1. < Fibromyalgia
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Skin that is painful to the touch

Posted by robinsmm @robinsmm, Jan 28 11:43am

I was diagnosed with fibromyalgia about 4 years ago. Typically on a day to day basis I am symptom free. Yesterday I developed extreme pain only when I touch my skin. This is every inch of my body. This is the third time I've developed this symptom. The first two times It resolved on it's own after about 3-4 days. I discussed this with my rheumatologist and she said she didn't know what to make of it. She wanted to do labs when I was having the pain. I did the labs and they showed nothing abnormal.

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jakefix82 | @jakefix82 | Feb 14 11:58am
In reply to @jeannesf1 "Does anyone know of physical exercise that doesn’t hurt and cause a flare up. Even more..." + (show)
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Does anyone know of physical exercise that doesn’t hurt and cause a flare up. Even more than 7 minutes of walking causes me pain. Once it flares up bad pain doesn’t go away for days even if I stop.

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@jeannesf1 After 40 years, I’ve found the SciFit recumbent stepper works for me. I use it at the lowest level and have worked up to 30 minutes. No pressure on joints and I’m not dealing with the usual post-exertion malaise, flu-like muscle pain. My YMCA has 3 such machines, our Senior Center has two, and the PT folks also have one. Watch it in use online. Search SciFit recumbent stepper. I think NuStep makes one, too.

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celia16 | @celia16 | Feb 14 4:29pm
In reply to @jakefix82 "@jeannesf1 After 40 years, I’ve found the SciFit recumbent stepper works for me. I use it..." + (show)
Profile picture for jakefix82 @jakefix82

@jeannesf1 After 40 years, I’ve found the SciFit recumbent stepper works for me. I use it at the lowest level and have worked up to 30 minutes. No pressure on joints and I’m not dealing with the usual post-exertion malaise, flu-like muscle pain. My YMCA has 3 such machines, our Senior Center has two, and the PT folks also have one. Watch it in use online. Search SciFit recumbent stepper. I think NuStep makes one, too.

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@jakefix82 , I like it too. I’m not up to 30 minutes though! That’s awesome!

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jeannesf1 | @jeannesf1 | Feb 14 9:42pm
In reply to @jakefix82 "@jeannesf1 After 40 years, I’ve found the SciFit recumbent stepper works for me. I use it..." + (show)
Profile picture for jakefix82 @jakefix82

@jeannesf1 After 40 years, I’ve found the SciFit recumbent stepper works for me. I use it at the lowest level and have worked up to 30 minutes. No pressure on joints and I’m not dealing with the usual post-exertion malaise, flu-like muscle pain. My YMCA has 3 such machines, our Senior Center has two, and the PT folks also have one. Watch it in use online. Search SciFit recumbent stepper. I think NuStep makes one, too.

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@jakefix82 thank you so much. I had not heard of these before. But haven’t been to the gym although I have access to a gym because I went once and had a bad flare up. But I’m going to look for these. I really appreciate it.

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dinycat | @dinycat | Feb 20 3:13pm

I've just joined today and am learning about my recently diagnosed fibro.
I, too, have stinging pain on various areas of my body. I hope to learn more about this issue.

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mrsr1234 | @mrsr1234 | Feb 21 9:18am
In reply to @celia16 "@robinsmm , interesting. I have wondered what causes mine for a long time." + (show)
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@robinsmm , interesting. I have wondered what causes mine for a long time.

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@celia16 me too. It's only my right leg - hip to foot but more intense below the knee...

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celia16 | @celia16 | Feb 21 3:23pm
In reply to @mrsr1234 "@celia16 me too. It's only my right leg - hip to foot but more intense below..." + (show)
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@celia16 me too. It's only my right leg - hip to foot but more intense below the knee...

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@mrsr1234 , I finally went to Urgent care ortho last week and was diagnosed with ITBS, which I had in my other leg several years ago. It resolved with PT. This time he gave me a printout of exercises that should help it. I was able to get back on the stairstepper without too much pain. My flares are on the outside of the knee and a line of pain and soreness up the outside of the thigh and down the outside of the calf. Ice is helping too.
https://www.running-physio.com/itbs/

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mrsr1234 | @mrsr1234 | Feb 21 3:57pm
In reply to @celia16 "@mrsr1234 , I finally went to Urgent care ortho last week and was diagnosed with ITBS,..." + (show)
Profile picture for celia16 @celia16

@mrsr1234 , I finally went to Urgent care ortho last week and was diagnosed with ITBS, which I had in my other leg several years ago. It resolved with PT. This time he gave me a printout of exercises that should help it. I was able to get back on the stairstepper without too much pain. My flares are on the outside of the knee and a line of pain and soreness up the outside of the thigh and down the outside of the calf. Ice is helping too.
https://www.running-physio.com/itbs/

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@celia16 thank you, will look at this.

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