← Return to Sjogren’s Syndrome – Introduce yourself and meet others

Discussion
Comment receiving replies
@fleure

Hi, first experience on such a site, thank-you for ur reply and thank-you to the others who also replied. I’ve been reading some on the site…U people r amasing, u really do care about each other, and u share ur own experiences. I am impressed! Amd thankful ur all out there doing so!
That said, i have dry skin/mouth/nose/eyes (burn, sand, red, flares up). I use Xylitol gum, Xylimelts, Biotène toothpaste + mouthwash, electric toothbrush (added recently). Secaris gel 4 my nose. Hylo drops to lubricate eyes, and now will get plugs. I dont now much about body cream yet, so far i,ve used Aveeno. Recently added an ultrasonic humidifier with option of warm or cool mist. I’ve been using warm mist and it makes a big difference, really. Sometimes i also take Benedryl.
Do u have a body cream to recommende? Thanks

Jump to this post


Replies to "Hi, first experience on such a site, thank-you for ur reply and thank-you to the others..."

@fleure welcome to this site I'm glad to hear you have the dryness also I've had dry eyes for ages but no Dr diagnosed it ,then all the other dryness followed hearing loss so have h.aides, dry mouth but the eyes drive me crazy ,feels like sand in eyes ,burning and the drops don't help all that much. Glad you posted I'm going to be more aggressive with my eye Dr.As I have macular also.Dr did put me on Perservision AM D it's OTC. Where did you find Hylo drops? And how often do you use? Thanks Linda

  Request Appointment