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Side Effects of Mavacamten (Camzyos)
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 14 9:28am | Replies (97)Comment receiving replies
Almost 1 year ...about 75% better. Thank you for asking. I just think it triggered something in my body. . I am now doing a double-blind clinical trial for Aficamten/ Metoprolol. So far so good. No serious side effects.
Replies to "Almost 1 year ...about 75% better. Thank you for asking. I just think it triggered something..."
@deanna529
***UPDATE***
Serious side effects from Aficamten.
I did a double blind study...the second day on the real aficamten (not the placebo) I got really sick with constant, severe diarrhea. Apparently I cannot do "cardiac myosin inhibitors". Was so sick that I could not leave my house for 5 months. I had to wear depends! Then I had to do a colonoscopy to make sure I was ok. It came out fine but no more "cardiac myosin inhibitors" for me. I had no idea that they had the same ingredients in both meds. ;-( I will just stick to Metrolol. I am stable this way. These drugs are not for everone. But they do help some people.
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Are you saying your taste is 75% better?🫤
I have serious taste issues, been on Camzyos since 10-5-23. Some food is absolutely horrid! Chocolate, sweets, Meat. Made the holidays not too fun.