I have been diagnosed with this and I’m in pain most days and would like to have discussions.
Interested in more discussions like this? Go to the Autoimmune Diseases group.
I have all the symptoms above you described except never had a lip biopsy, Dr said not needed, the diagnosis is pretty clear. It took seven years for diagnosis. I guess did’t make myself clear to you.
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Wanted to know if anyone has nausea from Sjogrens? I have nausea most days, take Tylenol 3 or 4 times a day for ear aches wondering if the nausea is from Tylenol.
Nausea is one thing I don’t have much with Sjogrens. I do get it from Ropinorole, I take for restless leg though. I have lost hearing enough to wear hearing aids, and I’ve wondered if it could be because of the dryness of Sjogrens. Fatigue and aches and pains are my worst complaint. Lately, my tongue is very sore, and my parotid glands are swelling and painful, newer symptoms for me.
I do not get nausea from Sjogren’s. Gradual hearing loss can be caused by Sjogren’s. I have Sjogren’s. I was diagnosed with a lip biopsy.
lI have lost some of my hearing too, I’m confused and wondering why you thought dryness might be causing hearing loss. Aches and pains I have also. Dry skin is a big issue especially on my scalp. Dry eyes, mouth, saliva gland blocked a little and Dr cleared the gland. What was the first thing you had with this sojourns? Mine I had abdominal pain, seven years ago and that is how long it took to diagnosis me.
I did not have a lip biopsy but I had all the criteria.
My first symptoms were dry eyes, mouth and skin. I now have lots of aches and pains, chronic fatigue, memory fog, and other things mentioned before. I had to quit work last October and filed for disability. I also have other health issues.
Sorry to hear that. I have it too and its much nastier than many people believe.
Do you have a question or questions about some aspect of Sjogren’s such as medications, complications, co-morbitities?
I have Sjogrens, concomitant with Psoriatic Arthritis. Also having thyroid problems. I have scarring in the macula of my left eye and am experiencing some hearing loss and sometimes trouble swallowing. RA runs in my family. I have been on Enbrel and Remicade. Now waiting to begin Orencia by infusion. .
Welcome to Connect @cmtg. You have landed in the right place. I’d like to introduce you to a few other members who also have Sjogren’s. Please meet @johnwburns @blindeyepug @meemer @kyjeanne @uncbball and @ccorrconro for a start. I’m confident others with join this discussion too. I also encourage you to browse the other discussions in the Autoimmune Diseases group https://connect.mayoclinic.org/group/autoimmune-diseases/
CMTG – why type of pain do you experience and what methods or treatment do you use to try to manage it?
I was diagnosed in 2010 but now recognize I have had Sjogren’s since childhood. I hurt so bad ever day. Right now it is my lower back and both hip joints. Also, does anyone else find their sense of smell is weird?
I totally lost my hearing in my left ear overnight. Doctors said the MRI showed those hairs in the cochlear had died….
There is fluid in the cochlear which Sjogrens could affect.
My sense of smell has definitely been affected. I can’t smell as well, but sometimes it is worse than others. For example, many times I can’t even smell a dead skunk on the road, while my husband really complains. So, it is sometimes a blessing! 🙂
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