Skin that is painful to the touch

Posted by robinsmm @robinsmm, Jan 28 11:43am

I was diagnosed with fibromyalgia about 4 years ago. Typically on a day to day basis I am symptom free. Yesterday I developed extreme pain only when I touch my skin. This is every inch of my body. This is the third time I've developed this symptom. The first two times It resolved on it's own after about 3-4 days. I discussed this with my rheumatologist and she said she didn't know what to make of it. She wanted to do labs when I was having the pain. I did the labs and they showed nothing abnormal.

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Profile picture for dianedonohue @dianedonohue

@margaret69 Dear Margaret, I am positive that you will feel a difference. I am not sure if I mentioned this before but I have used regular castor oil initially but when I went online I found that Black Jamaican castor oil is available also. What I want to say is that it is a little more 'golden' in color but not 'black', fortunately because this would make it quite a nuisance to use I think because of possible staining. There were so many natural ways of caring for ourselves back in the 40ties I hope I can access some other success stories. I agree with you as far as boycotting Amazon but sometimes I fall off the wagon. That's an old expression too.

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@dianedonohue I have a whole board on Pinterest for old time remedies, as well as plants I can grow myself (it tells how to prepare them for different uses). I’m just slow on adding new things to my habits, so I’m always adding things faster than I’m actually trying them!🙄. I know what you mean about Amazon. I live in a city where there’s very limited shopping options so there are some things I have to get from them, and sometimes I just backslide bc I need something quickly and have no other choice at the moment. But I do make an effort to get whatever I can from other stores, so I tell myself that’s better than nothing!😊

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Does anyone know of physical exercise that doesn’t hurt and cause a flare up. Even more than 7 minutes of walking causes me pain. Once it flares up bad pain doesn’t go away for days even if I stop.

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Swimming and yoga both have been very beneficial for me.

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Profile picture for jeannesf1 @jeannesf1

Does anyone know of physical exercise that doesn’t hurt and cause a flare up. Even more than 7 minutes of walking causes me pain. Once it flares up bad pain doesn’t go away for days even if I stop.

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Dear Jean, I have a seated eliptical that I can use for one hour a day with no pain. However, I don't use tremendous force so basically I am getting the benefit of aerobic exercise which is better than nothing. If I walked I would have pain in every joint within 2 or 3 minutes or less. Swimming would be good but my pool is filled with snow now and it's too much trouble to go to the Community Center in frigid temperatures. I sometimes use a warmed bean bag on the seat of the eliptical just to be merciful to my muslcles. Also I want to mention that I am 82 and have Sjogren's and Lupus and erosive osteoarthritis and etc. etc. etc. to infinity. Good luck! Diane Donohue

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Profile picture for dianedonohue @dianedonohue

Dear Jean, I have a seated eliptical that I can use for one hour a day with no pain. However, I don't use tremendous force so basically I am getting the benefit of aerobic exercise which is better than nothing. If I walked I would have pain in every joint within 2 or 3 minutes or less. Swimming would be good but my pool is filled with snow now and it's too much trouble to go to the Community Center in frigid temperatures. I sometimes use a warmed bean bag on the seat of the eliptical just to be merciful to my muslcles. Also I want to mention that I am 82 and have Sjogren's and Lupus and erosive osteoarthritis and etc. etc. etc. to infinity. Good luck! Diane Donohue

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@dianedonohue dear Diane. You are amazing! 1 hour, 82 years old and so many medical conditions? I aspire to be like you. You have really encouraged me. I will try the seated elliptical. I’m 66 years old and feel like I’m 100. God bless you! Thank you so much.

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Having it is no joke and I'm sorry you have to deal with it. I can't stand my legs to have lotion rubbed in when getting pedicure. I tell them no.. it's not in my feet thank God!

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If I can find a polite way to say I'll skip the leg massage I do. Otherwise the pain is unbearable. Diane

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Profile picture for jeannesf1 @jeannesf1

@dianedonohue dear Diane. You are amazing! 1 hour, 82 years old and so many medical conditions? I aspire to be like you. You have really encouraged me. I will try the seated elliptical. I’m 66 years old and feel like I’m 100. God bless you! Thank you so much.

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@jeannesf1 If you could see me crawl away from the eliptical room you wouldn't be impressed. Also, it is amazing how addictive you can become to the most pitiful offerings on tv . I have been embraced by a virtual vampire that makes the time go by faster than I need it to at my age. Therefore, I am a willing victim.

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I get "flares" of burning or painful skin mostly at night. I wear snug "cuddle duds" and thin snug socks when I go to bed. The snugness of the clothing is tight enough it doesn't rub on my skin - it is more like an outer protective skin, so I don't feel the sheets touching, At times my hair touching my hands or wrists would hurt - even just air from my nose exhaling would hurt my hands. When this is happening I will put on light weight cotton gloves.
The cuddle duds I wear are the thinner ones, so I still wear them during the summer months too.
If I'm having bad flares during the day I take gabapentin (I am aware of all the bad reviews on it, so I take it as infrequently as I can).

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Profile picture for tamkai @tamkai

I get "flares" of burning or painful skin mostly at night. I wear snug "cuddle duds" and thin snug socks when I go to bed. The snugness of the clothing is tight enough it doesn't rub on my skin - it is more like an outer protective skin, so I don't feel the sheets touching, At times my hair touching my hands or wrists would hurt - even just air from my nose exhaling would hurt my hands. When this is happening I will put on light weight cotton gloves.
The cuddle duds I wear are the thinner ones, so I still wear them during the summer months too.
If I'm having bad flares during the day I take gabapentin (I am aware of all the bad reviews on it, so I take it as infrequently as I can).

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@tamkai Thank you for that advice, Diane Donohue

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