Sjogren’s Syndrome – Introduce yourself and meet others

Thank you so much for clarifying, @ladyjane85.
I was viewing an older message from August 10, in the Chronic Pain group, where you wrote about having tubes put in near the tear ducts. You can find that discussion here:
http://mayocl.in/2fbxTuB

Would you be able to offer some insight to @graveltruck who has primary Sjorgen's, which can affect the eyes? Did it help putting in the tubes, and do you have to replace them?

@mayocl.in/2fbxTuB  and @kanaazpereira      I am so sorry - I forgot my former dry eyes. I have such other painful issues.  Yes, I had trial tubes put in the tear ducts and then the longer lasting ones, and they still are doing a good job. Cannot remember but think my optometrist, told me they would be good for a year. There  is no pain involved and you will tend to ask did he already put them in....   @ladyjane85

There is fluid in the cochlear and the little hairs in it died. So, I am totally deaf in that ear.

Does your skin itch. My arms and legs really itch. I apply lotion twice a day and take benedryl. Guess it helps. It puts me to sleep.

Hi, first experience on such a site, thank-you for ur reply and thank-you to the others who also replied. I've been reading some on the site...U people r amasing, u really do care about each other, and u share ur own experiences. I am impressed! Amd thankful ur all out there doing so!
That said, i have dry skin/mouth/nose/eyes (burn, sand, red, flares up). I use Xylitol gum, Xylimelts, Biotène toothpaste + mouthwash, electric toothbrush (added recently). Secaris gel 4 my nose. Hylo drops to lubricate eyes, and now will get plugs. I dont now much about body cream yet, so far i,ve used Aveeno. Recently added an ultrasonic humidifier with option of warm or cool mist. I've been using warm mist and it makes a big difference, really. Sometimes i also take Benedryl.
Do u have a body cream to recommende? Thanks

Yes, my skin and scalp itch a lot. I use a mild shampoo and mild soap. Have tried various lotions. Right now using Walgreens Dry Skin Cream. Have just begun on Orencia. Needs a three month loading dose.

I think Auqaphor works really well. I also use a moisturizing body wash (Olay). I slather Auqaphor on after my shower.

I have found that tree tea oil shampoo plus rinsing with witch hazel does help my head. My arms and legs keep itching.

Thanks! I'll give it a try, my shampoo (Stieprox) isnt as effective lately.
Have a great day!

Thanks! I've seen Olay but havent tried yet. and I'll check for Auqaphor too.