So scared: Brain tumor on watch and wait has grown
Hello everyone. I have been doing the “watch and wait” approach on a 1cm non-enhancing tumor in my right temporal lobe for the past 2 and a half years. On my MRI last week the tumor enhanced for the first time. I do not know what type of tumor it is because we were just watching it… Now I am headed to Mayo in the morning to meet with a neurosurgeon.. My life has been flipped upside down within a matter of days. Has anyone else had a tumor in their right temporal lobe? I ask for lots of prayers of complete healing for all of us xoxoxox
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Hi @jkenser, I’m glad you found us here at Connect. I can imagine that this is a very scary time for you, and all happening so fast! I’m tagging a few members from the Brain Tumor group to join this conversation and to be by your side as you meet with the neurosurgeon at Mayo tomorrow. Please meet
@cynaburst @kariulrich @upartist @jasonkwellls @parker80138 @user_che69bc66 @heatherdeuel. Heather’s daughter had a tumor in the right temporal lobe. Everyone else in this group knows first hand what it is like to get MRI results that show a growth. We’re here to support you, and you are in the hands of the best medical experts in the world.
Jkenser – what questions are looping in your mind? Can we help you get ready to for your appointment tomorrow, and perhaps calm the anxiety at least a little?
@jkenser I understand the watch and wait mode! Always waiting for the next pin to drop. I do not have a same tumor as you, but I do have a pituitary ademona, a small brain aneurysm and avm. (These are all located in the brain). I have been monitoring them all for several years. Please know you are not alone, we are here for you. Take a deep breath. Now get out a notepad and write down all the questions that come to mind. I know this is happening so fast and your mind must be racing, but the better you are prepared for your appointment the better choices you will be able to make. Do you have someone going with you? Take one moment at a time and keep taking deep breaths when you get overwhelmed and scared. One question you might want to ask is how does a tumor on the right temporal affect you? What kind of symptoms can you expect and what are the treatment options? There are no stupid questions so ask away until you fully understand. You will be in my thoughts. Please remember again, you are not alone.
@jkenser, I know how to watch and wait, and I know the fear when life turns upside down, and I know how to pray. I will remember you tomorrow in my prayers. Rosemary
I hope that your appt. at Mayo helps you understand about your tumor and the implications. Wishing you the best.
Praying for you as you wait for your appointment. My oldest daughter had a tumor removed from her right temporal lobe. If you have any specific questions, please do not hesitate to ask! (She is doing well. Medically, great… But there are some side-effects from the surgery.)
Sending many prayers. I have also been in a watch and see waiting game. Such a horrible position to be in. I pray your wait is over soon. I go back next month.
Welcome back to Connect, Heather. Thank you for writing to JKenser. Your offer to answer questions means a lot, as I’m sure you know.
@jkenser Wishing you well. Keep us posted and let us know how we can help and pray for you! I’m sure that your appointment at Mayo will answer a lot of questions, I understand that Mayo has a great staff of doctors! Best wishes and keep in touch! Teresa
Just read this but will be praying that you get the answers you want.
@jkenser I hope that your appointment went well at Mayo. When you have time, please let us know how you are doing. Best wishes for the new year!