you are in the hands of the best medical experts in the world.

Jkenser – what questions are looping in your mind? Can we help you get ready to for your appointment tomorrow, and perhaps calm the anxiety at least a little?


Kari Ulrich, Volunteer Mentor
@kariulrich

Posts: 245
Joined: Jul 15, 2011
Posted by @kariulrich, Dec 27, 2016

@jkenser I understand the watch and wait mode! Always waiting for the next pin to drop. I do not have a same tumor as you, but I do have a pituitary ademona, a small brain aneurysm and avm. (These are all located in the brain). I have been monitoring them all for several years. Please know you are not alone, we are here for you. Take a deep breath. Now get out a notepad and write down all the questions that come to mind. I know this is happening so fast and your mind must be racing, but the better you are prepared for your appointment the better choices you will be able to make. Do you have someone going with you? Take one moment at a time and keep taking deep breaths when you get overwhelmed and scared. One question you might want to ask is how does a tumor on the right temporal affect you? What kind of symptoms can you expect and what are the treatment options? There are no stupid questions so ask away until you fully understand. You will be in my thoughts. Please remember again, you are not alone.


Rosemary, Volunteer Mentor
@rosemarya

Posts: 1073
Joined: Aug 30, 2011
Posted by @rosemarya, Dec 27, 2016

@jkenser, I know how to watch and wait, and I know the fear when life turns upside down, and I know how to pray. I will remember you tomorrow in my prayers. Rosemary


Cynaburst, Volunteer Mentor
@cynaburst

Posts: 218
Joined: Dec 26, 2014
Posted by @cynaburst, Dec 27, 2016

I hope that your appt. at Mayo helps you understand about your tumor and the implications. Wishing you the best.


HeatherDeuel
@heatherdeuel

Posts: 4
Joined: May 08, 2015
Posted by @heatherdeuel, Dec 27, 2016

Praying for you as you wait for your appointment. My oldest daughter had a tumor removed from her right temporal lobe. If you have any specific questions, please do not hesitate to ask! (She is doing well. Medically, great… But there are some side-effects from the surgery.)


Colleen Young, Connect Director
@colleenyoung

Posts: 3533
Joined: Jul 23, 2014
Posted by @colleenyoung, Dec 27, 2016

Welcome back to Connect, Heather. Thank you for writing to JKenser. Your offer to answer questions means a lot, as I’m sure you know.


jkenser
@jkenser

Posts: 24
Joined: Dec 27, 2016
Posted by @jkenser, Sat, Jan 7 5:46pm

Heather,
Thank you for writing me. I actually had surgery last Friday the 30th.. Everything just happened so quick. I was in for an appointment Wednesday and scheduled for a right temporal lobe resection that Friday. Surgery was successful, as they were able to remove all of the tumor. Still waiting on pathology, and praying that it is benign and will never come back. I think I am healing okay. I have never had any surgery so I am not sure what to expect. I feel very weak and foggy and the right side of my head is numb, which feels weird. I am hopeful that these feelings go away. I am walking, talking, eating, and know who I am and who my God is so I am very blessed. How is your daughter doing? What type of tumor did she have? I am curious to know how long I will feel “weird.” I think just the shock of everything that has happened so quickly and the anxieties that surround that is a big part of why I am feeling so different. I am sure the medications are not helping me. I stopped taking the narcotics and just take Tylenol but am still on anti seizure medications until tomorrow. I have never taken any medication before so that is weird for me. But again, all the glory to God for answering out prayers that this was operable and that Mayo was able to remove it so quickly. I had such a great team of doctors and nurses, they made all the difference in the world. Thank you again for writing me. I look forward to hearing from you =)

-Jessica Kenser


Dawn, Volunteer Mentor
@dawn_giacabazi

Posts: 447
Joined: Nov 13, 2015
Posted by @dawn_giacabazi, Dec 27, 2016

@jkenser
Sending many prayers. I have also been in a watch and see waiting game. Such a horrible position to be in. I pray your wait is over soon. I go back next month.
Prayers
Dawn


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2237
Joined: Mar 28, 2016
Posted by @hopeful33250, Dec 31, 2016

@jkenser Wishing you well. Keep us posted and let us know how we can help and pray for you! I’m sure that your appointment at Mayo will answer a lot of questions, I understand that Mayo has a great staff of doctors! Best wishes and keep in touch! Teresa


amkaloha
@amkaloha

Posts: 56
Joined: Sep 02, 2016
Posted by @amkaloha, Sat, Jan 7 10:17am

Just read this but will be praying that you get the answers you want.


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2237
Joined: Mar 28, 2016
Posted by @hopeful33250, Sat, Jan 7 12:06pm

@jkenser I hope that your appointment went well at Mayo. When you have time, please let us know how you are doing. Best wishes for the new year!


jkenser
@jkenser

Posts: 24
Joined: Dec 27, 2016
Posted by @jkenser, Sat, Jan 7 5:39pm

Thank you everyone for the prayers. It has been a whirlwind of a couple of weeks. I had my appointment last Wednesday the 28th and was scheduled for a right temporal lobe resection on Friday December 30th. It has been one week since surgery. Thank you Lord that they were able to remove the tumor. I am still waiting/praying for my pathology reports and am praying for whatever it was that it was benign and will never come back. I had the best team in neurosurgery work on me and in such quick time. God literally answered all of our prayers. I am so thankful for everyone at Mayo. Being in the healthcare field myself I can tell you that this experience has forever shaped the way I will practice medicine. Nurses and doctors have so much power over their patients fears, I had no idea how much of a difference they can make until undergoing this experience. I think I am healing well. I have never had any surgery before so am still unsure as to what to expect. I can tell you that I woke up from surgery knowing who I am, and how my family is, which is what I prayed for. I am walking, talking, and eating.. all blessings. The pain has not been too bad although the right side of my head is numb and sore. We are just praying for continued healing and great results. Thank you everyone for the kind words. The Mayo clinic is such an amazing place and I am truly blessed to have gotten in as quickly as I did.


lindalb
@lindalb

Posts: 12
Joined: Nov 29, 2016
Posted by @lindalb, Tue, Jan 17 12:28pm

So glad all went well for you ! Keep us updated xo


nancye3
@nancye3

Posts: 45
Joined: Jul 04, 2017
Posted by @nancye3, Sun, Jul 9 2:03pm

What a relief your surgery is behind you and you are doing well!! Who was your neurosurgeon at Mayo? My sister is flying there from Atlanta the end of July for an opinion and hopefully treatment plan for multiple meningiomas.
Thank You!
Nancy


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2237
Joined: Mar 28, 2016
Posted by @hopeful33250, Sat, Jan 7 7:08pm

@jkenser Thanks so much for the update! I’m so glad that all went so well for you. Keep us posted as you continue to heal. At Mayo Connect, we care.

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