I have been diagnosed with this and I’m in pain most days and would like to have discussions.
Liked by Mamacita, Alumna Mentor, maryy, treebilder
Nausea is one thing I don’t have much with Sjogrens. I do get it from Ropinorole, I take for restless leg though. I have lost hearing enough to wear hearing aids, and I’ve wondered if it could be because of the dryness of Sjogrens. Fatigue and aches and pains are my worst complaint. Lately, my tongue is very sore, and my parotid glands are swelling and painful, newer symptoms for me.
lI have lost some of my hearing too, I’m confused and wondering why you thought dryness might be causing hearing loss. Aches and pains I have also. Dry skin is a big issue especially on my scalp. Dry eyes, mouth, saliva gland blocked a little and Dr cleared the gland. What was the first thing you had with this sojourns? Mine I had abdominal pain, seven years ago and that is how long it took to diagnosis me.
My first symptoms were dry eyes, mouth and skin. I now have lots of aches and pains, chronic fatigue, memory fog, and other things mentioned before. I had to quit work last October and filed for disability. I also have other health issues.
Liked by JohnWBurns, maryy
Sorry to hear that. I have it too and its much nastier than many people believe.
Do you have a question or questions about some aspect of Sjogren’s such as medications, complications, co-morbitities?
Liked by Ali Skahan
I have Sjogrens, concomitant with Psoriatic Arthritis. Also having thyroid problems. I have scarring in the macula of my left eye and am experiencing some hearing loss and sometimes trouble swallowing. RA runs in my family. I have been on Enbrel and Remicade. Now waiting to begin Orencia by infusion. .
Liked by John, Volunteer Mentor
My sense of smell has definitely been affected. I can’t smell as well, but sometimes it is worse than others. For example, many times I can’t even smell a dead skunk on the road, while my husband really complains. So, it is sometimes a blessing! 🙂
Liked by Kanaaz Pereira, Connect Moderator, brdl
Hello @graveltruck,
Welcome to Connect. Although Sjogren’s has been known to cause ear issues, it must have been awful to lose your hearing! I’m so sorry.
There are many members here who have had similar experiences with Sjogren’s syndrome. Please meet @marylou705, @kyjeanne, and @cmtg; I’m confident they will be able to give you some information.
@graveltruck, can you tell us a bit more about how you were diagnosed? Have your doctors mentioned anything as to how and why your sense of smell may be affected, and are you on a treatment plan?
Liked by John, Volunteer Mentor
@johnwburns
Ok. If you’re satisfied with it, and it covers your complaints, sure.
Do you have a question about Sjogren’s?